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Dec 04, 2014 7:48 PM

OK, not a nice way to create a new topic, but I am in so much pain right now, this is how I am feeling. Screwed. I did it to myself though, I have no one to blame but myself. my fibro is getting worse by the day,it seems and I have no relief in sight. I cannot turn to pain pills (the good ones) because years ago I was heavily addicted after a surgery. So now years later, here I am in need of some pain medicine and I can't even go there. I am so upset, so achy, I am just sitting here in tears...I feel so lame that I should not even be sharing this pathetic story...so I guess I am calling out to a sympathetic ear. Every one on here is so sweet and understanding, I need you......

Dec 04, 2014 8:23 PM

I'm so sorry you're in so much pain. If it's any consolation, I can take the "good" pain meds and they don't so anything other than make me loopy and dizzy. I don't know what the answer is - I'm still searching too...

Dec 04, 2014 8:32 PM

Thanks so much for your response. Its time for me to get off the pity pot. I will be thinking about you. I really do appreciate your response.

Dec 04, 2014 9:03 PM

No worries! We all deserve a little pitty party from time to time. I have been throwing myself one for the last twenty minutes. My head hurts so bad (8/9) despite muscle relaxer and Norco, I would cry if that didn't make it worse. Miserable!!! Thank you for thinking about me! It's the support we all give each other that makes the situation more bearable 😭😭😭

Dec 05, 2014 4:43 AM

Thanks! I do hope your head is better. I do know about your head hurting so bad that you wouldn't dare cry for fear that the thumping would make your head come right off! Its no fun. Feel better!! I really do care.

Dec 05, 2014 7:56 AM

Blessed.... Marijuana?!!!!! Can you? Feel better!

Dec 05, 2014 9:13 AM

Its definitely been on my mind. would I ask Dr for it?

Dec 05, 2014 7:32 PM

Thank you, Blessed, for your encouraging words! Hoping you're getting some relief also!

Dec 05, 2014 7:39 PM

Is your head by better iathompson? You've been on my mind...

Dec 05, 2014 7:46 PM

You are so sweet, Blessed! No, it's unfortunately not better. I had a therapeutic massage this evening and a chiropractic adjustment. That reduced the pain from an 8 to a 6. And then I had to drive home and BAM the pain was back. Driving seems to be a trigger these days, I guess the vibrations along with the tension. I'll make it an early night tonight. How are you doing?

Dec 05, 2014 7:59 PM

Ah, I am sorry. I was hoping someone would feel better. I really was. I am tired of feeling sorry for myself. So I like to think about others and how somehow I could help them.
So, that's why you were on my mind. An early night you say? Yeah, me too. I dragged myself through the day then hit a brick wall.at 6:30....the weather is making things worse by me...some of the worst pain I have had. Oh well. As we all know life does.not stop for us...so we keep on keeping on.

Dec 05, 2014 8:25 PM

Blessed- are you in the States? It is legal for medicinal purposes in Maine. I only smoke or vap at night time. Definitely can give you a high, but helps to relax my body for my pain.

Dec 05, 2014 8:49 PM

Florida just voted no on medicinal MJ. Don't know if it would help me or not, but not having the option of giving it a try kinda sucks.

Blessed, I'm sorry to hear you're not feeling well either. I'm laying in bed with my trusty heating pad on my neck, watching TV. I'm envisioning you doing the same, like a virtual sleep-over 😄! We may have gotten old and achy, but that doesn't mean we can't still enjoy some simple pleasures...

Dec 06, 2014 4:28 AM

I am sorry that you are having a hard time. Pain is so difficult when it is chronic and we need to reach out. My wife tells me she is tired of hereing about my pain. I have a lot of things going on. And there is always a new problem and I want to tell her what is scaring me. But she says she can't do anything about it so she really doesn't want to hear about it or see the thing that is happening to me. I know that this seems like I am just wanting to discuss me but that is far from it. What I am saying is and I was telling my son this today as I was crying (something I usually never do). I said living with pain is quite lonely.

As said before, pain meds sometimes just don't do much but make you loopy. I have been on pain pills for 14 years now and it helps about 20% of my pain. But because my pain being so bad I will take that 20.
I use over the counter ibuprofen up to 800 mg every 8 hours because that is what my docs prescribes but now is cheaper otc.
I mentioned it today already. But it really works. You have to lay down and close your eyes. Take deep breathes and imagine your brain talking to your feet telling it to warm up. You will make your feet feel warm, when that part is warm move up little by little til you get to your neck. This is biofeedback. It works. It has to be practiced to get better at it so it will work more effectively.
My doctor gives me lidocaine patches to out over areas of pain, shoulder and low back for me at present.
There is a product that really helps me with my pain. I am sure anybody that has put up with chronic pain has heard of it but just in case I will mention it. It is called biofreeze. You can buy it in gel, roll on , or spray. I like the spray. The results are instantaneous.
Another thing that has helped me is heat. But you know like you feel the heat of a heating pad and it is so soothing that you just can't get up.yiunhave to stay in place. That is what I like about THERMACARE. It is the heating pad that is attached to you. I pay like $12.00 for 6. But the results are like Awesome.
Another help I received.. It use to be you could only get them but prescription. It is a T.E.N.S Unit. The electrical impulse device. Most of you probably know about or have one. But the science is that you place electrodes not on the site of the pain, but you want to put it between your brain and before the site of pain. You can only get so many signals to your brain in a path. This is sending regular signals to block the pain signals from getting through. I think now you can buy them online. I think Phillips just made one you can buy at a pharmacy. I hope I explained this correctly. This is a very effective tool especially if you have a inflamed nerve that makes you feel aggressive or like you want to punch something. I have severe low back pain sometimes one of the nerves gets inflamed. It was one that lead from the low back to the testicle. It was like a 8 on the 10 point scale. This unit completely blocked that pain. Of course you never want it to just cover the cause but I til that is fixed this helps.

My last thing or suggestion and I have to take my advice on this right now. When most people suffer. From chronic illness or chronic pain, it is a common thing for a doctor to put the patient on an anti-depressant. It makes sense. I don't know about the rest of you but sometimes when the pain goes on strong relentlessly for too many days, the thoughts in my mind scare me. Pain medication really doesn't literally take away pain, it changes the way we view or feel about the pain. I know personally I need to fool this because the pain meds aren't doing that good of a job changing my view of pain. Now I need medicine for that and that will help me deal with my days better.

I know I wrote a lot. I got the idea you were saying you want some suggestions for relief since you couldn't use narcotics. I hope I didn't waste your time. Whatever the case. I am sorry that you are suffering. It is a lot to deal with. If you ever need a listening ear. I will extend mine. I will keep you and all the sufferers of pain in this forum in my prayers that you will get comfort. I am not going to get preachy. But sometimes when I feel I am at the end of my rope and I just can't take any more..Some relief will suddenly come through. I feel like my prayers have been answered. It is like I will get the rest from a lot of pain I have suffered. Then it makes me forget how long I suffered but ready to deal for the next time.

Dec 06, 2014 8:12 AM

Blessed, I was in the exact same boat as you are yesterday and went to my dr. Crying for the acupuncture needles. Today I am up. I feel like I have been hit by a truck but I am not crawling or dragging today. I am so ready to try medical marijuana.

Dec 06, 2014 10:03 AM

Profiler, I'm so sorry your wife is not open to listening to you. No she can't do anything about it, but what you need to try to tell her is that sometimes just the touch of a comforting hand will relax your soul, the hug of someone who loves you will help you feel not so alone. I know exactly how you feel. My pain levels are usually 8/10 ON meds. I've tried natural remedies, excercises, biofeedback, massage, physical therapy, etc.. I've gotten to the point, it so bad, I can't do too much of anything any more. What's worse.. I don't want to sometimes. I'm here to listen to anyone who needs a sympathetic ear. We are all in this together and, it's true, the world doesn't stop for us.. We have to push through.

Dec 06, 2014 1:26 PM

I have never seen such a supportive community before! I can attest to what u have heard others say here. That being in pain is lonely. I have a large family however i am not allowed to talk about my pain. relatives would cast me out and call me weak and lazy, husband the same and I'm tryingto protect my kids from having to see it and feel that they have to make up for what I can no longer do. i am stilworking but have to be medicated to do anything anymore. Including work or home and even with the med school I'm still feeling paid 6-9. I get myself into situations that I can't get out if and end up pushing myself over the edge during the day and coming home and collapsing on the couch near tears. Every single day is a struggle and really feels like a lone journey. The previous posted mentioned many remedies. I have used all of the above and I would recommend them to others also. However the pain patches didn't agree with my skin but they helped some. I also found distraction to be a big help. I have to sometimes get my mind off it if I can but once the pain has built beyond a certain level then i can't distract anymore. So any person in pain needs to build their own pain toolbox and attack their pain with the different methods until you find what works. Kinda long here. Sorry about that. I'm around if anyone needs me.

Dec 06, 2014 1:44 PM

Some typos in my post
Not in med school getting paid lol
*even with the meds I'm still in pain between 6-9 one any given day.

Dec 06, 2014 6:04 PM

All you guys are awesome. To see the feedback and the caring of everyone is unbelievable. I do so much appreciate all of your thoughts and ideas. I was mentioning each of your names in my prayers, it was kinda humorous because we all have these "stage" names. It made me laugh...I got a huge chuckle out of what you iathompson said about a virtual sleep over and how we got old fast...maybe a moment of insanity on my part, but thanks for the laugh. How's everyone feeling now?

Dec 06, 2014 6:27 PM

Medical MJ is my savior. It helps with Anxiety and pain. I'm in Canada and its given here by a prescription. Sending you hugs Blessed, and everyone else here.

Dec 06, 2014 6:32 PM

Thanks crazychi! Right back at cha!

Dec 09, 2014 4:16 AM

I have severe spinal stenosis in s1and s2 for 9 years. I find the tens units make it worse. I am pretty much house bound. Life really is hard. Just this week my pain switched from radiating down my legs to right on the sight. Impossible to sit. Legs are still weak

Dec 09, 2014 1:10 PM

My husband has that and several years ago had a painkilling injection into the spinal canal (day surgery) and had great relief. He has lately become worse, had an MRI and was told he had ankylosing Spondylitis (?) now, (basically arthritis of the spine). He was offered an injection again but refused. He has become crotchety in his old age and also refuses surgery for arthritis in his knee and hip. He walks the dogs three times a day and looks after the yard and outside chores but has frequent rests in his reclining chair. Travelling any distance in the car is out. He takes Panadol Osteo but recent research says it is ineffective for back pain. Has injection into the spinal canal been suggested for your pain?

Dec 09, 2014 3:20 PM

I take 4 different meds for my fibro. They don't do much other than make me a little loopy, dry my mouth out, cause constipation. I live in a place where marihuana is legal for medical use but my Dr won't prescribe it for me even tho I helps me more than anything else does

Dec 10, 2014 7:22 PM

Crazychi, where in Canada do you live? It's not in Alberta.

Dec 10, 2014 9:19 PM

Jetpain- I had to go to a doctor that specializes in prescribing it. You may want to look that up for where you live.

Feb 21, 2015 11:21 AM

I'm so sorry you are hurting! Def try marijuana! It will relax you and that will help with your pain. Have you tried Gabapentin? It may help a bit, I figure if it helps a little that better than a poke in the eye right?!?!😏 lidocaine patches also may help..good luck and congrats on being so strong! Very proud of you!!!

Feb 21, 2015 3:22 PM

I know what y'all are going thru, sometimes life is the pits. But we have to dust ourselves off and go on with our lives. Be thankful for our good days, and keep putting one foot in front of the other. When I was still working a 12 shift 4 days one wk and 5 days the next I would practically have to crawl up the steps was stabbing me in the loo get in the house and make it as far as the couch and lay down until dinner was done. About 15 min after laying down it felt like someone had a knife and was stabbing me in the middle of my lower back. I was taking tramadol and hydrocodone and it didn't really help that much. I use a roll on that I get at walmart it's the equate cool heat it works pretty good, I made me a rice pack take two large washcloths and sew up 3 sides pour in just plain old white rice, you don't want to make it to full. Sew up remaining side and throw into the microwave for 3 min. Works really good it's a moist heat and it stays hot for a long especially under the covers. I hope everyone gets to feeling better and I Thank God I found all of you. I'm here for anyone who needs to talk anytime.

Feb 22, 2015 11:03 AM

After my car crash I was on narcotic pain pills. They seemed to just numb me mentally but still leave me in pain. On top of that I also had stomach injuries so having the side effect of constipation on top of a paralyzed stomach was just not working. A naturopath suggested two herbal supplements Passion Flower and Lobelia. I start with two Passion flower capsules and then a lobelia "kicker" if needed. Way more effective than Hydrocodone! I'm also able to wake up without being loopy and foggy the next day and no constipation. As far as marijuana I say try any means available to you to relieve your pain.

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