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severe chronic migraines with triptan and dhe allergies used botox no effect- how to treat the pain

Sep 21, 2014 10:43 AM

I've had chronic severe migraines for over 10 years. Every drug they have tryied (Tordol, beta blockers, anti depressants, calcium channel blockers, botox, anti-seziure drugs, phenagrin, OTC' s, triptans, keppra, thorzine, benadryl, reglan, fioracet with and without codine, dallaudid, vicodin, morphine, migraine cocktail and so on)the ones that do help do so very little, most don't work at all. I have been using alternative therapies such as ice packs, hot baths, meditation, chiropractic care, physical therapy, yoga, hypnosis, tens unit, deep breathing, walking and exercise, mental help, and more. I have figured out the majority of my triggers and most r out of my control such as the weather and change of seasons. I avoid artificial sweeteners like the plauge and bananas as well. I keep a close eye on my sugar levels being a diabetic to make sure low or high sugur isn't causing a migraine. I have a PCP, neurologist, and migraine specialist who I feel mimialize how bad my headaches hurt and how much they lower the quality of my life. My condition is so bad I get ssi disability cuz I'm unable to work a steady job. And it doesn't just affect me but my whole family daily. I'm wanting to know if anyone else is going through the same thing ? R there anything I haven't tried that might help? I want to know ur story and how u cope? Can u relate? Any advice at all?

Sep 29, 2014 1:25 AM

Oh! How I feel for you! I've had migraines for about 35 years, but only that bad about 4 years ago. We were able to get mine under control with a combination of some of the drugs you have tried. One thing my neurologist recently told me was that I have a good chance of getting off some y those when I get my TOS taken care of. He said that any time you have a pain condition above the waist, it can aggravate migraines. So, I wonder if you have any other pain issues going on that may be adding to the problem?

Sep 29, 2014 1:43 AM

I used to get them daily, now I take magnesium and verapamile, I take the verapamile 2x a day. Now I only get them every 3 or 4 days. We are all low on magnesium because of the way we eat. I also use a magnesium lotion that I rub on my feet and apply to my trigger points. I hope you find something to help you.

Oct 05, 2014 12:51 PM

my migraines seem to be linked to my menstral cycle and my other health condition have you been tested for other contributing conditions

Oct 17, 2014 6:01 AM

I'm so so sorry! I didn't see you mention propranolol ( a blood pressure med, also used for anxiety, also used for migraine prevention) but bless your heart I think you mentioned everything else. I was in so much pain every day that I didn't care if they suggested I see a therapist either. I chose a PhD female in psychology & if nothing else she thought it was perfectly reasonable for me to be upset about how these chronic daily migraines altered my lifestyle from those with healthy lifestyles. Of course she did much more than that. Also, because she had that title Dr.____, she had some pull in the medical community & was able speak directly to my neurologist & say that she had seen me x number of times that month for 60 min (he had seen me for 5 min 1 time) & she observed someone in a great deal of pain etc. Dr's who think you are just complaining about a little headache seem to take things a little more seriously when another person of authority calls & confirms your "story". I don't have any other med ideas for you but maybe if you can get your docs to see you have tried to get all kinds of help they will try a little harder too. Good luck!!

Oct 18, 2014 11:53 AM

I have a similar story. Mine started in 1998 after having my son. They were mostly menstrual migraines, but sometimes not. I was in your situation until a new neurologist put me on Trileptal. It was a miracle drug for me. The frequency and severity were greatly reduced. I get them now maybe 3-4 times a month. I take Midrin when I get one. I also had to have a hysterectomy in 2007, and my ovaries and tubes removed in 2012. Since then I've barely had any at all. Obviously that's not a treatment option. It was one of the only good things to come out of losing reproductive ability before 40.

I really hope you find something that works soon.

Jun 02, 2017 10:16 PM

How I feel your pain. I have had the same migraine for 8 months straight now and nothing works. I feel your pain and I am so so so sorry. I hope they find something. My advice is to find not in the small things or laugh at things like I like to laugh at the fact that o can't move my eyebrows from my botox treatments. Just find little things that make you happy and focus on those. I hope this helps a little. What kinds of doctors have you seen?

Jun 02, 2017 10:18 PM

There are so many more things I know of you can try and doctors to look into seeing. Please message me if you would like to know more

Jun 02, 2017 11:17 PM

I have them as well and cluster headaches. Going to try the botox injections now to see if they help me. I hope something does for you... And something will for me. And as well for others.

Jun 03, 2017 10:17 AM

I had horrible migraines and my dr put me on gabapentin - 300 mg three times a day and I hardly get migraines anymore

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