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Severe middle spasms?

Oct 11, 2015 10:19 PM

Do any of you with fibro get severe muscle spasms? I get them so bad in my lower abdomen I can barely walk and can't talk. The first two episodes sent me to the emergency room. My husband drove me. The doctors thought my appendix was rupturing due to the location of the pain and the severity. In the end, after hours of tests including xray and ct scan, it was ruled severe muscle spasms. The only thing that makes them go away is a muscle relaxer. I take one, curl up in a ball on my bed, and try refocus my thoughts away from the pain and to something that will help me relax. The first two times I had been swimming. Apparently I over did it. This time, I think what triggered it was that I've been sitting a lot more lately, also I couldn't find the anti-inflammatory that I take for my fibro. I haven't had it for 3 days. The muscle relaxer I took usually starts working in about 20 to 30 minutes. It's mostly gone now, except for a bit (that I would rate 4 on a scale on 1-10) is remaining. Do any of you, exclusively with fibro, get severe muscle spasms?

Oct 11, 2015 11:17 PM

Yes and with you taking pain med it can cause a spastic Colan

Oct 11, 2015 11:22 PM

I take Bently when it becomes severe. . Also Miriam Bently is for internal intestinal and bowel spasm.

Oct 11, 2015 11:25 PM

Bentyl. My muscles tighten to the point where it alters my vision.

Oct 12, 2015 10:00 AM

Pubhub, I get three types of spasms. The first is in my thoracic back area, and I take parafon forte for them. They started in 1991, following an auto accident. I also get spasms on top of the shoulders going into the neck from that wreck.

The second is pelvic organs & pelvic floor muscle spasms, which started around 1994. I take Levsin for them, which works specifically on internal organ spasms. This med also works well for my IBS related spasms.

The third is leg cramps and spasms in the calf and upper thigh muscles, which started about the same time my fibro symptoms started, appx 2007-2008. I was told to use the Parafon Forte for these also.

Since my hand tremors (mostly right) started in February, the muscles in my forearm cramp & spasm if the tremors are really bad. I wear my cts splints & use voltaren gel to help them relax. I do wonder if this is fibro related. IBS is common in fibro patients too. 🙏🌼

Oct 12, 2015 7:49 PM

Is Bentyl the same thing as dicyclomine? (I don't have the bottle in front of me so I'm doing the best I can on spelling). I have dicyclomine for intestinal cramping. I'm just never sure if it works because the pain usually goes away after I have a bm. I do have IBS. Is there a way to tell muscle spasms from abdominals as opposed to the smooth muscle cramping or spasms of the intestines? I did notice being extremely bloated for three days prior to this incident. I've got the mixed diarrhea/constipation type. I've switched back to diarrhea after having the constipation for a couple months. The first time I ever had these severe cramps or spasms was around late December. Then I had it again in mid January. And now this is the third time. It isn't the normal abdominal cramping that I get with my IBS. I've had plenty of flare-ups between last December and now. That's why I'm not sure if it's my IBS. After I wrote this topic, the spasms came back. I tried to use the bathroom to no avail. I made it to my bed and hubby covered me and turned out the light. I woke up several hours later and the spasms were still just as strong. I think my muscle relaxer is what made me sleep. I woke up one more time after that and was in pain still. When I got up, they were gone but my abdomen has been super sore all day and my body has been weak, most likely due to the amount of energy I expended on the spasms. I haven't been able to do much today because of it. I think my muscle are injured. That's what it feels like anyway.

Oct 12, 2015 9:16 PM

Pubhub, I'm going to describe some issues I go through. Some details may be tmi or embarrassing, and I apologize if they are. But if it can help you or someone else then it's worth sharing.

The first is when my IBS is extra constipated. Right after my food passes through the stomach, or tries to, I begin getting sharp pains in the upper right abdomen. As it moves through the intestinal track I can tell exactly when it gets stuck due to the pain location. It doesn't matter how much water I drink. With the IBS my GI tract moves at sluggish speed, especially due to damage from multiple surgeries and childbirth. I drink a Psyllium fiber with citrucel every day, sometimes twice a day if I haven't had abm in days. I also take Linzess. I do get intestinal spasms that feel like sudden, repeated squeezing rather than sharp twisting cramps. When they occur I take Donnatal. These spasms usually occur when my IBS is switching between constipation and diarrhea.

But a lot of my problems also stem from pelvic floor dysfunction. It's where the nerve signals to the pelvic floor muscles are misfiring (due to my multiple surgeries & childbirth). It's affecting my urinary and digestive tract, and I actually get spasms in the urethra, anus, and the perineum areas, into the upper legs. These spasms started appx 12-15 years ago following intercourse. It progressed to having spasms while urinating or having a bm (or trying to). These spasms occur in the whole pelvic floor at times, which some of the muscles go down the front & inside of the thighs. They can occur simply from standing or walking too long for me. My nerves send opposite signals to both the bladder and bowels, so that when they should relax they contract instead, and when they should contract they relax (hence my need for repeated pelvic floor therapy). Needless to say, intercourse hasn't occurred for several years, as these spasms worsened. A GYN exam, bladder exam or rectal exam causes them too. The PF therapy is to retrain the muscles and block or reverse the misfiring nerve signals, similar to using TENS unit on the back. These spasms are unlike any abdominal cramps or spasms I've ever had, even when my gallbladder was about to rupture. They are unlike any Charlie horse or night leg cramps. I'd say they're on the same level as the worst migraines I've had. I can feel the difference between spasms of the pelvic floor muscles and abdominal cramps, in that cramps grab and hold but spasms are more grab-release-grab-release, sort of like throbbing or pulsating. When they occur I have to take Levsin. I roll into a fetal position on my side and many times cry from the pain.

If you think this sounds similar to what you experience, talk with your doctor. One other thing, when my GI tract gets blocked or sluggish, besides cramping I also feel bloated, with nausea and no desire to eat. I hope and pray you get some relief soon! 🙏🌼

Nov 02, 2015 4:04 PM

Just was tested for gastroparesis but came back negative. I was told it was my fibromyalgia. I have IBS and I have had fibro for about 30 years. But over the last 2 months my cramps in my stomach issues have been almost to the point of driving me crazy.

Nov 02, 2015 9:18 PM

I'm so sorry Niki. Hugs and a prayer you'll find a way to ease the cramps. 🙏🌼

Nov 02, 2015 9:58 PM

Yes, I experience them from time to time. I get them in my stomach area and my legs. I keep forgetting to tell my Dr.about them because it doesn't happen often. When it does happen the next day my muscles are extremely sore.

Nov 03, 2015 12:34 AM

I was diagnosed with fibromyalgia when I was 16 ,I'm now 35 and I've had several episodes where I will get a muscle spasm in one part of my body and then it spreads. It completely freezes me up, if I move the pain gets worse! It's the scariest thing when it happens.

Nov 04, 2015 3:14 PM

I get bladder spasms and severe cramping in my abdomen that Dr said was from my fibro :(

Nov 04, 2015 3:20 PM

Im having a CT next week of abdomen. They ruled out gastroparesis and said probably my IBS/fibro but to make sure ... my stomach pains are just soooooooo bad I want to give up some times.

Nov 04, 2015 6:41 PM

Trtbarker, I get bladder spasms, but it's from Interstitial Cystitis & pelvic floor dysfunction. A urologist dx them. Have you seen a urologist? I feel for you because they are awful. 🙏🌼

Nov 04, 2015 8:22 PM

Yes, Bentyl and dicylomine are the same medication. (12 years as a pharmacy tech ;) ) I have spasms in my abdomen as well. Sometimes from the IBS I have along with the fibro, sometimes muscle cramps/spasms that are not IBS related and the doctor blames on my fibro and sometimes intestinal migraines that I take my regular Imetrex for migraine to resolve.

Nov 04, 2015 8:25 PM

FlappysLady81: I have a urologist now for the second time unfortunately, he agreed it was fibro. He represcribed me flomax since in 09 I was on catheter for 18 weeks.

Nov 04, 2015 9:13 PM

I'll ask mine when I see him. If fibro can cause those spasm (bladder, vagina, rectal...pelvic floor), then I may have developed fibro in the late 90's. That's when my pelvic spasms started, along with severe upper thigh muscles cramps and spasms that locked down any moving. 🙏🌼

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