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severe pain has taking over my life.

Sep 06, 2015 12:52 AM

first of all , it's fixing to rain here in a few days. Because my body is on a war path. Fibromyagia has literally taking over my life. I can do nothing! I limit myself to what I can do because if I know I need to go to the store or anything like that I must preserve days sometimes weeks in advance. then I'm down for days. I do know I don't want to live like this for what life I have left! I'm sad and broken. :(

Sep 06, 2015 4:03 AM

Where are you at mellowkimber? I always know when the weather is changing here too .. upstate ny.

I'm sorry for the way you are feeling... I've been there. . pain is a horrible thing to have to deal with day in and out.. it really gets to you and tries to break you down. Please don't let it. I know thats easier said than done. I didn't think I would be able to live an adjusted life .. I just wanted to die and let it all be over but I figured it out .. it takes time but its do able. If you ever want to talk, vent, scream, cry .. know we will be here for you through it.

Sep 06, 2015 9:47 AM

Mellowkimber, I'm sorry that you are feeling so down. I have gone through these feelings many times and am 50 years old. I've had folks ask me what I will do when I'm their age and I have been guilty of saying, I hope I'll be dead by then. I don't want to live out another 30 years feeling like this either but there is a reason I'm here and only God knows why. Maybe I'm here to offer comfort to others and help them feel better, maybe I'm here to let others know that they are not alone and have a shoulder to cry on and an ear to listen. There are many of us here with different diagnosis but we all share one common thing and that's agonizing pain. There is support and understanding here and never, ever judgement. I'm sorry you're hurting so badly. We had a huge get together yesterday and I'll be in bed the next couple of days. I had a good time though! We have to try to focus on getting through what we need to do and be happy we accomplished it. We are no less of the person we were before we got sick, just different. Perhaps, at least in my eyes, a bit stronger because of what we deal with just to get through our day. I pray you have a better day and that you know you have many people here to help you. 🌻🙏🏻

Sep 07, 2015 3:49 PM

Mellokimber, I'm so sorry you're feeling so down. I left work 5 years ago for surgery that required a year's recuperation time. I fully expected to return to the work force. Instead my health has tumble downward from one thing to another, and last year I realized I'll never return to any job. Throughout the past 5 years I've found myself where you are at least twice. But I know that even though I can't work, Good is still using me in ways I may not even see. I've learned to place my days activities and allow rest periods of days. We had our two granddaughters Saturday & Sunday, but I'm so any & tired today I'm just resting. I do know that "fibromyalgia" just wasn't explaining how bad I was feeling and I kept track of my symptoms, praying my doctors to test further. I was lucky that an MRI on my neck showed a damaged thyroid, and they did an ultrasound with blood tests (I went to an endocrinologist), and I have hypothyroidism. During the same time I started seeing a rheumatologist. My mouth developed a weird rash for three months so she sent me for a biopsy, and it came back sjogrens. I'm now on meds for those issues as well, and the Plaquenil gave me the added benefit of helping my fibro pain. Most of us here don't have just fibromyalgia, and its often found along with autoimmune issues. If you aren't tracking symptoms, start doing so. And research what you can. We've all learned or are learning to adjust our lives, in order to enjoy what we can when we can, and rest when we need to. And I for one, have learned how to say no to others and not feel guilty because I don't feel up to something. I have to fight to keep from letting my health take over and overwhelm me. I want my grandchildren & children to see me as a fighter, to know how to deal with trials and health issues. But that doesn't stop me from having really bad days, like you're having today. Just know we are all here for you, and we'll help any way we can to help you get through. (((Hugs))) & prayers you will be able to get better control of your pain. 🙏🌼

Sep 07, 2015 3:53 PM

Any and tired = achy and tired
Learned to place = ... pace
Good = God

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