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Oct 15, 2016 9:06 AM

What triggered the start of your pain?

How did you find the best pain clinic?

What treatments have you explored?

Oct 15, 2016 11:17 AM

My pain has been my companion for 45 years. When I was 12 I was playing in some construction equipment like I would on what we called monkey bars. The bar fell over and landed across my eyes. I had two beautiful shiners .. And a few months later the pain began. Diagnosed as growing pains. (never understood how I could have growing pains and yet be so short?) lol

Have moved often so in each place it was a matter of trial and error. Before internet it was by word of mouth or doctor referral. Now you can go online and search clinics plus read reviews.

Treatments are too numerous to list. I did try the magnets when that was a big fad. Several years ago a book came out on how to control pain with vitamins and supplements. Tried that for several months. Strangely those vitamins left me feeling high when no narcotic has ever done that to me.

Physical Therapy has helped
Water aerobics helped
Walking helped
Gentle stretching each morning helps
The best help.I have found is spending time with my best friend and being at the beach. Not sure what it is about the ocean air but when I am there I can walk for miles, my pain is so low I can just enjoy my time there. Going to miss that this year.

Oct 15, 2016 2:45 PM

Lying hurts...

Oct 15, 2016 5:03 PM

About three years ago i was sitting on a hard chair and two discs popped out in my lower back and they are pressing on nerves from my spinal chord so i have nerve pain down my left leg. i found out recently i have osteoarthritis and degenerative disc disease

Oct 15, 2016 7:08 PM

Club - laying down can sure be painful for some. Am sorry you are hurting.

Oct 16, 2016 11:43 AM

We're not sure 🤔 what caused my fibromyalgia. With the abuse in my childhood and as an adult to the many accedents I've been in the only thing I can come up with is when my pain stopped going away, that was around 11-12 years ago when I was 30. I lost my daughter at birth and never recovered.

I've tried epidurals, trigger point therapy, having nerves in my neck burned, chiropractic treatment, exercise, tens units, massage 💆, meditation, prayer 🙏🏿, group therapy, CBT classes and much more.

Right now what's working some of the time right now is daily physical therapy, aromatherapy, hypnosis tracks, hot and cold packs, long hot 🛀 baths, sleeping 😌, walks, spending time with those I ❤️ love, keeping a good sense of humor and a positive attitude, being grateful daily, lyrica, Motrin, excedrin, elivil, pristiq, and a couple of hobbies I can do from the couch, and being able to ask for help when I need it.

Oct 16, 2016 5:20 PM

What triggered my fibro was believing that I could cope on my own. Not sharing the fact that my then partner tried to commit suicide 3 times within the space of 6mths. It started with illnesses, common colds and headaches that lasted for weeks at a time. Muscle cramps firstly in my left hip then progressing to the rest of my body. The stresses of keeping it all to myself.

Oct 16, 2016 8:27 PM

My pain started about 12 years ago with severe hip pain and low back pain that would come and go. After numerous tests and no answers, I quit looking for an answer. Fast forward to 6 years ago, I woke up one morning with severe pain in my neck and left arm/hand. My insurance would not authorize a mri until 6 weeks from onset of pain. My Dr prescribed pain meds and muscle relaxers to get me through. So 7 weeks later I had my mri which showed compression of my spinal cord at C67. A week later I saw the neuro and had surgery the following week. Unfortunately the delay in treatment has left me with nerve damage causing constant pain iny neck, upper back, and arms. My hands go numb daily also. My fibro was also triggered at some point during this time. Two years ago, I was sent to rheumatology to officially diagnose fibro. During these first few visits my hip pain was revisited. I received the diagnosis of ankylosing spondylitis along with fibro. Since then Raynauds Disease has also been found.
Everyday is painful. I want my old self back.
I still work, so I get my exercise there being on my feet all day. Resting and pain meds are the only things getting me through each day.

Oct 17, 2016 6:48 AM

I really had to think about this one because I would have pain on and off as a child but I guess mine started when I broke my ankle as a child and the bone attached itself to another ankle bone and the doctor's didn't want to do surgery to correct it, since then I would constantly reinjure that foot, also in middle school I sat in a wooden chair (that one of the students messed with as a prank, I was bullied alot in school) and it fell to pieces causing back problems from that day forward and Migraines as I hit my head hard on the floor that was not carpeted. I had scoliosis they found while in middle school, it wasn't bad so every bad pain I had was chalked up to the scoliosis and was told it would work it's self out. I saw chiropractor's and it didn't seem to help. It wasn't until the last four years that I actually got my problems looked into, and seeing pain management doctor, I have to wear a back brace and the tens unit helps from time to time, sometimes the RFA's work and other times not. Pain meds and muscle relaxers help on really with the aid of the heating pad and relaxation. I also have some PTSD from some things that happened to me as a child and in adulthood but not really going to share that, not really comfortable, I also have Sjogrens Syndrome so I was told by my doctor that my Sjogrens syndrome brought on Fibro like sensitivities. The things I mentioned above helps with Sjogrens sometimes, mostly heat and ice and rest for the Sjogrens pain.

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