I usually don't post much but I think I need some advice from people who kinda, maybe know what I am going through.
I have had pain all over my body, especially when trying to get to sleep for years. In the last couple of years, it has been bothering me during the day too. I have also suffered from depression, anxiety, fatigue, and headaches since I was a teenager. I have always needed a lot of sleep and have learnt how to listen to my body and not do too much. About a year ago, I noticed my headaches where worse and I almost always had some pain. My AWESOME family doctor did not just waive off my pain and say just take Tylenol everyday, like my previous care provider. He actually told me not to work if it made me in more pain and fatigued. He has done many tests, changed my meds (with the help of a psychiatrist) and I finally have appointments for a headache specialist in April and a Rhumatologist to diagnose Fibromyalgia in July. I have also gone to some workshops held through the clinic my doctor is a part of.
Like I said, I have learnt to listen to my body and not do a lot. I don't have a husband and my kids all have four legs and fur (I call my two cats and my two dogs my kids.) I do live with my dad, who although he has been diagnosed with Parkinson's, is very independent. He can still drive, and make lunch (he never made dinner LOL). He hired a house cleaner so that neither of us have to do that stuff. When I am too tired to get out of bed, or my feet are in too much pain for me to let them outside, my dad will "pick up the slack".
I have read many posts where people are in extreme pain while I am constantly at a level one or two. If I do too much, my pain goes higher. Now, these people seam to be parents who are taking care of kids and going to work everyday. I can't help thinking that if my pain is only at a level one, then maybe I should be going back to work and doing more. But then I know that doing so would make me in more pain and that I would not be a reliable employee because I never know when I will have a horrible headache or an IBS flare (oh, yah, I forgot about those). I haven't worked full time since about 2009 because I was too drained to live if I worked full time.
So, all this long post to say: should I do more if I am only at a level one pain? Or should I "suck it up" and live with more pain and fatigue?