Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Should I be doing more?

Jan 22, 2017 4:22 PM

Hi all
I usually don't post much but I think I need some advice from people who kinda, maybe know what I am going through.

I have had pain all over my body, especially when trying to get to sleep for years. In the last couple of years, it has been bothering me during the day too. I have also suffered from depression, anxiety, fatigue, and headaches since I was a teenager. I have always needed a lot of sleep and have learnt how to listen to my body and not do too much. About a year ago, I noticed my headaches where worse and I almost always had some pain. My AWESOME family doctor did not just waive off my pain and say just take Tylenol everyday, like my previous care provider. He actually told me not to work if it made me in more pain and fatigued. He has done many tests, changed my meds (with the help of a psychiatrist) and I finally have appointments for a headache specialist in April and a Rhumatologist to diagnose Fibromyalgia in July. I have also gone to some workshops held through the clinic my doctor is a part of.

Like I said, I have learnt to listen to my body and not do a lot. I don't have a husband and my kids all have four legs and fur (I call my two cats and my two dogs my kids.) I do live with my dad, who although he has been diagnosed with Parkinson's, is very independent. He can still drive, and make lunch (he never made dinner LOL). He hired a house cleaner so that neither of us have to do that stuff. When I am too tired to get out of bed, or my feet are in too much pain for me to let them outside, my dad will "pick up the slack".

I have read many posts where people are in extreme pain while I am constantly at a level one or two. If I do too much, my pain goes higher. Now, these people seam to be parents who are taking care of kids and going to work everyday. I can't help thinking that if my pain is only at a level one, then maybe I should be going back to work and doing more. But then I know that doing so would make me in more pain and that I would not be a reliable employee because I never know when I will have a horrible headache or an IBS flare (oh, yah, I forgot about those). I haven't worked full time since about 2009 because I was too drained to live if I worked full time.

So, all this long post to say: should I do more if I am only at a level one pain? Or should I "suck it up" and live with more pain and fatigue?

Jan 22, 2017 5:16 PM

Do as much as you can. Life is to short not to live. X

Jan 22, 2017 5:58 PM

I wouldn't get a job. Fibromyalgia is going to get worse. The fatigue is going to get worse. Do you have fibrofog to? That will get worse to.

Jan 22, 2017 6:07 PM

Yes, I have fibro fog. I know I am not as good at thinking and getting words as I used to be.

Jan 22, 2017 8:22 PM

The way I had it explained to me was that your "Level 2" pain may be someone else's "Level 6". My suggestion is to do what you can, while you can.... but don't worry too much about adding "Keeping up with the Jones'" to your list simply because it seems you should.

Jan 22, 2017 8:43 PM

Thanks everyone. It's just sometimes I feel lazy because I don't do a lot during a day. Plus, I'm in the process of applying for Ontario Disability and it is so hard to prove a disability when it is not visible and/or a degenerative disease.

Jan 25, 2017 6:19 PM

DigbyTheDog, Each and every one of us are different, from our various diagnoses, the meds we take our relief methods we use, and the degree of tolerance pain levels. I've been fighting with fibro since 2007, quitting work in 2010 to recuperate from surgery. I thought I'd eventually return to work, but instead I've been riding a downward spiral health deterioration train. My diagnoses have quadrupled and my meds even more. I'm never without pain, always a level 2-4 daily. Nights are the worst because it's too quiet and still, so my mind has nothing to divert it away from the shots of pain all over my body. I do minimal activities with frequent tests, saving major activities for when I have help. If I don't them I get in serious trouble painwise. Listen to your body, because you know it best.

I'm 55 now and feel 65+. I can't do half what I use to do and I stopped breathing myself up about it. I kept telling my hubby were not "Spring chickens" anymore and he should be careful. Instead he tried doing "Mr tough guy" stuff without help. Now he's got a permanent painful shoulder, labrum year and shoulder freezing up. Don't feel guilty and don't overdo it. Be active, rest, active, rest... I do what I can when I can, but I don't care try doing things I know will cost me. Hugs love & prayers! 🙂💕🙏🌸

Jan 25, 2017 8:21 PM

Do what u can and to hell with what other people think. No one knows your pain except u.

Jan 25, 2017 9:08 PM

You seem to have learned to manage your pain. That's a good thing. It's a lesson that many never learn. Don't compare your pain with anyone else's. You are you, a unique person. You could be living with what could be debilitating pain "but for" your ability to listen to your body. Keep up the good work.

Ready to start relieving your pain?

Join Community