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Should I give up

Mar 01, 2018 4:32 PM

I’m 12 as you may know I have had eczema since I was born and was diagnosed with hyper mobility around 2-3 years ago I struggle everyday with walking and all the doctors do is send me to physio even though I said it makes it worse ( my mum has the same problem as me but she uses crutches and a wheelchair to get around ) when I use my mums old crutches it feels so much better
Please I need advice surly someone has hypermobility on this thing
Please help I sit at home and school crying my eyes out due to the pain I need advice ASAP

Mar 01, 2018 5:32 PM

I don’t have nor do I know anyone with hyper mobility but I have fibromyalgia and I’m sure it’s not the same pain but I do experience pain and know it’s really hard and I can’t imagine at your age I’m 21 and it’s hard enough but hang in there and I’m not sure how much is known about hyper mobility but do research google things that help and look for support groups even on Facebook they may have more insight and keep your chin up

Mar 01, 2018 8:41 PM

I'm 15 with hyper mobility, and fibromyalgia. No one believed my pain either, for years. I finally got them to listen when I went to the er, and completely broke down. I only rolled my ankle but the pain I was in was unbelievable, I was on crutches for a month, and I understand the feeling when you finally get what you need.
Long story short all your doctor's and parents will see you as a child, resilient and stubborn. You need to stand up for yourself and make sure they really understand what you're going through. And I know how hard it can be when you can't use your moms crutches or wheelchair at schooling y Hopefully if you stand up for yourself, you'll get a school note, and a 504 for school. I really hope you keep trying before you really honestly consider giving up. I have depression too, and I know how easy it is to think about that stuff, but you have to fight, it will get better eventually

Mar 01, 2018 10:44 PM

Never give up! Rest all you need, share all you can, love when you can. Never give up! ☺️

Mar 01, 2018 10:59 PM

Never give up. Easier said than done right? I have trigeminal neuralgia and last Saturday I really thought I wasn’t going to be able to continue because of the pain. I saw my pain doctor today and instead of putting on my brave face, I had written down what I can’t do because of the pain. It was short and simple for him to read. When I handed it to him, I broke down crying and turned away, I had never cried in front of a doctor before. Well he added a new procedure and told me that surgery is next thing to do, he also added a new medication. If your needs aren’t getting met, you need to let someone know. If that person doesn’t listen to you, you need to let someone else know. There is no reason for you to be suffering so much. If your mother’s crutches help you, you should have access to crutches. Your own crutches. I wish I knew more about your illness but all I can say is I’m thinking about you today and hoping the best for you, sending you healing thoughts and blessings. You are so young. I’m so sorry. I hope things get better soon.

Mar 01, 2018 11:11 PM

I totally agree. When I'm down somebody always tells me to keep fighting, to keep going. Sometimes that all I need, just to think that somebody values and believes in me.

Mar 02, 2018 4:43 AM

I have literally told everyone I went to the doctor a few days back and I told him everything and to be honest I don’t think he listened I’ve told my mum and dad but they both say we need to see what to doctor says I have told the physiotherapist and I don’t think she listens
My eczema is getting better but my hypermobility is always the same and is never better I have tried every single medicine ( according to the doctor ) that I can take for my age
I was on crutches when I was 10 for 3 months due to an extra bone in my heel which still causes me a lot of pain to this day even though they said I was have surgery to remove it but it had not happened yet

I have asked my mum to take me to the er but she said to wait until my next physio appointment and see what they say because I have already been to the hospital about 1000 times due to continueous spraines ,ligament tears ,muscle tears, over use of something, basically every injury you can think of apart from breaks

I do not like complaining because I know ppl have it a lot worse than me but I’m fed up and wish a miracle could happen

I feel like the only reason I haven’t given up is because my mum has EDS hypermobility syndrome and a lot more in which I can’t spell and she has not given up yet and she has had it since she was 18 and is now 31.

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