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Should I stay or should I go?

Aug 02, 2015 1:15 PM

This flare has me going back and forth over whether I should go to the ER or not. Basically I would go if I thought I would receive care, but it's such a gamble based on which doctor, nurse and even ER wing they place me in. So instead of going and getting triaged and rolling the dice, I've been curled up crying, trying to sleep as much as possible, losing my mind, waiting for this flare to end, or an end.

Aug 02, 2015 1:20 PM

If it is that bad go. If you have coverage call an ambulance. They should at least give you something to take the edge off so you can sleep. Hopefully you get the right combo and get proper care.

Aug 02, 2015 1:43 PM

Please seek out teating for lyme disease and the co infections babesia. Bartonella Ehlrichia Anaplasma And Mycoplasma. Flare ups and "fibro" are long mis diagnosed and untreated lyme disease. Also overloooked thyroid issues cause same "fibro" flares. Find me on fb. Lea wolven

Aug 02, 2015 1:44 PM

Igenex test google it

Aug 02, 2015 5:44 PM

I went to ER yesterday because the flare up was so bad I could barely move. Was quite unhappy with how I was treated by the nurse, drilling every information and looking at my history. Showing some judgement of how I do a lot of trips to the doctors. What's worse was the doctor whom I disliked and whom had sent me back many a times during a flare up.

I was in so much pain, I couldn't really be bothered explaining myself. The nurse literally thinks I'm some sort of addict. The doctor just approved an injection and sent me home. The injection was kolerac, it did nothing except made me dizzy.

I was screaming in agony and literally cried myself to sleep. Today woke up slightly better but still as agonising as ever. Another night to cry myself to sleep, if I do sleep at all that is. If I sleep I won't get a chance to see my GP, then it'll be another night of pain. *sigh

I do hope you have much better luck than me.

Aug 02, 2015 5:54 PM

I haven't had to go to the er yet, thankfully, but honestly if I was treated the way you all describe I'd throw such a fit that I'd probably end up in jail.

Aug 02, 2015 5:59 PM

Octobot this is why I haven't bothered to go. My boyfriend has been caring for me, getting me meds, ice packs, hot compresses, whatever feels best. I just can't stand the thought of going and waiting in the freezing ER forever for the off chance they might treat me this time, but most likely I'll just get a lecture and be told to contact my PCP tomorrow when her office opens.
What's frustrating is I know that someone at some point did write in my file that I'm a drug addict which I am not and have never been. I have had over 4 chronic pain conditions since the age of 14 that have often required emergency intervention for relief of outrageous pain situations, but I do not abuse my prescriptions or the ER.

Aug 02, 2015 6:07 PM

Wynn, i know where you are coming from. I only went to ER because my GP told me she will have a plan for me after I told her I experienced an overdose because I was desperate. Not sure what happened, but no plan was there when I arrived.

I know it might sound crazy, I know what works for me during my flare ups, but asking the doctor for it will only see me as a drug addict. I find valiums do help as they stop the spasms, and oxy contin 10 mg, yet again very low and safe dosage, but asking for it will put me in deep trouble and viewed differently by my GP. The risks are so not worth it if they think I have a problem, they will wean me off everything.

Aug 02, 2015 8:55 PM

Wynnbliss, I'm so sorry you are in such pain, both you and Octobot! It seems pain clinic docs are failing in providing small quantities of emergency pain relief. Have they ever offered you (or Octobot) a shot of Toradol? It's what they give me when I go to the ER for severe migraines. I hope your flare ups will begin improving very soon. I think this has been a rough summer on most of us. (((Hugs))) & prayers tomorrow will be the start to a better week! 🙏🌼

Aug 02, 2015 11:03 PM

Flappyslady, yes my PCP Dr. will often send a message to the injection clinic to give me toradol and phenegren as a rescue cocktail during the week when they're open. But she says they're even restricting her ability to do that even though neither are narcotics. Toradol is an antimflammitory and works really well for me, but unfortunately I have a procedure coming up preventing me from all antimflammitory use. The ER will sometimes give it to me if they decide to treat me it is usually the first option. If they decide chronic pain has no cure and therefore no purpose or place in their ER and yes I get that attitude and practically that phrasing a lot, then I go home after several hours waiting on blood work etc... with nothing.

Aug 03, 2015 12:28 PM

I am so sorry for you Wynnbliss and Octobot Having to suffer so. I only went to the ER one time when I was having a flare up and I swore I'd never do it again!! The questions, the judgemental looks, the insinuation that it's only in your head, you're drug seeking, etc.. They gave me a shot of Toradol after being there for almost 6 hours and all they did was a blood test, urine test and an x-ray!! So, now when I have a flare I tend to isolate, stay in my room, turn up the a/c, put a quilt on and keep to myself. I hope you get relief soon. I know how hard it is, I'm just coming out of a flare that lasted over a week and on top of that menopause is killing me!! (This morning I was oh so happy to wake up with a surprise!) NOT!!! Anyway, hugs to you all and I pray that your pain is eased and your days better. 💕🙏🏻🌻

Aug 03, 2015 12:34 PM

Wynnbliss, I didn't know Toradol was considered an antiinflammatory. They always said it was for pain. I usually have severe swelling in the neck and shoulder muscles when my migraines get out of control. I old you're having a less painful death today! 🙏🌼

Aug 03, 2015 3:50 PM

Good lord!! Being British I really don't understand the Anerican medical system so please correct me if I'm wrong. It seems that, out of office hours, you're only course of action is to attend ER? (We call that A&E here.)
I have never gone to ER for pain relief, thankfully, but like so many, go to bed and madly hope that I'll feel better after sleep. We also have out if hours GP's here, so we can contact them to write out prescriptions if necessary. That way, hospitals can, in theory, deal with actual accidents and emergencies. Severe pain caused by a chronic condition isn't considered an emergency.
That so many of you have had to follow that course of action and get branded as addicts or druggies is awful! Is there no way to have it striken from your records? Surely you have some say in your own records, access and such? I mean, you're paying for your medical care via insurance so that ought to give you leverage.
I do hope y'all feeling better today and pain levels are bearable. Seriously hope the medical system clears your records of such allegations too!

Aug 03, 2015 7:56 PM


The medical group I am covered by used to have an after hours clinic near me for issues that needed attending but not the ER. They took it out to save money. Now my options are to sleep it through if it's a weekend or go to the ER in the next town over. I actually have two to choose from and it's a gamble which one will be better. One was by my work and was a newer facility, but less staff for some reason so never enough rooms open. The other is closer to home and the opposite, never enough beds, people stacked in the halls, waiting rooms full, just a mess. Plus since they are so busy they are sloppy on doing things like pushing meds slowly. They just push them fast as they can.
I had a phone appointment with my GP this morning as I still hurt too much to walk much. We set up some referrals and prescriptions and I received confirmation from the neurologist that it was fine for me to stop the propranolol cold turkey since I was having so many side effects.
As for changing my records, I do not know if I have a say in that or not. I'm guessing that I do not. Which infuriates me and drives me up the wall. Actually feel inspired to research the topic of disputing one's records.

Aug 03, 2015 8:01 PM

I've just requested copies of my medical records for the last six years. They charge for it but I'll have them before the week is finished.
I'm not going to complain about the NHS anymore. Damn!! That's not a good system for the user. I really do feel for you people. To be so limited in choice and to have to rely on Whatever your medical group decides

Aug 03, 2015 8:05 PM

Damnit sorry posted when I was trying to correct something!

I guess I've just always assumed you had a good medical system in America because everyone pays, but I can see I was clearly wrong. 😧 I know I take our NHS for granted but I shall try to appreciate it a bit more!
Wish I could find a good answer to your plight. Just have to wish very hard that your pain levels improve and you can sleep. Which I ought to be doing. It's after 1am.

Aug 03, 2015 8:48 PM

Sweet dreams & no pain PJB, at least through the night. 🙏🌼

Aug 04, 2015 8:58 AM

It turned out it was after 2am when I typed that. Finally got to sleep sometime after 3am. So not the best night, but never mind. Hope everyone else had or is having a better night.

Aug 04, 2015 10:19 AM

Thanks for the kind words by flappy and others. I went to ER yet again yesterday, I was desperate yet again. Sigh...I'm from a small island so our regular GPs could be the doctor on call. Yet again after hours of information to the nurse, she left the room and came back 10 mins later and told me there was an emergency, no doctors are available and asked me to come back tomorrow!! I'm like wtf!!!!! Drove me bonkers...I didn't know what to say as she wasn't the one whom made the decision. I limped to my car and sat there almost in tears.

Today early morning went to see my GP, after 48 hours of no sleep, my GP talked to me about what to do for me and gave me some valiums for my spasms which I've been spamming for the past 4 years. Zzz. Lowest dosage was all I needed, I don't want more. I was given 5 tablets, asked to go back on Thursday yet again...zzzzzz... I've talked about the frequency of how many times I need to go to my GP just for meds....every week or every few days for meds review!!!!!

Never mind, I'm grateful my spasms stopped finally......I'm grateful I'm not flaring anymore and will definitely crash in bed soon after kissing my wife. :) I hope you have as much good fortune as I had Wynn and many others whom are flaring.

Aug 04, 2015 2:32 PM

Octobot I'm glad you were able to get relief. But it's awful and a disgrace at how the ER start treated you. Maybe you should write a letter to the hospital administrator, or better yet a "letter to the editor." That might wake them up! I don't understand why your GP makes you come weekly for meds. Your think he could at least do every two weeks. Maybe i don't want to change PCP after all, especially if other docs aren't writing scripts but on a weekly basis. I can call mine or call the pharmacy and they call the doc, and my rx are refilled, by my PCP & asthma/allergy docs anyway. My preach and pain docs i have to see but sometimes they give me 2-3 months of meds. I guess I'm blessed compared with y'all's docs. 🙏🌼

Aug 04, 2015 3:16 PM

I have no option to change docs. The other one which is the head of community affairs is so much worse. Running high fever along with flaring, she sent me home asking me to drink more water..not once but 3-4 times till I literally gave up.

My current GP, second in charge is slightly better, she tries to show some concern at least. I'm not sure about the law here but if I don't follow their orders, there will be no ,eds for me at all. I am not sure why I let them do this to me....it's so much time wasting waiting around 30-45 mins after I reach the hospital for my appointment. Maybe there are a few locals here that do abuse the system, I'm definitely not one of them. I run the busiest store here on my island and I can't afford to have my personal affairs in tatters by doing such things.

Aug 04, 2015 3:21 PM

Octobot, the old saying "one bad apple doesn't spoil the whole bunch" is inaccurate, as far as our med system is. I hate so many go through what you do. It's so unfair! 🙏🌼

Aug 04, 2015 3:30 PM

Empathy coming from you is very comforting. Very hard for nurses or receptionists to understand. After even opening up my file I get judged almost instantly. Like the other night going to ER, she opened my file and like wow, made a sarcastic comment how I liked to go and visit the doctors and commenting it may be in my head...I was just so in pain that I didn't even bother answering back. Speechless, mad, in pain, frustrated not getting proper treatment...I was almost going into a tantrum till my wife consoled me.

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