I keep thinking about what visible signs there are for me before a flare, and was wondering if other people have similar experience. When I move my limbs, my veins tend to move some usually but right before intense pain they will pop up half an inch or so. I also get a chest ache before a full body flare, then muscle spasms and tremors. After that, I can't keep track anymore. What are signs of a flare for you?
It's spasms on my lower back with a hint of tiredness that I feel before I get a flare up. But when it does come I can't do anything lol. My doctor don't believe in muscle relaxants. So I just sit and wait till it hits me hard basically. Lol not sure how u can avoid it but just how you deal with it.
Nope small community with limited doctors. Initially when I hurt my back, I've been given only days worth of valiums and a weeks worth of pain killers like panadene forte, no other opiods. So every week I would see the doctors twice. I've only been diagnosed with chronic pain after I went to pay for a MRI on my own. That was about 3 months later when I was on holiday.
Since then, the doctors here gave me nothing but constant panadene forte and sent me home. I feel that in this hospital, only one here, has labeled me an abuser. So basically for the last couple of years, I get nothing from our local GP, only a few good GPs would give me something more than opiods. I've been living like this for much too long and there's just the one doctor whom has settled here which has caused me the grief with new doctors even. This new recent doctor I had was really good, but she left after 5 weeks of service here.
I'm so sorry Octobot. My sister ran into similar lack of care when she lived in a very small town. She's moved to one a little bigger and its not much better, but she can drive in 3 directions close by to have quick good care. We lived in the country until 13+ the ago, and now I'm a small city girl. The benefits to chronically sick is worth the traffic. I don't ever want to go to a big city though. Is it possessible for you to drive somewhere else? I'll keep you in my prayers. 🙏🌼
I'm surrounded by sea, so no option to go anywhere else lol...planning to have a good talk to the doctors one day....will try to give them a piece of mind. I'm working with a pain specialist at the moment, awaiting to see whether they can diagnose me over Skype or something lol. They can fax my mess to my local pharmisit if needs be.
I'm no longer allowed to call ambulances in acute episodes (10/10 pain +muscle spasms) becauseat one point I had to call them every day/every other day and a paramedic/EMT decided I was "Addicted" to Entonox (Gas & Air) because I was sucking it in like anything during my actual spasms (they're intermittent, about every 60 secs and that's when the pain goes past even 10 so that's why I took lots of gas and air) even though during my 60 seconds between spasms I took it normally after a few seconds. The reason we called ambulances is because of the pain and as I cannot breathe properly in the acute episodes, Sometimes my breathing is so bad that I can't see etc. Because my SpO2 (oxygen in blood) is 80 when it should be above 95 (to not be dangerous) and 99-100 to be perfect
I've been trying to guess where you are... :) anyway... There are a couple of apps at least here in the US which are supposed to provide medical service. I'm not sure how advanced the service is--but I'm pretty sure the doctors involved are physicians. And I believe it's the kind of thing where you can build a relationship with someone. I don't think it's intended for spcialists, but I'll bet there are specialists--or at least helpful people.
And re oxygen--at one point, I had been wondering about oxygen treatment for migraines. I thought oxygen could be prescribed for people with specific medical problems. I'm not sure if you're talking about oxygen or something like ether (although that would make you pass out).
At one point I asked for ox then flappy. They said "It's an unnecessary fire risk" even though I have gone into shock several times from my episodes. They have also denied me any pain meds for acute episodes except up to 400mg of gabapentin (neurontin). This means they leave me in 10/10 pain for up to 6.5 hours.
I don't have any warning signs either. It gradually starts hurting and the like Alwayz it gets to a point when I have to take either my Hyrocodone / Acetaminophen 325 / 7.5 every 6 hrs.,or Oct rubs and roll on's.
I usually get a flash of chills and my joints stiffen and then the pain radiates from there. Sometimes if I'm lucky I can catch it in time by going to bed and bundling up. I notice if I get TOO cold or TOO tired combined with barometer changes it's game over
I get cold too but the flare up comes on quick and blindsides me. Walking 6 blks can take me up to 25 min. then I'm toast pretty much if I don't get the ice packs, some otc analgesic creme, and a Norco. That's with the Butrans 10 mg patch on.
Venus, when I first dealt with flares I had no idea what was happening. I would be fine, then sobbing and what I call "floating" because I'm never sure if I exist or am just looking at myself. Meds didn't help until I really massively experimented and got extremely desperate. I stopped listening to most doctors, a and started getting better. There might never be an affordable "cure" but usually something exists to make surviving a bit more bearable.
Sometimes I can tell when my neck and eyes start to be to sinsitive I know I have to go and sit up in bed to hopefully calm the rest of my nerves before I start getting sick. If I don't catch it then that's when the rest just flies sick in bed for two days and ya that is all for now