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Sjogrens I'm guessing...

Aug 03, 2015 6:14 PM

My bottom lip split last night while talking, due to lack of moisture. I can't get enough to drink to hydrate my body tissues, but I'm overloading my bladder from what water I am drinking... Over 110 ounces/day. Now all day today my fingers, hands, toes and feet are stiff & achy, and also cold. My neck and spine are too. It's in the high 90's today and my air is running at 77-78 degrees. We normally run it at 75-76, but I can't handle it. The later it gets the worse I feel. The news said our July was the hottest on record in 17 years! So why am I cold, stuff, achy & dehydrated, unless it's a sjogrens flare? Maybe the eye pain for the days was the prelude. 🙏🌼

Aug 03, 2015 7:19 PM

Flappsy, it sounds like you could be having a flare but also that you may have a bit of a bug. Have you checked your temperature to make sure you have no fever? When I run a low grade fever, I have to run the a/c a couple of degrees warmer because I too get the chills and it's painful. Also, are you eliminating the water you are drinking or retaining? It sounds like you're swollen with fluid. That happens to me from time to time as well. My fingers, hands and feet and ankles swell and I drink 3 liters a day. Sometimes I retain and then all of a sudden one day will come and I'm literally heading down to the bathroom every 1/2 hour to 45 minutes to pee. Definitely check your temperature and think about how many times you urinated today. That may be helpful to you. If all is well, I would say you are having a flare. Be well, my friend, I'll keep you in my prayers as always. 💕🙏🏻🌻

Aug 03, 2015 8:46 PM

AlwayZ, thanks! I have no fever but my norm is always below the average so I really don't know what fever is like, not since high school anyway. My hands and feet are cold, stiff and swollen, and my right calf is swollen as always. I'm irrigating every 30-60 minutes; forcing myself to hold it longer sometimes, which I know isn't good for IC but the OAB is ridiculous. My hands and feet hurt in every little bone & joint. I'm actually headed to bed early. My hubby said I look feverish (flushed). Goodnight & hope you & everyone has a good speedup! 🙏🌼

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