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Sleep, It's gone!! 😱 I don't think it is coming back😴😴💤💤💤

Jan 01, 2015 5:16 PM

So like all of you, I am in pain. I am in a lot of pain. I have a high pain tolerance. You may have heard my story so I will incorporate cliff notes for this conversation. I was in a bad accident, my foot was caught in a ladder as I was falling 20 ft., my foot snapped off. Every thing except a little skin and a vein. On the pin scale, that was a 9. I figured it could have been a 10 but I have always imagined I could feel more pain. When I fell I landed on my back. I could not sit for several months. They said there was nothing wrong. I thought the fact I could not sit on my butt was a strong sign. Then after that, different medical problems came on as I was confined to bed and home. That situation contributed to me gaining a lot of weight. Several years pass, they say that it is fibromyalgia. But my temperature raises at times, and my body feels like I have the influenza. I now have severe arthritis 8 places and the bones appear to be breaking down rapidly.

I always slept on my right side with my arm extended up and my head on top of my arm. But now I have a tore rotator cuff and the ball joint is bone on bone on bone. That pain to is a 7/10. So I changed sides. That was hard and uncomfortable. It still is. The pain in my back is still there from my accident but has changed. I am sorry to be graphic. But we are speaking medically. But a nerve from my spine is like going directly down into my testicle. So so far, I can lay on my right side. I can't lay on my on my back. I have obstructive sleep apnea. I also have central sleep apnea. So I can't sleep on my stomach with a mask on. So I am left with just my left side. Putting pressure on that one side all night. So because of pain. I usually go to bed about 1 or 2 A.M. I get about 4 hours and that is it for the bed. I will fall asleep in the chair for 15 minute here and there. The scariest thing and it is becoming regular. At least every other night. I am seriously terrified that I a m going to break my neck. I get out of bed because I can't take the pain from being in pain for being in bed. But now I will have to do something. Because of being so tired, I forget what I am supposed to be doing. I will stand and think and half and hour will pass or other times I am sleeping while standing up. I have fallen four times. I fall asleep standing up at least every night. I usually wake up because my knees start to buckle.

What I am looking for because I am imagining that sleep must be difficult for many of us with pain. So if you have found some type of ritual that helps you. Maybe a supplement. I have already tried melatonin. Just anything that has helped you increase your ability to sleep after developing the problem with pain. This would really mean a lot to me and may be helpful to others. Thanks in advance for whatever advice you give. I hope that you all were all feeling as best as it was possible for you to feel today.

Jan 01, 2015 5:24 PM

Hi
Read my answer in my story.I know this condition.It is difficult to sleep.I have one method and it helps sometime))

Jan 01, 2015 6:40 PM

You can try acupuncture/acupressure and try benzodiazepines. However the benzodiazepines are normally and i would recommend having them as a short term solution until you and your doctor finds something else. Benzodiazepines could aggravate your sleep apnea however so they may not do it. You could also try SSRI's or other anti - depressants. An alternative to benzodiazepines are Z Drugs (yes Z drugs) these work very similarly to benzodiazepines but can be used a bit longer. Breathing excercises, good sleep hygiene and meditation might also help, you can also try mindfulness. I've had sleep problems for years even before my pain toy can always contact me.

Kik & snapchat: reecebrowne1
WhatsApp: 07999256726

If you find anything please let me know

Jan 01, 2015 9:51 PM

Gabapentin helps me sleep. Without it I toss and turns and my nerves go crazy.

Jan 01, 2015 11:53 PM

I'm also on gabapentin and it has made a huge impact on my sleeping pattern, some nights are worse then other like tonight, in so much pain it's almost 2:00 am and I've been awake since 5:00 this morning...

Jan 02, 2015 1:27 AM

I am on low dose gabapentin 300 morning and noon 600 at night. You didn't mention what state you are in perhaps medical marijuana and some states it is legal.

Jan 02, 2015 1:31 AM

I am on Trazadone for sleep. It works about 60% of the time. However, if my pain level is high the pain keeps me tossing and turning unable to get comfortable.

Jan 02, 2015 7:54 AM

I was on Ambien for chronic insomnia, mainly due to pain. They thought some of the cognitive problems were due to it, and I'd been on it 6 years. Weaning off had terrible side effects. Due to the good response of nerve blocks I'm now on a higher dose of antidepressant and use melatonin if I still can't sleep. I still have bad nights, like waking at 1am last night from pain & burning. And honestly, I think my cognition has improved off the ambien.

Jan 02, 2015 5:33 PM

I find 600mg Gabapentin, 20mg Citalopram, plus 6mg Melatonin an hour before bed, gives me between 4 and 6 hours of fairly restful sleep.

Jan 03, 2015 10:21 AM

They won't give me anything except Fluoxetine or sertraline neither of which helps my mood. Sertraline makes me worse! I finally get a new psych and they won't change or even discuss my meds until I've been under their care a few months! Ice been in the system for nearly 6 years now

Jan 06, 2015 2:15 PM

I am in California, had you researched edible cannibis? The Indica strain can be equal to the effects of morphine and it promotes sleep.

Jan 06, 2015 11:56 PM

Hey, you should try getting organic cherries from somewhere if you can..my mom got a TON before cherry season was over and she has some in the freezer. She says they help tremendously for her arthritis (pain). She's 43 and has had arthritis since she was 30. Also, try blending different vegetables together and making shakes out of them, my friend's dad cured his cancer solely on veggie shake diet, no joke. Celery, carrots, kale, peppers (any color). Maybe it could help with your pain? Try it!

Jan 07, 2015 12:14 AM

My body is super sensitive to gabapentin and I can't use it for the initial reason it was prescribed ( for nerve pain) as it made me too sleepy during the day. I use it now for sleep. I still wake up throughout the night but with 100 mg I am able to go right back to sleep. I have tried not taking it as I know it's a super low dose but I notice it right away that when I wake up, I lay awake for a lot longer than a few minutes. Probably 200-300mg would give me even better quality sleep but then I would be even sleepier during the day and it would be harder to get up in the morning. I already have trouble getting out of bed :(

Jan 07, 2015 2:11 AM

Chaga mushroom tea has improved a general health. Easy to use and harvest yourself. Mindfulness meditation and guided meditation with breathing works wonders. YouTube Body Scan by Jon Kabat Zinn I also have my spouse play with my hair. Relaxation techniques are key and keeping stress very very low. Gabapentin works well for sleep but dosage increase is fast. It is also very difficult to wake up while under gabapentin and if you are prone to nightmares have someone to assist in waking you up. I have Valium to calm my mind and anxiety while I sleep.

Jan 07, 2015 9:46 PM

Thanks for the suggestions guys. I really appreciate it. I have done most of these things. I have already taken trazadone. I also already take Gabapentin 600 mg three times a day. I have been prescribed and have taken Ambien at times. I also take Xanax. But that just helps with my panic attacks but not with sleep. I do breathing exercises and it works with pain but it stops when it comes to sleep. It is really wierd to because I can make my body numb but I can't make myself sleepy.

My problem is partly that I am bipolar. I use to be treated for it. I use to be hyper and never slept. I would stay up for four or five days sometimes and I would blow all our money. But with being sick and in pain. All those symptoms are gone. Like I said the lack of sleep is more because of pain.

I am not trying to be crude, so please excuse me if this offends someone, but I wish something can be made that can make you feel the way you do after sex. Some pill would be cool. That would be the true muscle relaxer. It is just that the feeling you have makes you feel the most relaxed and tired as I have ever felt. And the pain keeps that from happening. But that feeling sure would help my sleep. My pain pills use to really relax me to so I can sleep but they don't work as well as they use to.

I hope I didn't offend anyone. I was just being honest.

Jan 07, 2015 11:01 PM

Have you tried taking magnesium supplements in the evenings? It is suppose to act as a muscle relaxer and I do think it gets my body a little relaxed and a little sleepy.

Jan 07, 2015 11:18 PM

I like magnesium in the evening too - there's a powder called Calm that I got at a health food store that I add to a glass of water at night. It makes it kind of tangy and bubbly (I like it?) but it helps me on sleepless, restless nights.

Jan 08, 2015 8:03 AM

I'll have to try the magnesium because sometimes my pain from leg cramps keeps me awake. My left calf has been cramping since my cortisone injection of the left knee.

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