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Sleep paralysis anyone?

Aug 15, 2016 6:20 AM

Hey, quite random thing to ask, but does anyone suffer from sleep paralysis?

I suffer with fibro cfs endo and anxiety and depression. I've exoerienced real life messed up dreams or nightmares you could say for years, which I think is a side effect of anti depressants. However I've suffered from sleep paralysis for many years before Meds, and I can say it's a scary thing to go through!

It seems to fluctuate having bouts of them most nights then none for months. I'd love to hear anyone's thoughts or experiences.

Aug 15, 2016 7:13 AM

Hi Holly...😚
Have u researched "Locked-in Syndrome" ...? I used to have a friendπŸͺ whom suffered from this πŸ€”i seem to remember. πŸ€—Is it anything like this? 🌹

Aug 15, 2016 9:37 AM

Yes Lulabel, it's actually common. Having suffered from hypnogic jerk and also having woken up unable to move it's a very strange feeling

Aug 15, 2016 6:59 PM

Hey, no I've never heard of locked in syndrome? I've been told it's your body's way of reacting to stress? But I still don't understand it as the feeling you get is incomparable and so alien like

Aug 15, 2016 7:05 PM

I've just looked up locked in syndrome and it's not that. Sleep paralysis is when your body goes into rem sleep. But you can't move talk just move your eyes and you may see or feel entities or figure types. It's really stressful thing to go through but in my experience it's just annoying now as it affects my sleep a lot which increases my symptoms of fibro and cfs. Just wondered if anyone else suffer's this that also has fibro or cfs

Aug 16, 2016 12:00 AM

Yes I've suffered from sleep paralysis off and on since I was a child. It doesn't happen very offense anymore but occasionally still does. I wake up gasping for air, unable to move, like someone is sitting on me strangling me. I have to use all my strength and will power to even turn my head. It's super scary!

Aug 16, 2016 12:04 AM

Gasping doesn't describe it. More like completely choking. I can't breath at all. I can only move my fingers and hands and will myself to turn myself over by pulling on the bed sheets and mattress. Like I said, super scary, and isn't even associated with a dream or nightmare, at least not that I ever remember.

Aug 16, 2016 4:09 AM

Have you experienced a spirit there whilst this is happening? I'm not crazy trust me ha, I am spiritual etc but I do feel there are ghost like things whilst this is going on, I get the sensation they are sitting on the bed, or pulling down the sheets, sitting on my chest. It's horrible because it feels so real, I can never bring myself to open my eyes. I've had breathing problems in the past to, to the point I think I'm going to die now Bec I can't breath!! That was years ago when it was at its worst. I've learnt that breathing deep and slow helps me get out of the paralysis and I wake up (fully) and its Asif nothing has happened. This condition will always blow my mind.

Aug 16, 2016 5:40 AM

I have the feeling of someone getting into bed next to me and touching my back. Other times someone us grabbing my feet and pulling me downwards. I wake up quite disturbed. It seems so real.

Aug 16, 2016 7:55 AM

I know I have the feeling that someone is on the bed and pulling the sheets down its really really s scary and you'll never understand unless you experience it. Mines been that bad I've felt 'something' breathing infront of my face, but I've been way to scared to open my eyes

Aug 22, 2016 12:41 AM

It generally happens in the early morning when my sleep is lighter. It got so bad at.one stage that I was scared to go to bed!

Aug 22, 2016 11:40 AM

I had to research both because I had no idea. I've never experienced sleep paralysis, but I have hypnocogic jerks in my legs or arms as I drift off. Last night it happened 3 times, starting me awake.

When I researched what locked in syndrome was my mouth fell open! In the 90's I was put to sleep for a procedure. When I came to in the recovery area I couldn't move any part of my body except my eyes. I heard everything going on but had no way to communicate. I heard the nurse call the doctor in a panic and then she gave me a med in my IV, and I started having uncontrollable jerks all in my arms, legs, & chest, almost like a seizure. She then inserted another med that stopped the jerking. I don't remember which need was given when but they told me to never use Versed or Stadol for surgeries, so it's at the top of my allergy list. Freaked me & the staff out!!! 😡

Aug 22, 2016 12:34 PM

I had sleep paralysis for like five years when I was little, then outgrew it. I only just recently had another episode and I'm not sure what triggered it. When I was younger I would see and feel monsters, and so far they haven't returned... it's scary and unpredictable, hang in there!

Aug 22, 2016 1:15 PM

Holly, that does indeed happen!!! I am what you would call in paranormal terms "a sensitive" I can tell when spirits are around and they know it and get in my space sometimes. It's rough when I go to a cemetery as I have to say to them, I know that you know I sense you but you cannot come into my personal space nor can you follow me away from here, this is your resting place. I am also an empath. I went to a psychic fair once with my paranormal group and was looking around at stuff they were selling and several people stopped and said to me, "do you know you're psychic, you're an empath and a sensitive". I only went to get a reading for fun and I ended up reading the psychic.. LOL!!!πŸ˜‚πŸ˜‚

Aug 22, 2016 3:27 PM

Alwayzinpain I've been told I'm an empath aswell!! I feel people's energy and my energy is really high to. I think they know I can sense thrn so they latch onto me, sounds crazy for people to read this if they don't or haven't experienced this. But it's super scary when it happens to me.

Aug 22, 2016 3:29 PM

Peep43 it Made me not want to go asleep because it got that bad then I got dependant with the light being on when I goto sleep then having the tv on then sleeping on my front an not my back!! As I thought certain things triggered it, I read if you lie on your front your more vulnerable for it to happen.

Aug 22, 2016 3:31 PM

Schwa it comes and goes with me it's so annoying but sometimes when I'm going to sleep I can sense it's going to happen so I have to wake myself up to prevent it. I always experience it more in old buildings, as I've lived in different apartments and houses and it seems to always happen more in the old builds than the new apartments

Aug 22, 2016 3:46 PM

Flappsy, that happens to me regularly.. I suffer from hypnocogic jerks for many years. I don't know why but it is aweful being startled awake by it because your heart starts racing and for me, I can feel my insides tremble. I wish there was a way to make it stop but I've gotten used to it I guess. I had that happen once with anesthesia and it was because of Versed. They cannot ever use that on me, it WAS definitely scary as hell.. It's the first thing I discuss when the anesthesiologist comes in to see me. I've had 30 procedures to date and it looks like there's more in the near future. Ugh.. I don't even want to think about it at the moment.. LOL!!! 😜😝 I hope your day is going well. Sending you lots of love, gentle {{{Hugs}}} and prayers that you're healing well my friend.πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 23, 2016 12:21 PM

HollyFibroCfsEndo, it was awful, and I hope it never happens again. Since I'm a back & side sleeper I guess I'm safe from the other too.

AlwayZ, I'm doing ok except the pain is increasing some. Today was a new patch day, but I'm taking my tramadol now too. You take it easy and rest with your shoulder & eye. There's time for surgery later, much later! πŸ™‚πŸ’•πŸ™πŸŒΈ

Aug 23, 2016 11:17 PM

Holly,! I and my son have the sleep symptoms you discribed. We both feel like someone is in the room. It is an evil feeling. I tried talking to the doctor about it and she wanted to admit me to a ward. I refused and changed docs. When I talked to my Great Grandmother who was half Cherokee, she said it is normal for one girl child in each family to experience it and one boy to. She said just accept it as normal and it will release the fear that it causes. She told me that with the amount of Ireland blood mixed with the native blood, both sides of the family, it is a gift. Once you accept it it gets easier and things will change. It won't go away but you move to the next level of understanding, that the way she put it. I have and things are interesting.

Aug 24, 2016 4:12 PM

Zetarlov that's really interesting! What's a Cherokee? So it's not mental it's spirits?

I can't believe the doctor wanted to admit you to a ward, I had a priest come to my old house before when it got really bad, he said to me that it's stress an a way of your body dealing with it....I was apprehensive to believe it, then another woman came an blessed thd house, she claimed she felt bad spirits there, she was a Christian. But its hard to know what it was, but it wasn't in my head, it's real it feels real there's too many things that make it real. I've had numerous experiences where I thought 'this is it' because it was so terrifying!! Ive started to accept it more but I would like t understand it more. I have started to think is it related to Astral projection, as my body is half asleep half awake, and is my spirit out of my body and this is why I can't move or speak and then when I think this I freak out and think does the spirits I encounter want to enter my body!! I sound whacky I know I promise I'm not haha, I've just read a lot and I have quite an open mind.

Aug 24, 2016 5:36 PM

HollyFibroCfsEndo, Cherokee is one American Indian nation in the USA.

Aug 24, 2016 5:52 PM

Zetarlov, that is amazing!!! I totally believe that and it's so cool that your Great Grandmother was half Cherokee. Native American Indian women were very wise and are today as well and are steeped in spiritual traditions. They have ways of dealing with entities and evil spirits that have worked for their tribes for hundreds of years. Thanks for sharing your story with us and I'm glad you changed doctors (the one you were dealing with was ignorant). I hope that it doesn't happen to you as often as it used to. It can be very unsettling.{{{Hugs}}}πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 24, 2016 6:18 PM

I had this the other night, my whole body was paralised, and i couldnt wake up. Super scary

Aug 24, 2016 8:55 PM

The secret is knowing you are all right. Just know it as a dream, nothing more than a dream even if you think its not. If you were to film yourself you would know you are moving, that the brain is tricking you.
Always, it still does and I find it interesting each time it happens, I feel touched. It's something I can't explain, but it has forewarned me to watch out for things that could happen to a loved one or stranger.

Aug 25, 2016 4:58 AM

Yes. All the time, wake up, cant move and see floating shapes and figures. Still shares the crap out of me. Feels like my muscles are going into spasm too.

Aug 25, 2016 7:48 AM

I have firbo and sleep paralysis, the night terrors are usually caused by fibro, and I totally understand the fear and panic that sets in when it happens, flapyslady81- that kind of thing is what makes me fear my future surgeries, I'm afraid I'll be one of those rare cases where I'll wake up during surgery and feel everything but can't move to stop it. People with sleep paralysis are more likely to have that happen.

Aug 25, 2016 8:13 AM

I used to get this. I have a strong myoclonic jerk too, so strong it wakes me slightly. I've had episodes of sleep paralysis and it's terrifying.

Aug 25, 2016 8:17 AM

Oh sweetheart it is a hard path we walk... and i have found the pain side of things change over the decades... understanding only comes with awareness and sharing of experiences... dont ever stop searching for answers and u will find ur way 🌹

Aug 26, 2016 11:51 AM

Had it last nightπŸ˜”mercifully for just a few seconds. I wrote about this here some months ago, it is maybe the most terrifying experience I have ever had and I always think I'm going to suffocate and die. So I was locked in during sleep and now I'm locked out of the Pain Companion App! I'm supposed to schedule an epidural for my neck but for some reason I'm afraid (after everything else?!) The constant pain from bone spurs locking my scapular muscles and impinging a nerve, plus the shoulder spurs, radiating pain down both sides of my arm and into my arthritic paw is enough already. The cortisone injections in my shoulder and hand did nothing so the dr said the major pain must be coming from my neck. I've been going to PT for a year now and can only endure (my wonderful physical therapist) passive, palliative relief--whatever she does to those rattled nerves. I can't strengthen any of the surrounding muscles, the pain is intolerable. I'm also undergoing a pretty intense treatment for severe depression and feeling kind of lonely. It just doesn't end...from the lupus to the colitis to the degenerating discs to the sleep disturbances to the tech problems! And my poor hair, my eyebrows--poof gone. My hand too shaky to draw them in...it is demoralizing. But I'm glad you are all still here and that even though I can't access it...there is now an iPhone Pain Companion!

Aug 26, 2016 4:38 PM

You have dogenerating joints too huh? Well just be warned I used to get those neck injections and last one I got is why I dont do it anymore, I had a grand mal siezure from the pain and stress.

Aug 26, 2016 5:06 PM

Marsemouse, I haven't seen you in forever!!! I am glad to see you back and so sorry to see what you're going through. I remember the thread you did on CMP about this issue. I, too, am supposed to have facet joint injections. They want me to come next Thursday.. I'll have to see, I need to gear up for it because I've had them before and I'm chicken!! Hope you can get back into CMP but you don't need to with the companion. Welcome back!!!{{{Hugs}}}πŸ’•πŸ™πŸ»πŸŒ»πŸ˜Š

Aug 26, 2016 5:23 PM

The neck injections hurt so bad

Aug 26, 2016 5:25 PM

They do indeed.. Fortunately they will be done under sedation. It'll be C5,6,7 and T1. It's the two days after that suck after the lidocaine wears off and then the steroid has to kick in.

Aug 26, 2016 5:32 PM

Scrossy-those are simple hallusinations, it happens because your brain is still trying to wake up, so you can basically see your dream figures or other figures floating above you, same with the old hag myth, you feel like your unable to breath, thats because you breathing is still acting like you're sleeping, causing hallusinations of something or someone sitting on your chest...as for why people see the same hag when this happens, that I can't explain. Just FYI I believe in the paranormal and I'm pagan so I'm not discounting that they are spirits but I also know a lot about sience and if there's an explination that make scnece then i go with it if it still can't be explained then I go for paranormal reasons.

Aug 26, 2016 5:33 PM

Alwaysinpain lucky! I didnt have shit they just stuck me! Which caused the grand mal, so much pain.

Aug 26, 2016 5:35 PM

Holy Shit MissRose!! I'm sorry that happened to you. That's a nightmare.

Aug 26, 2016 5:35 PM

Btw have any of you tried the website patientslikeme.com? It great to use in unison with this app, but its more detailed and it's just great for keeping records and seeing patterns in mood and pain levels etc. It's really great you all should check it out

Aug 27, 2016 3:17 PM

Thank you AlwayzπŸ˜€πŸ˜€πŸ’•! It's so nice to hear from youπŸ’πŸ’! Yes I've been hibernating in misery, not so good. (Oh my god just had a small earthquake here 😳...) I can't believe you're about to get the very same nerve block--please let us know how it goes. I'm so sorry it didn't go well for you Miss RoseπŸ˜–. I just feel so threadbare I don't want another procedure unless I feel pretty certain about it...if that's possible! Thanks again Alwayz it's nice to be rememberedπŸ’•. I think I may have gotten an alert from LMB from a long time ago that just showed up now that I can (supposedly) download Pain Companion. But it got me back here and that's a good thing. Ok breathe, small earthquake...

Aug 27, 2016 3:18 PM

Ok so yes on sedation for nerve block!

Aug 28, 2016 1:27 AM

There is no way I could do it without sedation Marsemouse!! It hurts too much. I'm really glad you're back in the community. We've had many Newbies and we have some folks here that are so uplifting and funny, I laugh every day. One day, someone even made me laugh so hard, I wet my pants (*you know who you are.. LOL!!!πŸ«πŸ˜‰) but along with all 'qqmmhbu

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