Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Smells and sounds and light and...

Nov 20, 2016 8:08 PM

So I have fibro and I was wondering if anyone experiences mood changes from stimuli? For example repetitious phrases makes me angry and smells (whether on food or perfume or deodorant) make me sick and Bright lights and excessive noise make me confused. I know sensory overload is a symptom of fibro but this seems different. Just wanted to know if anyone else feels similarly!

Nov 20, 2016 9:12 PM

Oh my gosh I accidentally think I press the report but I didn't mean to I tried to on do it if anything happens tell them that it was an accident so that neither of us gets in trouble I didn't realise that that would with the button was for

Nov 20, 2016 10:15 PM

Yes! I know that feeling if wanting to choke someone for continually saying the same thing. Lol last week we had a guest speaker at church who was trying out for the Youth Minister job. Every sentence either began or ended (or both) with the "word" uhh or ummm" I love reading but some authors repeat phrases over and over. I can't finish those books.

The fluorescent lights in most stores now Not only can trigger migraines but I get nauseated. Thank goodness for Amazon. (smile)

There is so much still not known about Fibro and related illnesses. :(

Nov 21, 2016 6:17 AM

Yes, fibromyalgia has made me smell sensitive, noise and unfortunately I'm unsure if that annoying repetitive phrases is because my son loves them and stims off. My son has multiple sensory issues as well.
I was relieved to discover about fibromyalgia causing the smell sensitivity ... It's a hard one for me. I don't like crowded noise venues now as well.

Nov 21, 2016 7:16 AM

I thought it was my allergies causing me to being sensitive to smells. Some I think it is because it sets off my asthma. I am sensitive to sounds as well. I don't like being in crowds and noisey.

Nov 24, 2016 6:07 AM

Sounds, lights, smells... crowds all make me hyper-sensitive even light touching such as a stroke of the arm can feel like ive just been punched... 😣
none of this is understood by my spouse so i am constantly jumping out my skin when hes near me... it drives me doolally. πŸ€—

Nov 24, 2016 11:05 AM

Smells, lights and repetitive sound can trigger a migraine and large crowds cause me issues as well..
Touch is another thing altogether. People hug me and for whatever reason pat my back and it almost brings me to my knees... sometimes light touch on my skin can feel like I'm being burned by a cattle prod.
I am a very physical person and love and live for cuddles but people have to be more careful.

Jan 07, 2017 9:57 PM

I get migraines from sound and they also cause me to have seizures I am only 12 but have had this since I was 7 I was looking to find friends my age to have a Similar condition

Jan 08, 2017 12:32 AM

Hello Jenna. Am so sorry you are dealing with this. We have people of all ages here. Horsewhisperer (i think I got the name right) is your age and just recently diagnosed.

Jan 08, 2017 3:27 AM

Clapping on TV. Ask a question and reply is question back or repeat me. Makes me angry. Problay losing job because I can't physically do it anymore. Very angry and depressed feel like I'm letting my children down. I hate Fibromyalgia! And all the other things going on. Just about no hair on my body anywhere, yep Alopecia on the long list to.

Jan 09, 2017 10:11 AM

Hey I relate to the hair loss. I get handfuls when I brush. I am taking that Swedish supplement for hair skin nails. Only been on it a month. I have hope. I have thyroid issues & high testosterone Dr thinks. But at 60 I've had my first period in five years. So off TO OBGYN this week.
I had most of my stomach removed leaving a sleeve for stomach in an effort to loss weight. Mild bariactric surgery. My hair started falling out then. Lost eyebrow leg & arm hair.

Jan 09, 2017 1:04 PM

I have fibro .. and smells give me a head ache too ... garlic is the worst , and when people over do it with the purfume , oh my ...
bright lights give me headache too ... can't sit In the room and watch tv with the light on . Or I end up with a headache ... apart from these things giving me a headache I don't get them yet a neurologist told me I suffer with migraines ! Cop out !
I can't multi task anymore , I used to be good at it ... but now I can only deal with one thing at once ... so I only do one thing at once ... I avoid smells and bright lights ... as for stress , well ,! That just makes me feel ill , sick , short of breath .. etc ... so I avoid stress, don't worry about things I can't change .... it's all about adjusting to it .. once you do fibro is so much easier to cope With .... rather than stress and get frustrated when I can't sleep .. I'll get up and stick a movie on .. when my shoulder , neck back plays up I rest it in between doing things . And use heat to help ease the pain .. have a really hot bath every evening as well .. that helps too .. I know fibro sucks .. but the sooner you except things and adjust to them .. the more bearable they become ... I wish you all a peaceful night x

Jan 09, 2017 2:52 PM

I can relate to excessive stimuli. My sense of smell at times is like a superpower it seems to seek out BO in particular. Also find crowded places difficult but cant describe exactly what I'm feeling, not quite anxious but hyper alert and feeling ill. Recently delayed in an airport and would have done almost anything to get a quiet space.

Jan 09, 2017 3:05 PM

I love this poster because it really does define what I (and so many others) live with.

Jan 09, 2017 3:21 PM

So, so true. For me it's the clanking & clanging of people in the kitchen. The rattle of silverware puts my teeth on edge.

Jan 09, 2017 3:26 PM

Hearing pots washed up in the sink also. Bright outdoor lights. Driving in a car a where there is rapid change of light & shadow due to houses & trees-- set me off with a migraine. Always have been extremely sense e to everything. Anyone remove labels from back of shirts & dresses.?

Jan 09, 2017 3:28 PM

I am most comfortable in 100% cotton clothing & sheets.

Jan 09, 2017 4:01 PM

Always Tamtoad. Was so glad when some companies did away with labels and just printed the care instructions on the inside of the shirts.

Jan 09, 2017 4:04 PM

Flourescent lights really set me off. Its why I hate shopping. By the time I am done the lights have triggered a migraine. I always carry Excedrin Migraine in my purse.

Driving at night bothers me too. But the cars that have those lights that look blue? Those will trigger migraines. Ugh!

Jan 13, 2017 4:12 PM

Mimikay, the young lady you're referring to is Horsesnuggler12. Just figured I'd helpπŸ˜³πŸ˜‰

Jan 13, 2017 10:50 PM

I have lupus and I struggle with noise barking dogs or licking dogs being a real struggle for me. Certain lighting and crowds are hard.
On a sort of funny note I have a dog who licks obsessively and has a loud bark.

Apr 23, 2017 11:05 AM

Lights sounds feel of clothing all irritate. I am a label remover as well. Lights sounds smells all can trigger migraine for me.

Apr 26, 2017 12:07 AM

Lights, sounds, and smells bother me really bad. I have also started getting sick ( nauseous, lightheaded, sweating profusely) when I am at a store like Walmart or Kroger. I don't know if it's the lighting or just sensory overload from trying to look at and focus on so much. I have to take my mother in law grocery shopping from time to time and the last few times I took her I got so sick I almost couldn't get the groceries into the car. I had to take a break in the middle of loading them and sit down because I was afraid I was going to fall down or pass out.

Apr 26, 2017 7:18 AM

They All other me too. Before I knew arhat these were symptoms of Fibro I thought I was losing my mind!

May 24, 2017 7:55 AM

Anyone know of a chronic pain group community or network for teens

Ready to start relieving your pain?

Join Community