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So depressed about my life of pain...

Mar 09, 2018 9:17 PM

I wish I could give some kind of positive feedback about fibro and chronic pain, but the last 6 years of my life have just gone from bad to worse. The last 6 months I’ve been nearly home bound other than church when I can, and the doctors appointments. I’m 42 yrs. old and I feel horrible all the time. My 88 yr old grandma gets around better than I do. It’s horrible...I have to call on my parents who are in their late 60’s to come and help me do basic housework or grocery shopping...I wish I knew of a way to cope or a support group or something that would help me look on the bright side more often. Don’t get me wrong, I do have a good day (7 instead of 9 or 10) once in a while but they are few and far between. I’m going to counseling but that really doesn’t seem to be helping. Im on depression and anxiety meds along with all of my pain meds (that barely take the edge off) and a sleeping pill, which is my only escape from the pain most days. I just don’t know what to do...:(

Mar 09, 2018 9:31 PM

😢. im at a lose for words. i do feel yur pain thow. i could say anything to help but that would only b temporary. im goin threw life lookin for the next sugar coated words or occurances. but that sugar gets ate up purdy fast. its a tough nuff life without chronic health issues aint it. it jus adds insult to injury. we have to find somethin deep inside ourselves. i dont know what that is yet but i keep believeing. its a every day every minute an second struggle. i wish i knew tha right words. jus keep searching an never give up. cirrcumstances dont change us our thinking does. cause god knows life is full of cirrcumstance an termoil. love to ya. 🤗💪

Mar 09, 2018 10:09 PM

Thanks for the kind words. I hope you aren’t in too much pain, although you probably are otherwise you wouldn’t be part of this group. Hope you have a good night, I just took my meds again and I’m off to bed.

Mar 10, 2018 11:48 PM

I don’t have what you have so I’ll inexperienced here....take this with whatever value you decide. Have you tried doing any kind of food intolerance tests? I have friends who have tried this and been able to avoid foods that affected their inflammation... reduced their pain quite a bit.

One thing that has helped my pain is meditation. I like Jon Kabat-Zinn’s Body Scan. It’s in Mindfulness Meditation album. It doesn’t cure my issues, but helps reduce some symptoms.

I have nerve pain and have found acupuncture to be helpful. You have to find a good acupuncturist though so may need to try a few out who have experience treating people with your disease.

It sounds horrible what you are going through. I hope you find some relief.

Mar 10, 2018 11:56 PM

Unfortunately part of being in chronic pain is depression. We all have those days where we have a great day and that makes us depressed because we remember who we use to be and long to be that person again. Then their are those days where everything hurts even your hair and we wish we could just go to sleep and never wake up. Find a psychiatrist that works with people in chronic pain and it will help. Sometimes just talking about what you can and cannot do will help greatly. Also there are many types of cognitive behavior therapy that helps alot and they can give you some places to start. I understand that this can be expensive but many cities have clinics that work with you on what you can afford. Best of luck.

Mar 10, 2018 11:59 PM

Btw, my husband has had a hard time adjusting to me being sick so much. He is NEVER sick. It has definitely cause some tough periods for me where he isn’t as supportive or I feel like he’s passive aggressive. For us, we’ve talked about it and talked through his attitudes and behaviors that help and don’t help. I see a therapist as needed. He’s willling to go if I ever feel like we need it (aka he isn’t responding to my feedback when he isn’t being kind.)

I’m sharing this because I want you to know that constant/chronic disease and illness can take a toll on relationships. It’s not an abusive relationship if you can speak how things affect you and when you don’t feel supported and the other person is willing to adjust VS control you or criticize.

Ok, all that said...if you want to look into his behavior more online or want to talk to someone, you can go to thehotline.org or call 1-800-799-7233.

Mar 13, 2018 1:27 AM

My post above about spouse support was meant to go in a different thread! Sorry for the confusion! :)

Mar 13, 2018 10:05 PM

My so-called life. It’s ok to have those feelings. We all do at times. It’s how we respond to those feelings that count. Do we strike out at others by saying for example; You make me feel_____!, or You don’t do _____! When we do that the other person immediately retaliates and becomes defensive and you’ve basically shut off all chances of communicating your feelings to them.

Mar 13, 2018 10:12 PM

Sorry hit post: it’s how we communicate our feelings to others that’s important. Switch the word you for I. I feel this way ( name how you feel) I’d like you to...it’s only human nature to turnoff if someone is blaming you. Yes, Disease has a way of causing stress on relationships but you can help lesson them if you learn how to address your feeling without engaging in warfare with your significant other.😘🦋

Mar 13, 2018 10:22 PM

Sorry just now realized this was for another post. The downfall of posting too many late at night! Sorry Christine hope you will get some type of help for your depression. Best wishes. 🤗

Mar 14, 2018 2:37 AM

I know how you feel especially the house bound I have been exactly the same as not only living with chronic pain but living with anxiety and depression is really hard. I haven't been able to get around because of pain I have been in a wheelchair now for 8 months and it came from no where. Dealing with one issue at a time is how I deal with things and if it's a bad day which is most I have do deal with the fact that I can't walk or take myself to the toilet I'm 30 and I'm relying on my parents or partner to put me on it. It really does get u down. The only way I am coping well most days is I have found coloring helps me take my mind off how useless I am and keeping a diary as well. Sorry go hear about ur tough time I'm not good at advice but I don't mind a chat

Mar 14, 2018 1:52 PM

painwarrior.. thats so true. its hard to remember not to use those statements when feelin down an misunderstood. but yu are very right. it makes tha person yur sayin that to feel not good nuff. an unsure how to make it good nuff. 😦😦😦.

Mar 15, 2018 1:01 PM

I hope you get some better days soon ☀ I don't suffer from depression but I thought I'd share my strategy when I'm feeling down. I had the same feelings about a year ago, I still have them but not as often. I found it helpful to end everyday with saying at least three things I'm grateful for. Sometimes it's things I've been able to do during the day, it can be something small like making the bed or eating. On days when I'm really feeling down and feel like I can't find anything to thank for I thank for the home I live in, the clean water and food I have access to. It has helped me out a lot in the past and made me see all the things I am still able to do! And now a year has past since I started doing this and I am a much happier person 😊☀️

Mar 22, 2018 6:04 AM

Some of this my sound stupid, but when it gets really bad for me. There have been points in time we're I have wanted to die, but I am not giving up first for my Wife, second for my cats and last my stupid computer game which I enjoy playing.
Don't get me wrong I don't want die, because life is way too short and the one other thing I try to remember even though I am in a lot of pain, there is someone worst than me and I feel for them too.

Mar 23, 2018 9:36 AM

My wife and kids keep me going. I think I'm doing better. I'm excercising more and mentally getting better. The depression seems to be decreasing but the pain continues daily. I haven't had suicidal thoughts for over three months. Counselling helps...

Mar 28, 2018 4:21 PM

Thank you for your encouragement and advice. I don’t want to commit suicide, but I do have days when I wish I could just go to sleep and not wake up. I’m in counseling and that’s helping some, but I think my meds need to be adjusted again.

Mar 28, 2018 5:22 PM

Do you use a tens unit for pain?

Mar 28, 2018 5:48 PM

Yes. Had it on most of the day yesterday. Works ok while it’s on but as soon as I take it off the pain comes right back.

Mar 28, 2018 7:04 PM

Yeah me too but at least I can walk around and get some stuff done with it on!

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