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So frustrated with this.

Mar 11, 2017 9:19 PM

As I mentioned in a pass post I'm struggling specifically with sleep and weight. My Dr has me on amnbein for the hardest times, 100mg of nortriptylin and I've started taking melitonin with the nortriptylin. The last two normally work well enough but when the weather changes or bad weather comes through its extra hard. And topit off if I've done anything new as far as activity it makes relaxing harder.
So my main concern now is the ambian I take four times out seven day week. De knows this ablnd seem to be OK.
I. Trying to make lifestyle chnges so that some of the
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Mar 12, 2017 1:59 PM

Ok, while i don't understand the last bit at all, i think i get the idea.
Again you are pushing to hard. Especially with the physical. It'll come when it comes, just do what you can at the time and if that's 2 minutes today that's OK, you did something and something is better than nothing. It will increase, slowly, so slow you might not notice you are improving. And there will be good days and bad days. Try not to get frustrated by the bad days.
As for sleep... i can't help there. But i more that the harder i try to sleep the longer im awake. Have you tried doing some deep breathing exercises while laying in bed? Sometimes that helps me fall asleep faster. Or just focusing on your breathing instead of letting your mind wonder? It might help to relax you a little.
I'm betting you think about your perceived lack of progress and it's making sleep and relaxation harder.

Mar 12, 2017 2:11 PM

Were you sleeping when writing this newfibrogirl?

Mar 12, 2017 2:20 PM

Gotobef, sorry bout the last part. I've been doing that a lot more lately. Not sure what the cause is..Animallover2 I was very tired when I posted this and had been attempting to go to sleep for several hours . Latley sleeping has been my only repreve even though it's not ever a restful sleep.

Mar 12, 2017 2:21 PM

Hi there, fibrogirl. Sometimes I think the doctors need to have a week in our shoes to understand! You can't lose weight until you can get good quality sleep. The body puts on weight when it is under stress and lack of sleep is a biggie.
Try taking melatonin before bed with two Tylenol Arthritis. I also have a heated mattress pad I keep on low to help relax the muscles. Take a warm epsom salt bath (2 cups in a bath tub) or take a shower with epsom scrub (I mix 1 cup Epsom salts with 1/4 cup coconut oil) before going to bed. I have a muscle relaxer (baclofen) that I take if all else fails.
I know how tempting it is to rush things but it will only make things worse. Just remember you are so brave to be facing this disease! Tell everyone and yourself that the weight will come off when the underlying disease is under control!

Mar 12, 2017 4:24 PM

Thanks Tricia I appreciate the advice. I do take melitonin with northrplyln bit I'll certainly try adding the tyneol arthritis. .I had really big hopes that once I got the tumors removed ( total of 15 tumors weighed in at 20lb) that everything would just fall into place.that surgery was four months ago. . I know I need find a way to relax and just let my body heal. It's just harder then I thought.

Mar 12, 2017 8:55 PM

I don't sleep much at all and I've just excepted this as part of my lot in life...Part of my illness. I don't worry or fret about it although I know I need to sleep I don't take drugs to make me sleep. I take enough drugs.

Mar 12, 2017 10:12 PM

Hey new fibro girl just a word of caution the tylenol arthritis has 650 mg of acetaminophen in each tablet, taking 2 would be the same taking 4 regular tylenol at one time. Not knowing what all of your medications are please review with a pharmacist or your your physician. I seem to be on the insomnia pain train too. I keep trying to jump off but nothing is working. Wishing you well.

Mar 13, 2017 5:31 AM

LMB, I with you on that one. I was and still are concerned about this. I did mention this to my Dr during my last appointment where I was telling him how my pain was not being controlled as well as I'd like. He doesn't want to switch me to anything stronger which at this point would be a nartoic level med. So he says tyneol arthritis tends to join with tramadol and help it out. I was concerned about possible liver issues but as of now it seems I'm stuck here.

Mar 13, 2017 6:36 AM

New, you mentioned that you have been taking Ambien for sleep, I have to give you a word of caution with that medication, my Aunt was on it and she would sleep eat and smoke, she almost burnt down our house because of it. Also had another friend on it who sleep drove and she had 3 major car accidents that totaled all 3 of those car's, so please be careful with that medication.

Also I am not 100% yet from my hysterectomy almost a year ago, you have to take time it may take a year or longer to fully heal as your surgery was a major surgery and more major then mine was, I'll be praying for you my friend. 😘🙏

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