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So many doctors appointment

Oct 24, 2018 2:50 AM

Hi everyone
I have not been diagnosed yet. I’m seeing my doctor about every other month for blood testing at the moment and at my last visit he asked me to start a pain diary, which I have done for a couple of weeks now.
I first noticed the pain in January, but considering that I had just started a new job with some heavy lifting I figured that I just had to get used to moving like that. But the pain just got worse day by day. It got to a point where I had day I couldn’t get out of bed in the morning. At the moment I can’t help thinking, why doesn’t my doctor just refer me to some kind of expert because this is excruciating. Not a day goes by without pain and some days I just want to scream and cry.
How long did you guys have to wait for a diagnosis? Right now I feel like it will take forever.

Oct 24, 2018 10:59 AM

Hi BelindaScarlett, sorry to hear about your pain. Unfortunately chronic pain is a waiting game. Waiting for tests, waiting for results, waiting for answers, waiting for medication to work, waiting for pain psychology or pain management to start helping.

Have they mentioned what could be the cause of your pain? What symptoms do you have other than pain?

I have been experiencing pain and other symptoms such as fatigue and brain fog for 3 year's. Finally I was diagnosed with fibromyalgia in March. It's taken a while because they have to rule everything else out. Since then the fibromyalgia has caused hypertension and bladder problems such as retention. I was rushed to hospital a few months ago where they diagnosed degenerative disc disease. Hence the pain in my back lol! I'm now on tramadol, gabapentin, paracetamol, naproxen, amlopidine and sertraline to deal with the various horribleness that comes with chronic pain.

Although all the above sounds scary and horrible once you get a grip/control of your pain things get easier. You roll with it really. Try The Pain Toolkit, I've been reading through it as part of my pain management course and found some help from it. I also use Epsom salts in a hot bath.Talk your Dr about seeing a specialist. I don't know how it works in Denmark but request a referral to a rheumatologist.

If you ever need any advice please do not hesitate to contact me.

Take care

Love Hayley x

Oct 25, 2018 3:09 AM

Thank you for the advice.
When the pain is really bad I feel fatigue and I have sometimes felt pain behind my eyes like when you have a really bad cold. And my ears hurt sometimes. I almost daily have a burning and stabbing sensation in my feet but other than that it just pain that can go from a tingling sensation to pressuring to pounding. It shifts a lot and the only thing that is constant is the fever like pain I have in my intire body at all times.
I don’t get any painkillers at the moment other than paracetamol which doesn’t help at all.
At my next appointment I will try talking to my doctor about a specialist and hope that he will refer me.

Oct 25, 2018 3:34 AM

It sounds like fibromyalgia to me, very similar pains to me. Keep pushing for a referral to a specialist. Have you discussed with your Dr about some pain relief? I'm shocked they haven't offered you something even a little bit stronger than paracetamol. I hope you get some help soon.

Take care x

Oct 26, 2018 2:04 AM

What blood tests are being done for what conditions? Sounds like you have an auto immune disease.

Oct 26, 2018 3:56 AM

I have tried to talk to him about pain relief but for now he won’t give me anything. The blood tests have been to check my vitamin levels, my metabolism, he checked for arthritis and some other things I can’t remember. I had low iron and d-vitamin when I had the first blood test done that has now stabilized but when I had the last blood test my B12 was low.

Oct 26, 2018 4:02 AM

Low b12 levels can cause aches and pains. Have you been commenced on any treatment for it? Xx

Oct 26, 2018 4:06 AM

But I haven’t had low b12 before the test a few weeks ago. The pains have been there for almost a year now.

Oct 26, 2018 4:08 AM

And I haven’t started any treatment because my doctor want to see it there has been any changes when I have the next blood test in December.

Oct 26, 2018 7:01 AM

I finally went to the Dr just this week. I walked away with no answers. I have been researching and I'm leaning toward fibro. Dr said maybe that but it usually shows with hand and foot pain first.I have had "truck" pain from my mid thigh through my whole trunk of my body to about my upper arms for around 2 years now. Stabbing pain if I hit any part that I described or if I have an itch it feels like a thousand knives are stabbing me. I have some pain in my hands but do have carple tunnel. So frustrating to not have any answer at allbesides a " good luck" given to you.

Oct 26, 2018 7:03 AM

Not truck pain but trunk pain. Darn fingers.

Oct 26, 2018 10:26 AM

That's not true that fibro starts with hand and feet. The definition of fibro is all over pain.

Oct 26, 2018 10:17 PM

Hands and feet is how Rheumatoid arthritis RA starts. I think you need more specific blood tests or get a referral to a rheumy and they will do the test required.

Oct 27, 2018 3:04 AM

I've never heard of fibromyalgia starting in your hands and feet. I have pain in my feet now but definitely not initially. I think you need a new Dr, one that understands and can empathise with chronic pain.

Oct 28, 2018 9:52 AM

Find a new doctor. Fibromyalgia does not start in the hands and feet. You may have an autoimmune issue going on. See a rheumatologist because they will run extensive blood work a general doctor won't, and they do better exams in my opinion. It was 3 years of symptoms before my fibro was diagnosed (dx). It was well over a decade of symptoms before my autoimmune issues, Sjogrens & hypothroidism were dx. My fibro was and still is all over muscle pain with many extremely tender knots from my neck to my knees and neuropathy in my arms legs hands and feet. My Sjogrens started with dry eyes and mouth then progressed to attacking multiple joints, and I get "burning mouth" pinpoints blisters and thrush when it flares up, always coinciding with a fibromyalgia flare. All of this was dx by specially doctors, not my PCP. Good luck finding a really good doctor. Hugs love and prayers! 🙂❤🙏🌼

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