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Aug 21, 2017 7:49 PM

Now that I have insurance and able to see all the specialists I need to see. I didn't realize not getting the healthcare I needed would have caused me even more damaged to myself.
-So far I have seen a Gastroenterologist and he is going to do endoscopic and a colonoscopy. Because of my acid reflux and family history of colon cancer.
-Gynecologist he going to check my hormones and do a procedure where he check my uterus
-Nephrologist she is waiting for me to see my Rhuematologist which is tomorrow because I have protein in my urine and I may have to have a biopsy on my kidneys to see if the lupus is affecting them.
-Dentist I had to get 5 teeth removed because of the damage that Sjรถgren's has taken on my mouth. Which I'm still in a lot of pain on one site, the hole is not closing up and it hurts still but the dental assistant said it was ok.
-Ophthalmologist he checked my eyes and I have to go back next week because plaquenil can cause eyes toxicity. So they need a baseline to monitor and make sure I don't have toxicity.
-Pain management she order an X-ray for my back and going to get my records from my Rhuematologist and she started me on nuerontin. My next visit she will start me on narcotic pain medication.
-Orthopedic doctor still waiting for appt.
-Urologist I don't have to see him for 6months unless I get a kidney stone but lately I'm always getting kidney stones.
-It took 3 years of fighting to get health insurance. When I first got sick, I just wanted Medicaid to see what was wrong and to go back to teaching. Well it's 3 years later and my health has gotten a lot worse. And in the state of North Carolina, I had to file for disability insurance order to file for Medicaid. I didn't qualify under adult with a child because even though my daughter is adopted she is not an immediate blood relative. So I'm looked at as a single adult. I can't believe how much damaged been done to my body with not having insurance. And how much monitoring has to been done due to lupus and Sjรถgren's syndrome. For example, my primary care doctor said one day your kidneys ok but the next they start failing because of lupus. I just want to get my health issues in order. And it's hard for me to not be able to go back to teaching. I have filed for disability and I should get approved this time because the same people that said I needed Medicaid are the same ones that say yes or no to disability. The only bad part is that I had to start the process all over again. Because my lawyer messed everything up the first time around to the point of me starting the process over. So I will only get back pay to August of this year. They said it will take up to 120 days to make a decision. But I'm just overwhelmed with emotions that I'm finally getting my health issues addressed. Thank you for all the prayers! And I'm praying for everyone of you. HUGS TO EVERYONE ๐Ÿ’œ๐Ÿ’œ๐Ÿ’œ

Aug 21, 2017 8:01 PM

No wonder your overwhelmed you've got so much going on and so many doctors appointments wich are already stressful, I'm sorry that your health has deteriorated because you haven't had the healthcare you deserve but I'm soooo glad your getting it now.
I hope all your tests go well and you don't have any flairs because of them.

I really hope everything with your disability process goes well I will be thinking of you ๐Ÿ’•๐Ÿคž๐Ÿผplease keep us updated.

If you ever want to chat about anything please message me ๐Ÿ˜Š๐Ÿ˜˜

Aug 22, 2017 8:23 AM

Wow. Such hoops we have to jump through just to get our health taken care of. I pray you can finally get good results. ๐Ÿ™

Aug 25, 2017 5:16 AM

@Painedlady. Sending extra prayers that your . ๐Ÿค—๐Ÿค— I pray everything works out for you. I am happy you are able to finally see doctors . Sorry to hear all of your health issues. And sorry you have to start over on applying for disability. ๐Ÿ˜ I didn't know you can get it for having kids ๐Ÿค”๐Ÿค” It is wrong that it matters if your daughter is blood or not. That's odd .

Praying for the Best for you
Stay strong ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—

Aug 25, 2017 7:54 AM

It is hard to keep up sometimes. Iโ€™m glad youโ€™re on your way to receiving treatment. Disability is a real pain. At least itโ€™s back in process. I also lost a career I loved and filed for disability. Itโ€™s been nine months now and no decision yet. Very frustrating. It is great youโ€™re moving forward. Be gentle with yourself. ๐Ÿค—

Aug 25, 2017 10:57 PM

@LAT Good Luck with your claim. Sending prayers your way. Please keep us updated. ๐Ÿค—๐Ÿค—๐Ÿค—๐Ÿค—

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