Now that I have insurance and able to see all the specialists I need to see. I didn't realize not getting the healthcare I needed would have caused me even more damaged to myself.
-So far I have seen a Gastroenterologist and he is going to do endoscopic and a colonoscopy. Because of my acid reflux and family history of colon cancer.
-Gynecologist he going to check my hormones and do a procedure where he check my uterus
-Nephrologist she is waiting for me to see my Rhuematologist which is tomorrow because I have protein in my urine and I may have to have a biopsy on my kidneys to see if the lupus is affecting them.
-Dentist I had to get 5 teeth removed because of the damage that Sjögren's has taken on my mouth. Which I'm still in a lot of pain on one site, the hole is not closing up and it hurts still but the dental assistant said it was ok.
-Ophthalmologist he checked my eyes and I have to go back next week because plaquenil can cause eyes toxicity. So they need a baseline to monitor and make sure I don't have toxicity.
-Pain management she order an X-ray for my back and going to get my records from my Rhuematologist and she started me on nuerontin. My next visit she will start me on narcotic pain medication.
-Orthopedic doctor still waiting for appt.
-Urologist I don't have to see him for 6months unless I get a kidney stone but lately I'm always getting kidney stones.
-It took 3 years of fighting to get health insurance. When I first got sick, I just wanted Medicaid to see what was wrong and to go back to teaching. Well it's 3 years later and my health has gotten a lot worse. And in the state of North Carolina, I had to file for disability insurance order to file for Medicaid. I didn't qualify under adult with a child because even though my daughter is adopted she is not an immediate blood relative. So I'm looked at as a single adult. I can't believe how much damaged been done to my body with not having insurance. And how much monitoring has to been done due to lupus and Sjögren's syndrome. For example, my primary care doctor said one day your kidneys ok but the next they start failing because of lupus. I just want to get my health issues in order. And it's hard for me to not be able to go back to teaching. I have filed for disability and I should get approved this time because the same people that said I needed Medicaid are the same ones that say yes or no to disability. The only bad part is that I had to start the process all over again. Because my lawyer messed everything up the first time around to the point of me starting the process over. So I will only get back pay to August of this year. They said it will take up to 120 days to make a decision. But I'm just overwhelmed with emotions that I'm finally getting my health issues addressed. Thank you for all the prayers! And I'm praying for everyone of you. HUGS TO EVERYONE 💜💜💜