Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

So Melancholy Today

Aug 22, 2016 7:26 PM

Had rheum appt this morning. Have been so emotional. He said dx fibro. He also said I should not even consider neurosurgery for spinal stenosis & spondylitis in that it would cause more problems for me than I already have. This means no help for severe sciatica or scoliosis.
It means in order to walk I I will need a mediCal aid such as cane Or walker.
It also means I am in for a boatload of pain as the DDD gets worse.
The 3rd thing was he feels my doctor needs to prescribe more aggressive meds for the kind of pain I have everyday. He says I am doing what I should be. Exercise, staying mobile, using heat and cold therapy inversion when I can stand it, mj tincture...
Yep, feeling sad.

Aug 23, 2016 1:07 PM

I'm so sorry your news wasn't what you wanted, or needed to hear! It's hard enough as it is. I've been battling sciatica and DDD/OA since 1995, and it's not easy. Every doc I've seen has basically told me I have to learn to live with it, suggesting the same things you are doing (except inversion), which I do exercise and move around. I've been using a cane & walker since last year, and I ride scooters in large stores. It took getting use to, but I'm over it now. I do whatever I need to for comfort. I've now got OA in knees, shoulders, and more recently my hips. I got a shot late June for my knees. Sending you big (((hugs))), and I'll keep you in my prayers! 🙂💕🙏🌸

Aug 23, 2016 1:40 PM

Oh silvrrry, i'm so sorry. I have recived those disappointment news. Right now you need to treat and pamper yourself!! Don't let the bad down feelings gaing power!! You'll see something good will come!!! Best wishes, big big hugs, i'll have you on my prayers 🙏🙅😙😙

Aug 23, 2016 2:24 PM

Oh thank you both so much. Every time I think about all of this stuff my eyes fill up. I guess I must grieve the loss yet again. You have made me feel understood. Thank you.

Aug 23, 2016 8:41 PM

We're holding your hands, grieving with you! 🙂💕🙏🌸

Ready to start relieving your pain?

Join Community