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so mush has happened this week

Nov 19, 2015 11:47 PM

Hi everyone, I don't really know where to startIm want to update you all on several post I put up last few weeks. First I'll start with the drvimg post. O was pit inmto a position were I had to drive. I did very well. I had so!e issues I was expecting but I gfot through it. I've actually drove twice this week . it did wipe me out and I paid for it the next day with stiffness and pain and fatigue but oh well..
The next is o went shopping to prepare for my baking days I planned to use the electronic wheelchair but the store was packed and no chairs were available. So I decided to just walk. I did it. I !ade it through I was covered in sweat and had a little dizy spell but it passed with little disruption. I had !y nephew with !e so he helped out. And as u cam figure I was done when I got back the next day on my..lol but I was very pleased before !h last surgery I could not have evn dome that. The pain and weakness would have embarrassed me. So I! Pleased that I can say i did it. Don't know if I'll do it again anytime!e son but I will keep working toward greater mobility.
Thirdly I ad a doctors appointment today I. Which !y sister drove me since I was torn up from the says mpast o just mentioned .. Plus I !ade lunch for everyone before !y appointment which was at 11 am so I was still pushing my luck. But saw the doctor and my anemia is hold its own. Numbers looking good so I did not have to get IV treatment today and I'm gonna get a three month extension to see if the numbers stay good. So I! Excited one less stick. My doctor addressed !y fatigue sweating and a few other symptoms and she says its just something I! Gonn have to endure for now. All three of !y doctors started me on new meds imn the same week. Plus pill therapy for the tumors. So logically ( now that she explained it) !h body is in shock adjusting to so !any many meds all at once and since my body has been ill for long its fighting. And she prescribed the one thing I hate... Ha..rest.. Lol she says to listen to my body and she it says ive had enough then I need to stop. ...😐 I don't know stop don't like stop..lol.. But I know its right I'll rest but I! Gonna do some things to help me get stronger. However I feel I've had a good week and a god Dr visit. Still dreading my next gyn appointment whn we are gomn talk about the next step to rid my body of these tumors. I fear its gonna be hysterectomy. I! Only 36 and have no children of !y own. But with the amount of tu!ors and the location of several of them habi g a child is iffy at best and if I got pregnant it would be very dangerous for me and the baby since several of them are attached to my blood sources. So yeah...
But anyway sorry I've seemx to ramble sorry this post is so long and if u made it to the end imthank you for hanfimg in witjh me. I've come to look forward to all the responses from everyone. You guys make this road Im on more bearable.

Nov 19, 2015 11:54 PM

New, I do completely understand where you are coming from, sadly enough on the last issue at least. I'm Beginning to dread those appointments as well. 35 years old, no children of my own either and too many gyn issues to shake a stick at. I figure if we can just lean on each other virtually, we will get through it. And I'm really going to lean hard tomorrow if you don't mind.

Nov 20, 2015 8:25 AM

Not at all Amanda.. Lean away... I'm hear for you... We will be OK..and who knows what is in store for us. I believe that GOD never takes anything away or closes a door without having something ten times better waiting... What time is your appointment tomorrow?

Nov 20, 2015 8:41 AM

Newfibrogirl, I am so happy to hear of all your accomplishments this week!! How absolutely wonderful. I'm excited for you. As far as the gyn appointment, I wish I had some words of wisdom or something I could say that would make it magically better. It breaks my heart to read your posts of despair over not having children. Know that when you are sad or having trouble getting through, you can sure lean on me and I'll be here when you need me.
Amanda, I know how hard it's been for you with all of your gym issues and it's hard I'm sure that you and Newfibrogirl share a lot of the same feelings about what's happening to you. Know that you are always welcome to lean on me as well.. I have 2 shoulders to cry in, 2 ears to listen, two arms to hug and comfort you and two eyes to cry with you (or for you). I hate when my peeps are dealing with something that is so hard. I was told at 35, after my thyroid was removed and I was forced into menopause that I wouldn't ever be able to have kids. Just know my heart is with you both and if there is anything I can do, please let me know. {{{Hugs}}} and prayers for you both.💕🙏🏻🌻

Nov 20, 2015 8:56 AM

Thank you alwayz.. Your awesome..

Nov 20, 2015 9:03 AM

Nah, not awesome, I just love my peeps and want everyone to be ok. Thanks for the wonderful words though, you made me feel good.💕🙏🏻🌻😊

Nov 23, 2015 9:40 AM

This is wonderful news, Newfibrogirl! It does take time learning to identify and heed the signals our body sends out, but it pays off in the end. I do then rest, do some more, rest some more, etc. You'll adjust just fine. It is hard to hear the pain of you younger ladies not being able to experience pregnancy. My daughter may be facing the same at 27. I suggested to my daughter in vitro fertilization, or a surrogate mom. She said she feels blessed with her boyfriend's kids.

To share another joy experienced by my stepmom, who never had children. Before she met my dad she'd lost 2 husband's and began working in a youth home. All the boys began to call her "mom" and she said God assured her she would be a mother to many (37 in all). Then when she married my dad, she gained 5 more. We love her and feel blessed. This can not replace pregnancy and motherhood, but it can bring joy.

I hope and pray that your docs will be able to help (all of you), and your fears will not come to fruition. Having the large tumor removed from my body in 2010, I understand how painful and how much damage can come from this. If (any of) you face more surgery, I pray God's hand will guide the doctor's. (((Hugs))) & prayers! 🙏🌼

Nov 23, 2015 10:51 AM

Flappsy, your words always bring light to my heart. You are indeed a wonderful and compassionate lady that I am proud to call a dear, dear friend. I am glad that you're back, my days were starting to become incomplete without you being here with us. Welcome home my Sister!! {{{Hugs}}}💕🙏🏻🌻😊

Nov 25, 2015 8:33 PM

I've missed everyone Always. You are very special to me too. I feel like I'm never going to get caught up reading. I'm really glad you were here the day the chump posted ugly negative stuff! I haven't seen his comments because they've been removed, but enough was said that I got the gist. Not do I want to see them. We do not needed negativity here. Thank you for speaking up & reporting him so quickly! 🙏🌼

Nov 26, 2015 8:45 AM

I had to protect my peeps, Flappsy.. No room for negativity of that sort here. We all have our own issues to deal with without being subjected to that stuff.🌻🙏🏻

Nov 26, 2015 9:37 AM

@Flappys and new, I was giving an option that I'm seriously considering at this point. It's called Nova Sure and it's designed to burn off the uterine lining. At 35, I'm ready to be done. I've had my cycle since I was 9, it's not getting any better. Just done with it.

Nov 26, 2015 10:15 AM

Amandaihad Nova sure in August, it has helped tremendously with my period and cramps. I have only had to wear pantyliner and light cramps if any at all.

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