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So tired & achy

Jun 28, 2015 8:49 PM

Today we celebrated my dad's 85th birthday, early. Most of the family came which really made his day! He's got Alzheimer's now, and we may never get another b'day all together or where he remembers us all. I am very upset at two siblings who didn't show, for no good reason, but they have to live with their consciences. We met at a restaurant so it was easier on us all. But the prep for three days, and 2 1/2 hours there, followed by shopping after (I need clothes that fit with my weight gain), my body is screaming at me! I'm sure tonight will be a rough one, but at least I have nowhere to go tomorrow. I don't know why I let my hubby talk me into shopping after the party...ugh!

While at the party my cousin noticed my tremors and said they look like Parkinson's to her. My sister agreed. All I know is, all the standing and moving around for photos was torture to my back & feet, and when i get real tired i tremble more, but today was both hands... It's been awhile since both trembled. I think I'll take a Tramadol & muscle relaxer tonight to help calm it all down.

I opted everyone has a good night's rest and a better Monday. Goodnight! πŸ™πŸŒΌ

Jun 28, 2015 9:02 PM

Flappsy, I hope that your Father had a Happy Happy 85th Birthday. I understand that you would be upset with your siblings for not coming. Especially when you are dealing with health issues that cause you excruciating pain and yet you were there to celebrate your Father. Your conscience is clear and that is all that matters. I hope that the combination of Tramadol and the muscle relaxer help you to get a good night's rest and that you have a better Monday. You are, as always. in my prayers. Sleep well and Good Night.

Jun 28, 2015 9:43 PM

Thank you AlwayZ. And the same to you! I'm getting sleepy but my body is still screaming. Especially my calves, shoulders, and neck... And hand. Deep slow breathing isn't helping. 😩

Jun 28, 2015 9:57 PM

I know what you mean... I am exhausted and I am sitting here on the app chatting with y'all because nothing I am doing is helping me to feel any better or to relax enough that I can try to sleep. My family is leaving on vacation at 5am and will be gone for the next 5 days so I will have the house to myself. Hopefully, I won't need anything as my neighbors always go along with them so I will be here with nobody but the dogs and my ferret... LOL!!! No worries, I'll have all of you to chat with and I am sure I will get through with no problems and probably be wishing they would stay away a few more days when it's time for them to come home... LOL

Jun 28, 2015 10:07 PM

Happy 85th to your dad!!!

"No" is your friend... Take care of you first!!! I know it sure is dang hard.

Jun 29, 2015 12:10 AM

Flappsy it sounds like y'all had a good time celebrating your Dad's Birthday, Happy 85th Birthday to him !!! Try and not let it worry you about your siblings not showing. They will regret it when they visit him and he doesn't reconize them it is their loss. You got up probably not feeling like going but you put your big girl panties on and went. You probably had a gr e at time spending time with him while he still is able to remember you, you have nothing to worry about,next year at this time you will be able to think back on how much you enjoyed being with him and what all y'all talked about. Yesterday my brother baby girl got married. I don't know what possesedme but I bought sandels with a 3 inch heel on them. After the first 30 min., of beeing there my back started hurting me, I was toting the baby around and she weighs nearly 9 lbs now so that didn't help, the wedding started at 4 pm and was still going strong at 6:30 when I had to leave my back was killing me, plus the baby was start I ng to get fussy. But when I got up I thought about not going because I didn't feel good but I did and I'M glad that I did. Even though I wore those crazy shoes, which I probably never wear them again. Lol !

Jun 29, 2015 6:17 AM

Thank you Weezie! I was so excited a storm couldn't have kept me away. I was feeling really good and started seated the first hour, but we had to go through two rooms to get to my dad for photos, because they had the U shaped tables too close to the wall to squeeze behind chairs. I was in 1" held... mistake!!! But it was worth it, if absolutely do it again!

My siblings selfishness kept me awake most of the night. It's just so hard to understand why. But every time they crossed my mind I tell myself to leave them to their consciences & God. He says do unto others as your have others do you. So I'm trying not to be angry, but it's on so hard! πŸ™πŸŒΌ

Jun 29, 2015 8:43 PM

After yesterday's party I thought I'd recover today. NOT! 😭. It's been way too busy a day today and I think I've overdone it. It hurts to sit, stand, walk or lie down. My heads about to explode. My mouth, nose, throat, & eyes are extremely dry from the sjogrens. My joints and muscles hurt all over. I'm about to take a muscle relaxer, Tramadol and migraines med, then go to bed. I wish everyone a peaceful night! πŸ™πŸŒΌ

Jun 29, 2015 9:54 PM

Flappsy I 'm sorry you are having so much pain tonight, I hope you can have a restful and as pain free as possible night. Will check in with you tomorrow. Will be b praying for you. Hugs.

Jun 29, 2015 10:28 PM

Flappsy, sending you gentle hugs and my prayers that you have a restful and peaceful night and wake tomorrow feeling better. Sweet Dreams my friend!! πŸ’•

Jun 30, 2015 12:21 PM

Thanks Weezie & AlwayZ! I slept fair but woke often to change positions or potty. Today is only slightly improve pain. Or it was until I had to fill out papers for doc appt today. I've got all over tremors again, and I have to drive 2 hr. My writing looks awful, scribbling and shaky for sure. Lol at least it's readable. My gait is of too today. And the tingling-numbness is back in legs, arms & face. I wish I could rest but I'm trying to get everything together for Mayo. It will be here before I know it. Got to go to appt now, pelvic floor issues flare up, with spasms front to back & side to side! Awful!!! πŸ™πŸŒΌ

Jun 30, 2015 4:25 PM

I am new to this community but have had fibromyalgia since 1990. Yes, before anyone took it seriously. I have been having a bad flare up and I usually don't have them last this long. I get so tired my friends and family think I'm lazy or something. This is more frustrating than my type1 diabetes... I'm sad. Today was the first day in two weeks I woke without pain. All I did was change the cat box, vacuum half our small house and BLAM!! The pain Is back..😒

Jun 30, 2015 4:41 PM

Flappsy I wish that there was something I could do to help you,I know it has to be sooo frustrating to have all of this happening to you. Hopefully you will soon have some answers to what you are living with.

Jun 30, 2015 5:00 PM

Oops I didn't mean to hit that button yet. I hope that when you get back home you can just get a glass of ice tea and kick back in a comfy chair and relax a little while, and try and take it easy the rest of the day then get to bed early tonight with some heated rice packs in strategic spots get under the cover and try to get some rest. I am so tired myself my Daughter and her fiancΓ© got to go look for jobs, they just got home no luck. But it is so hot that it's even hot in the house we have box fans trying to help the heat pump keep us cool. The baby has been so cranky I keep her in only her diaper, she loves it we call her a naked baby and she just smiles. But she hasn't let her Mamaw lay down and rest a little. Lol she is a pistol.I digress I have been having a lot of lower back pain then it goes into my hips down into my thighs then down leg to knee on the outside of my legs.

Jun 30, 2015 5:16 PM

Faye Bella I can commiserate with you. When I wake up with very little pain I too manage to over do it. You would think I would learn my lesson after the first time ,but oh no I repeat the cycle time after time. We just have to do the best we can and keep going forward. Hope you feel better soon. Welcome to our community. I was diagnosed with Syringomyelia, Syrinx, Fibromyagia, Osteoarthritis and several more health problems.

Jun 30, 2015 6:00 PM

Oh Flappsy, i'm so sorry to hear you're in do much pain... hang in there luv! Sending prayers your way.....

Jun 30, 2015 7:43 PM

Sorry you're having a bad pain day. I had a flare up last night because I used the last of the DMSO, but now there's more so I'm feeling better.

Jun 30, 2015 7:58 PM

Welcome to our community FayeBella. I really want to say welcome to our family! Everyone is so supportive and understanding, giving suggestions & hints of advice from their experience. Every one of us is blessed to find each other because until I found the app last year I felt so isolated and alone, and depressed.

Though I don't have diabetes I can understand your comment about it being easier to deal with than the fibromyalgia. I have so many chronic pain causing conditions from the 90's-2000s, like DDD, DJD, Arthritis, depression & anxiety, overactive bladder, female issues galore, TMJ, IBS & GERD, spine issues from neck to tailbone & migraines. But they're easier to deal with because they are constantly present, so I don't get false hope (if that makes sense).

I think the fibromyalgia started around 08-09, due to a mass causing huge inflammation in my body, but it wasn't diagnosed until 2012. Since December I've developed dementia (on top of fibro fog, MRI brain changes), imbalance & right side weakness, hypothyroidism, sjogrens, osteopenia, heart changes & angina, degenerating TM joints and jaw bones/gums, and more complications to my cervical spine & pelvic floor dysfunction & pelvic congestion syndrome, like bowel incontinence & urinary retention with interstitial cystitis.

Saying all that, what kicks me down the most are the fibromyalgia and sjogrens! They are unpredictable as to when they'll appear or how long they'll last, but you all know that. And of course when we feel the least bit improved we end up overdoing it just trying to keep things caught up. And you're right, all it takes for me is to vacuum or sweep or do all the laundry, then I'm back to hurting.... Tick tock tick tock. But enough of me.

When you hurt just rest. If others think you're lazy just look at them real sweetly and say, "well I certainly hope you never have to go through what I am. But if you do, I'll be more supportive of you because I'm experienced at it." Then turn and walk away! πŸ˜‰ I don't let what others say bother me, as to whether I'm lazy or don't look sick. What gets my glad is when they belittle people who do suffer! I hope you get to feeling better soon, that your flare will be short lived. I'll add you to my prayer list. I can't remember the link but there is a fibromyalgia organization on the web that has lots of info. πŸ™πŸŒΌ

Jun 30, 2015 8:10 PM

Thank you Weezie, I'm glad to hear your daughter's doing better in helping more. I pray they'll both get a job soon. I know that will be helpful! But as much as you love that baby, don't neglect your self. I use to get my granddaughter regardless of how I felt. But when I started getting worse each time she came I began limiting how long she comes each time. Now she's old enough to breathe herself, which was draining me, and she's helpful to me. She's also good at letting me nap when I needed to. Being nearly born, your granddaughter needs you110%.

Thank you both 2Leftfeet & Ferretbandit. I need the prayers. I think fibro is following on everyone due to weather mostly. I use to live winter & summer, but not anymore. If I was rich if be living on an island somewhere that the climate stays pretty stable. On well, so much for dreaming! Lol I pray you all have a peaceful night and an even better tomorrow! πŸ™πŸŒΌ

Jun 30, 2015 8:42 PM

Thank you too, esq777! I just have been really tired because I missed your message. You are so right about "no." I've learned to say it more often than I use to, especially to my family. I'm the youngest and I've always been a caretaker personality, and I never said no to anyone. But in order to care for myself I've had to in the past year. I'm hoping tomorrow will be a little better, for me, you & everyone. Have a blessed night! πŸ™πŸŒΌ

Jul 02, 2015 7:02 PM

I'm glad to say that, although my throat, noise, eyes & mouth is still over-dry, I think my flare of pain is gone. For how long I can't say, but I'm sure glad it was short lived this time. I do wonder if it had anything to do with my drinking fluids to rehydrate my body; Gatorade & Powerade. πŸ™πŸŒΌ

Jul 03, 2015 6:00 AM

FlappysLady, I found your flare up this morning. Will be in the bed most, if not all of today. Woke up in pain, went to bed in pain.

Jul 03, 2015 7:11 AM

Awww, Amanda, I'm sorry! I'm a little more achy this morning, but our humidity is bad. I'm inside the house and feel sticky! Rest and recuperate. ((Hugs)) πŸ™πŸŒΌ

Jul 03, 2015 7:14 AM

Thank you all for welcoming me so warmly. I was FayeBella but now due to technical difficulties I'm Sweetie pie. Here's to a day low on the pain scale for all. πŸ’–πŸ’–

Jul 03, 2015 11:03 AM

FlappysLady I believe it's a combination. At this point, the pelvic pain is actually making the lower back pain worse. Tried Tylenol this morning(worked about as well as a sugar pill). Going to try the prescription Advil later and see if that will calm it down a little bit.

Jul 03, 2015 11:29 AM

Sweetie hope you have a great day also. Flappsy I was reading an article about making my own type od gatoraide. It was saying that people who needed to stay hydrated needed to drink half water during the day and the other half the gator aide. I used my truvia sugar instead of confectioners sugar and sea salt with lemon juice it wasn't too bad. It takes 5 cups water and 1 1/2 tsp salt ,and 2 cups sugar. Mix well until sugar and salt dissolve. I could feel it soaking inside my throat and mouth as I drank it. I have just been drinking water and it hasn't been enough lol.

Jul 03, 2015 8:19 PM

I agree with Amanda. Tylenol=sugar pill. Same for the other OTC stuff. I have a TENS
Machine on right now. Hands down best purchase at a county fair. EVER. EVEN BETTER than deep fried Snickers. Lol! I'm still in Much pain but I went into work anyway. I'm sorry you guys are hurting.

Jul 03, 2015 8:43 PM

Weezie thanks for the recipe. I'm going to needed to buy trivia or stevia because all I have is real sugar.

Amanda, I'm sorry for your pain. Pelvic pain is awful, especially when you're having spasms while trying to walk! I hope you'll feel some better in a day or two at the most.

Sweetiepie, Tylenol Arthritis works better than regular Tylenol, but most of the time I have to take migraine meds or muscle relaxers. I've never had a deep fried snickers bar, but I sure enjoyed the Dairy Queen snickers blizzard on the way home from my dad's today! πŸ˜‹ Bless his heart, we have him a kindle last week for his birthday, and he couldn't get it to do anything. He didn't know how to connect to which, so it didn't pull in his games & books. He's 85 with Alzheimer's disease. My hubby and I enjoyed the day with him and my stepmom.

Everyone enjoy a relaxed and peaceful sleep! πŸ™πŸŒΌ

Jul 05, 2015 3:37 AM

Hope everyone had some sleep last night. I'm exhausted but had cuppa in in bed by kids cos taking them ro cinema later today. Will be agonising but I can't do much and don't feel like a mum recently. Give cuddle that's about it 😩

Jul 05, 2015 10:16 AM

Cuddles are important to kids. Having to alter how and what you do for our with them isn't as important to them as it is to parents. That you are present and let them know you love them, but maybe can't physically show it all the time...thats what truly matters! You need to get to a place where you can accept, regardless of how you have to alter to do things for them, the fact that you love them and they know it, that makes you a good mom. Knowing they are loved is worth more than all the things you can give them or do for them.

When my youngest was 2-4 I began having problems lifting her, and ended up with two neck surgeries within three years. I was limited to 15 lb lifting for life! I taught her to climb into the chair with me. At her nap time, with my oldest in school, I couldn't hold and rock her. I put a stool beside our bed so she could climb up, and then both of us would take a nap with soft relaxing music playing, her snuggled against me or her hand on my pillow & me rubbing her back. I use to feel so guilty because I couldn't be the same mom I was with the oldest child. It produced a more independent but compassionate child/adult in my youngest. The oldest grew up dependent on others to help her figure things out and make choices, she's also less compassionate and has more of a "what's in it for me" demeanor. When I saw my youngest maturing quicker in Independence I stopped berating myself. Both my children knew we couldn't afford all the stuff other kids had, but they felt loved. They both argue with their spouse about spoiling kids by buying everything they want. They treat the kids the way I & my hubby raised them, providing their needs and showing love by taking time to read a book or watch a show or ask how their day at school was, by showing them how to do chores that will teach them how to live on their own. Trust me, you are a dryer mom than you give yourself credit for! πŸ™πŸŒΌ

Jul 05, 2015 10:47 AM

Thanks Flappy.. just got back from cinema and I'm fried. Not pleasant time but kids loved it and invited one of their friends. Have to take little one to party in few mind after I quickly threw a card together (yhats what I've lost my identity as card and gift maker ) but have to say it wasn't bad. Using a pre made topper I did ages ago just had to think of layout. Ugh I ur all over but have to move to get friends kid as she's doing collection later. Catch u all soon x

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