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Something new this way cometh

May 04, 2016 9:33 PM

Hi all, something new is happening with my back pain. I am getting some kind of spasms that start in low back, then radiate outward & upward. Each spasm is a bad charge of pain. Have not had anything like this in my 17 year painology. I know the damage is bad & gets worse everyday, but this is new. Have you had this??

May 04, 2016 10:34 PM

Silvrrry, I have had spasms that start in my lumbar spine and radiate outward and sometimes even radiate down my thighs and also down the back of my legs. Have you had any recent scans done to see if there have been any changes in your condition? Did you fall, twist the wrong way or simply bend to pick something up and throw your back out? If the pain is radiating outward, is it near your kidney? Are you having any pain when you get the urge to urinate or while you're going? I would call the doctor and ask about getting updated pictures of your spine to see what's happening to be on the safe side. I hope that they are able to find the reason and are able to provide you with some kind of relief. Have you used heat, warm baths with Epsom salt or a TENS Unit? Perhaps these things will help you along with some gentle stretching. Sending you lots of love, gentle {{{Hugs}}} and prayers that you find resolution to this problem you're having.💕🙏🏻🌻😊

May 04, 2016 11:47 PM

Yes, Alwayzinpain, I have been trying out all kinds of management, tools. I am wondering if it is sciatica related. Since I have horrible bouts of sciatic pain and the channel keeps narrowing, maybe it kind of blinking on & off? I really don't know. And yes, I need to see my doc & check in with him. I have been dreading going there after my fight with the medication woman , afraid I will weep the whole time I am there. Thank you for responding, This evening fixing dinner was an exercise in pain. I was trying to get it finished, waited too long, saying oh God, oh God Just a little bit longer. I can't fool myself or God.....must learn to listen to the small voice deep inside me who knows.☀️

May 04, 2016 11:58 PM

Silvrrry, I understand why you don't want to go back. I'll be praying for you and just ask God to stand by your side. You'll make it through your appointment without weeping and know that you'll be having my hand to hold while you're there. I can tell you that with the narrowing of my spine the sciatica has been worse and he pains are as you described. Best of luck to you and remember, God will see you through this and so will we. {{Hugs}} 💕🙏🏻🌻😊

May 05, 2016 3:49 AM

I cry for days before I go to a new dr. I'm Crystal & I have CRPS. It's recently spread from my right humerus through to my hand & foot and knee, & left foot. I good friend of mine says to be your own advocate. I've had this for almost 16 years now. I have no idea how to be my own advocate, but am realizing that I have done nothing wrong in this. The medical community looks for drug seekers. That's not us! We have real pain. I hate taking drugs, but the road I was going down was leading to suicidal thoughts and planning. The medication person you talked to has no idea what it's like to live with constant pain. There's no way she could. No one can imagine this. Don't let them make you feel guilty about needing relief. Don't let them manipulate you. They go home and can actually rest. We can't. They can't comprehend what it would be like to never actually rest because of pain. Be bold! Educate yourself, so when you talk to them about your needs, you can use their words and try to teach them. Don't feel bad or guilty! If you cry, it's ok! It's part of this life! No apologies for crying! Hang in there and never quit!!

May 05, 2016 10:09 AM

Cricket.. Well said and it sure looks to me like you DO know exactly how to be your own advocate. I'm sorry that your RSD/CRPS has spread so vastly. I have had it for close to 20 years and it's no fun. It's spread pretty much all over my body but my legs and arms and down my spine are the worst. I send you best wishes, gentle {{{Hugs}}} and you'll be in my prayers.. Welcome to the community. 💕🙏🏻🌻😊

May 05, 2016 10:27 AM

Thanks you two! I am going to coach myself.

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