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Sorry for my absence!

Nov 28, 2016 4:44 PM

Hello everyone!
Sorry its been so long since posting!
I hope you are ok? I have missed you all ❤
Just wanted to share an update
I saw my rheumatologist last week after waiting all year. He diagnosed me with fibromyalgia.
I have weak leg muscles too.
Im going for a nerve conduct study next month.
My doctor is wanting to check for Multiple sclerosis even though my rheumatologist dosent seem to think i have it as my reflexes were good.
However after a period of 24 hours during a particular bad flare last week i now have tremors in my hands with bad nerve pain in both my arms. i had pins and needles in my legs and shoulder and ive been getting that crushing feeling where it feels like someone has been squeezing the life out of me.
My doctor refered me to a neurologist who is doing the nerve study and mri.
My rheumatologist also diagnosed me with burstitis in my left hip and wants a mri on my spine too. He wants me to try physiotherapy and anything water related like aqua aerobics.
Im just so lucky to have found an incredible caring doctor and rheumatoligst.

Nov 29, 2016 1:53 PM

Hello Laalaa ⚘⚘⚘ so good to see u hunni... 🤗 i wondered where u were sweetpea 😚

🤗I have MS... and i have often experienced 🤔something called "the MS HUG"... 😧it feels like i cannot breathe cos someone is squeezing the life from me...😳 its frightening... but manageable... 🐫 it comes in waves for me personaly... i take 5mg diazapam🤔 to help relax the intacostal muscles 😎between my ribs that go into continuous spasm. ⚘⚘⚘

Google says...🌷

"The MS hug is a symptom of multiple sclerosis where you feel as if you have a tight band around your chest or ribs or it can be pressure on just one side of your torso. Some people find that it is painful to breathe." 😚

🤗 Sending u much love 🌷and healing karma dear friend 😚... hope ur little man is well too angel 🤗

Nov 29, 2016 2:41 PM

I'm new here but I'm glad you're back. Sounds like you have some decent DR's .. and that they are thorough ... life is funny I never would have thought I'd be envious of a good Dr!!! But these days I am.
I have long term nerve damage with lower back pain and the best I got from my last Dr was signs and symptoms of fibromyalgia .. no rheumatologist for me!
Very curious about you leg muscle test .. please give the scoop on that one after.

Hoping they find some answers and solutions for you.

Nov 29, 2016 3:43 PM

Hi everyone. Sorry i haven't posted in a long time. Have been on stydy programe. I was able to do things i havent done in a long time. But it is over and back to the pain.

Nov 29, 2016 4:51 PM

Ive had that! Its usually on the right side of my body. Feels like someone squeezing it hard and i get tight chest pain and find it hard to breath.
My muscle spasms can last for an hour or more :( and now the hand tremors which doc says is an essential tremor.. they will probably give me a beta blocker for after i see my neurologist. Im totally freaking out that this could be what i have too but will just be happy with a diagnosis again!
The tremors happen when i am sitting or standing and stop when i lay down, i also get incredible burning sensations in my wrists and ankles!
My doctor has done all the right thing and i have been through 3-4 doctors just to get a fibromyalgia diagnosis! She refered me to a rheumatologist who diagnosed me then a neurologist because of my weak legs and hand tremors.
Its been a long road and i dont think some of the doctors i saw believed i was sick but believe me i definatly am :(
Ill let you guys know how the nerve study goes definatly.
Im freaking about the mri though
My little man is going well! He turned the big 3 last month! 😱 and just growing every day! I have missed everyone :) ❤

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