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Sorry I haven't posted but it's due to

Jun 27, 2015 10:21 PM

I've got pain I n arms hands and it's hard for me to do anything with hands I can't drive I can hardly hold a glass of water so once again I have to depend on help from friends and family that don't believe in rushing for anything so far ten mins to type this so I will get to have syst s removed in July on the Friday so I'm ok I'm not one who plays nice with others that try to help me when they don't understand so keep my in prayer thanks for your ears family

Jun 27, 2015 10:54 PM

Eddie, I am so sorry to hear that you are going through so much pain in your hands, etc... I don't understand why our families make it so difficult on us when we need to have some help. It's not like you're asking them to stay with you and do everything for you or that you are laying in bed watching tv and eating a sandwich while you are watching them all do your work around the house. I hope that this flare passes soon. I feel so badly because I know what that pain is like. Right now, I am dealing with my broken hand (it's broken in 3 places) and having the cast on it is making it very difficult to get things done and it even makes it hard to shower, etc... My fingers are so swollen that I can't move them very well and of course, everything is becoming extremely stiff. I went to pain management on Monday and I have to say that they have not changed my medications in approximately 8 years and I have not asked for any increases, etc... With all of the new rules of the DEA, doctors are afraid to give you meds because they are saying that there is no "proof" that higher doses of certain meds makes the pain better when all I have ever heard in the waiting room is that ithey take one extra pill when it's time, they feel alot better. I could care less either way at this point. My pain levels are between 8-8.5/10 and that's 24/7/365. It is debilitating. I really wish that they would come up with something that would help us all with our pain. It is 2015 and with all of the advances they have made in medicine, you would think they would be able to come up with something that could help us. I hope with all my heart that you feel better really soon, Eddie. In the meanwhile, you'll be in my prayers

Jun 27, 2015 11:27 PM

I did the stupid thing I punched a wall and it isn't broke but bruised up plus I'm waiting to have five syst that are growing in the hand I brused if it don't let up a trip to erugnt care in am so pissed at self plus wife is really ticked at hole in wall time for some rose and a nice day at spas should do the trick thank S. Allways

Jun 27, 2015 11:36 PM

Eddie, you and I must have been on the same wave length because that is exactly how I broke my hand. In a fit of anger and despair, I punched the wall. I cracked the wall and fractured my hand in 3 places. I'm in a cast and this coming Wednesday it will be 3 weeks and I still have another 2-3 weeks to have the damned thing on.. I am getting tired of it and I'm getting sore. The blessing is that I can take it off for my shower and then have to put it back on because the pain is too bad to leave it off for any length of time. I'm sorry your wife is pissed but she will get over it. I'm sure she will not hold onto the anger or be mad about the hole in the wall for a long time. Don't waste any time going to urgent care if the pain is really bad. You could very well have what is known as a "boxer's fracture" and they do take time to heal. You probably also did alot of soft tissue damage because your knuckles hitting the hard wall crush and tear the ligaments and tendons that run across your hand. Don't mess with it, get it checked out. You don't need to have something not heal properly and be yet another source of pain. Oh, I hope that you get those Cysts taken care of soon as well, I have had many different kinds of cysts removed and they are ALL painful and takes time to heal up after they are removed as well. Good luck with everything, Eddie.. I'll be thinking of you. Let me know if you need to chat.

Jun 28, 2015 12:39 AM

Alwayzinpain : I have to ask my mom but my parents just read something on some either non pain med or some sort of tiny device that doesn't have risks like a spinal cord stimulator, but apparently if you have chronic pain from a nerve disorder or any type of chronic illness like crohn's disease and any disease with inflammation it is actually making people pain free & if not 100% of the people are pain free it's about 100% of people getting enough relief they can function & take hardly any medication. The only problem is is that this is being done in Italy & not in the U.S. ( probably because the FDA wants to continue being drug dealers just handing out pain meds that don't work or mask the pain about 20% if that & doesn't fix the problem & the meds have terrible side effects as well as the body becoming so addicted within 2 weeks that now you can't live without it due to withdrawals & the possibility of dying from it.. I refuse to go up higher in my meds however my body has built such a tolerance that it doesn't always work so all they do is throw more drugs at you... I don't understand why people like this crap as a recreation.. Maybe it's because I am in constant pain but I just don't get it. And this is the biggest epidemic with this country. Everyone is o.d-ing on what the pharmaceutical companies give 10x's more then someone who is a drug addict. Like cocaine or heroin.. It's nuts!!! Whatever happened to the days where people would just smoke pot & drink? I mean myself growing up that's what we did. Not all this other stuff. I really can't wait for marijuana is legal as it has so many healing agents & you don't get addicted or suffer withdrawals or it doesn't effect your organs. It's been scientifically proven yet it's still federally illegal. NY will have it soon but it needs to be everywhere. As soon as it's available here my dr said I will get it & then I will get CBD oil.. I don't know if anyone has heard of it but it's a miricale oil. I know someone with fibromyalgia who doesn't go to pain management or anything like that cause she orders CBD & she puts it under her tongue & she doesn't get flare ups. A friend of mine told me about it & that a friend of his wife had stage 4 brain cancer & the dr's told him if she had 1 more seizure she would die. So he heard about the oil researched it & started giving it to her. She never suffered another seizure & her tumor shrank & is still alive & in remission. The dr's were stunned & couldn't figure out how she was cured. Her husband never told the dr's as its not really "legal" it's legal to buy as its the opposite cannabis plant as the one that has THC, however anyone in pain management or someone like me who refuses pain management & just gets my meds from my neurologist but still gets drug tested I would advise not trying it unless marijuana is legal in your state as the research is still unsure if there can be small traces of THC that can be found in a urine test.

Jun 28, 2015 12:52 AM

I had the spinal cord stimulator implanted and it broke, shorted out, came through my skin and had to be revised (replaced) five times. Since it was implanted in my cervical spine, that is an area that is extremely mobile so it was difficult to get settings that actually took away the pain. When I first got it implanted, I can tell you that it took away approximately 60% of my pain and I was thrilled. I had alot of trouble with mine and between having them implanted and removed and reimplanted, it caused a tremendous amount of additional pain and also the scarring that takes place when the "leads" scar into the spinal area. I have a non functioning system in my cervical spine as we speak and it is unable to be removed without paralyzing me because it is so scarred in and so there it sits. Even with the stimulator, I still needed to have medication for breakthrough pain but nothing like the amount of meds I am on now. Some folks have had success beyond imagination with their stimulators. If you don't want to go in that direction, they also have an implanted pump that flushes the spinal cord with micro doses of medication and you need to have to have it refilled each and every month and you still need to have medication for breakthrough pain because nothing works all by itself unfortunately. Do some research, speak to others in your doctor's office that have had it done and find out what their experience has been. Hope this has been helpful. I'm sorry it's not a positive post but I'm not going to lie to you and get your hopes up and then if it didn't work, I would feel horrible,

Jun 28, 2015 1:04 AM

No I always refused the scs because of the fear of exactly what you just said.. I have absolutely no desire to have anymore surgeries or anything implanted in me.. That's why I brought up the CBD oil & legalizing Marijuana.. I would rather deal how I have been dealing suffering & all then to do something that can do more harm then good or end up on even more meds then I am already on. I am sure the dr will try adding more medication to me since my new diagnosis however I really don't want anything else. The only thing I will consider is the hospital told me about certain calcium medications for inflammation that attack the tissues rather then calcium meant for bones... They keep trying to push me to switch to methadone however not sure about that maybe it's the stigma of it, I don't know, it just makes me think of a severe drug addict & that's something I am not nor want to be labeled..

Jun 28, 2015 1:12 AM

They just recently legalized medical marijuana in NY and it will be another year before the dispensaries are set up and the doctors get their permits, etc... The problem is, if my pain management doctor doesn't sign up to be able to prescribe it, I won't be able to get it because I signed a contract with the office that I will accept no pain medication of any kind from any other doctors or I would be dismissed from their practice. Therefore, If they never get on board with it, I'm totally out of luck. From what i have heard from other folks, they have pain levels like mine of over an 8 and it brings it down to a 3. I would be so thrilled, I'd probably go dancing... (which I always loved to do and can't any more because of the pain it causes me). I guess I just have to wait and see what happens.

Jun 28, 2015 1:22 AM

I know that by me in NY they are already starting to grow in factories & people are doing registrations for being a dispensary they said that the dr's will need to take a 4-6 hr course to be certified once your dr is certified then he can write a prescription for you & then I believe as early as September people will be able to go on the NYstate website & start the regerstration process. My neurologist is on board & he said as soon as he can he will start the process. It could be he strongly believes in this because even though he is a neurologist he is also a dr of palliative care & hospice.. That's why my surgeon suggested I see him instead of going back into pain management as I hated my dr. With my neurologist he also deals with CRPS & fibromyalgia so it's a 2 in 1 dr for me. I didn't have to sign a contract with him however I do randomly get drug tested.. I did sign a contract when I was in pain management however I felt ok enough last summer to try & come off my meds which I did until I ended up having surgery 2 months after getting off the meds & now my CRPS is so bad that I couldn't imagine coming off them for the summer again. I wish I could..

Jun 28, 2015 1:26 AM

WOW, I will have to do more research and see where they are here on Long Island. Perhaps it is the same here. I have to check with my pain management office if they are going to have anyone go to the registration classes to get certified to prescribe the medical marijuana. It's going to be hard because here in NY, they are only able to vape or use edibles... No smoking it. (I could care less as long as it helps and it makes my pain more bearable).

Jun 28, 2015 1:36 AM

My dr said I will have choice between vapor pen or pill form no smoking which totally fine by me. I have use of only 1 hand so smoking would be hard & I wouldn't want the smell or to cough as coughing causes pain. I am in the Hudson valley area originally from Long Island, they said Hudson valley will have the most dispenceries & growing factories then any other part of NY. They are actually starting one right down the rd from my dr's the just got the hook a head to start. I can tell you that when I went off my pain meds last summer for the days that were unbearable with no pain meds I used a vapor pen that I got from someone in New Jersey & it worked most of the time however I figured after my last surgery instead of being back on pain meds 24/7 I tried after the intial 5 days afterwards to just use the pen & it did not work ended up in the hospital as the pain meds didn't work or the pen. I think I am going to try the pill 1st

Jun 28, 2015 1:44 AM

I am just hoping I have the opportunity to try one or the other. It makes no difference to me whether or not I take a pill or use the vape pen. I just have to hope that my pain management doctors get their certification or I can't try either one. If I did and they found the drug in my urine tests, I would be dismissed from pain management and even though my meds only take the edge off so I can function, it's better than nothing at all. I just hope it all works out one way or another.

Jun 28, 2015 1:55 AM

I totally agree with you that's why as much as everyone keeps telling me about CBD oil I don't want to even take chance that there might be traces of THC in your drug tests. I don't want to risk losing something that does exactly what your does.. I am sure your dr will get certified as it's something that's legal & the 1st people to get it are chronic pain, epilepsy, lupus & cancer patients but severely chronic pain CRPS, fibromyalgia, neuropathy will get it they can't deny you if your dr's won't do it look into when the time is ready for another dr you can see near you that does do it.

Jun 28, 2015 8:33 PM

That's a good idea. I will keep my eyes and ears open and make sure I keep track of doctors that are treating pain patients and when the time comes go to one that is getting certified. If I can get my pain level down from an 8 to even a 4 or 5 that's better than nothing. It would be a vast improvement and allow me to do alot more things that I would like to do with my life.

Jun 28, 2015 9:13 PM

Eddieray, I'm sorry to hear about your hand. Do you know what type of cysts they are? I'll be praying for you. I hope the surgery goes well and that your bruising heals soon. And maybe I should ask God to point you and Always towards a softer surface the next time you need to destress! 😉 Lol. 🙏🌼

Jun 28, 2015 9:19 PM

LOL Flappsy.... Believe me, I have no intention of ever letting anyone or anything infuriate me that much again!!!! It is not worth being the one to suffer while the person who caused the whole thing goes off into the sunset without a care in the world. Walls are definitely NOT stress relievers... I should have stuck with the pillows... LOL!!!!

Jun 29, 2015 2:13 AM

@allways @ flappy I went to regent care today and long storie short I've got a cast on hand and half arm cracked bone pertty good so good thing I'm pain free for the time being oh but my brothers head looks good to he tried to deck me but I got him first and he didn't understand how come I didn't feel his punches We made up and are still brothers.

Jun 29, 2015 5:48 AM

Eddieray, I'm sorry your hand/arm is worse than you thought. I'm praying it will heal without long term pain effects, just as I am for AlwayZ. I'm glad you and your brother made up too. I'll bet he thinks twice before trying to hit you in the future! Did he see stars after you decided him? 🌌 lol. Get your rest and heal. 🙏🌼

Jun 29, 2015 8:51 AM

You can get drug rests on Amazon. They are cheaap, accurate and work perfect. Just look for CLIA WAIVED OR CLIA APPROVED.

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