Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Spinal cord stimulator issues

Feb 14, 2017 11:06 PM

Hi I'm new on here, I've written a couple replies but this is a first for asking a question.
I was wondering if anyone else has a stimulator? I've had mine for a little over 2 years and I've been having some issues with it that the tech or doctor can't really explain. I was hoping to find out if I'm the only one having these problems or if others do as well

Feb 15, 2017 6:33 AM

My second Mom had the stimulator and she had alot of issues with it either slipping or shorting out and they would have to do another surgery to replace it. It works well when it's working. What kind of issues are you having?

Feb 15, 2017 8:29 AM

Wow! I haven't had to have any extra surgeries, thank goodness. First of all when the weather is cold my back, where the paddle lead is attached to my spine, starts hurting really bad. Also when I go to bend over it feels like it's pulling on my spine. The battery placement is crazy. It's in the upper part of my right butt cheek, which of course causes problems when I sit down. It also hurts when it cold.

Feb 15, 2017 2:24 PM

Where is your stimulator implanted sweetie?? I had one in my cervical spine.. I had to have it revised 5 times due to breakage, shorting or migration of the leads.. I am getting ready to undergo a 8 hour surgery to remove all the scar tissue, calcifications, wires, etc.. then I have to go for the trial for another one. This one is going to be a dual lead going in both thoracic and cervical spine. Fingers crossed that the trial gives me relief this time and that it's not too late.๐Ÿ’•๐Ÿค—

Feb 15, 2017 10:20 PM

They can implant the battery in your abdomen if you ask them too. It is easier for the doctor to implant the device battery in your upper butt cheek. Same can be done with pacemakers they do not have to be placed in your upper chest. Some people do not have enough fat or extra skin to bury the device and it can erode through the skin. So if you are very thin please mention and ask your doctor. Yes, they can do this it is just more work for them to tunnel the wires but to bad do what is right for each patient.

Feb 15, 2017 11:51 PM

I have interstitial cystitis & I've had 2 interstems (nerve stimulator). I had the 1st one removed because it wouldn't stay in the pocket they made for it which I had 5 surgeries for that one. A year later we tried again after I gain some weight. I ended up falling on it a month later & I instantly knew something was wrong because it was randomly shocking me but I guess by this point my dr was over me & all my issues & kept telling me it was fine there wasnt any damage to the stimulator but I was still being shocked & couldnt turn it off so after a couple wks she discharged me as a patient after 7 yrs of treating me because I just wanted it taken out. Well no other dr would touch me cause they didnt put it in so I was just being shocked every day while the manufacture of the device tried to find me a dr to remove it which ended up taking 16 months. Omg what a relief it was after it was out! Then come to find out it wasn't fine it had 2 of the 4 leads had gotten damaged when I fell on it. So I ended up with a total of 8 surgeries for the intersteam. I now have horrible back pain from all the failed attempts to keep it in the pocket & scare tissue. So when a new dr suggested I get an intersteam put in I didnt know if I wanted to run or sock him in the mouth... Lol. I hope they r able to find & fix the problem for u. Its bad enough when u r dealing with whatever it is hurting u but then to deal with malfunctioning devices on top of it can b pretty overwhelming. My prayers r with u. Sorry for the long reply but that is kinda of a touchy subject for me I guess I need to vent a lil lol. Best wishes๐Ÿ’•

Feb 17, 2017 12:48 AM

LBM, thank you for the information my SCS tech had said something to that effect. But when I asked the doctor who changed out my leads ( he was not the one who originally put it in) if that could be done, he told me no he could not doing it. When I tried to get him to explain to me why, he would not talk to me about. So I until the battery dies I'm stuck with it there.

Feb 17, 2017 1:01 AM

Jamie 07, I'm so sorry for what you have been through. OMG!! I have no reason to complain. Thank you for sharing that with me. I got shot going on 6 years ago and the bullet took out a 3x3x3 inch section of my right calf. The stimulator was my last option we had tried everything else. It cuts the pain in half on a good day but even at that my pain level is high. My tech is trying her best to figure out what the problems could be and how we would go about solving them.
Any time you want or need to vent just pm me.

Feb 17, 2017 1:19 AM

If nobody can figure out whats going on with it u can always contact the manufacturer of the device they ended up being my only hope it took a while but it was well worth the wait. I hope u find relief soon!

Feb 18, 2017 10:40 PM

Thank you so much for the advice Jamie07, I really hadn't thought about calling them. I'll talk with my doctor and tech the beginning of next month, if they haven't come up with any answers I will definitely be making the call.

Ready to start relieving your pain?

Join Community