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Spinal stenosis pain

Aug 11, 2015 10:55 PM

Does anyone else have chronic pain from spinal stenosis. I've been seen by specialists, done spinal epidurals, steroids, chiropractic, neurosurgeons, orthopedics, and some said surgery not. Also pain management wanted to surgically implant a stimulus and I said no its to invasive for me. So I've tried a lot of medications and right now I'm on Gabapentin, and morphine and use a portable tens unit that I can use all the time.

Aug 12, 2015 9:01 AM

12sunflowers, I have spinal stenosis and lived with this pain over 20 years. I've had 28 surgeries to help me with that and other issues. I have an implanted device and when it was working, it was heaven. It brought my pain levels way down. Unfortunately mine was implanted at a very dangerous and unstable place (at my brain stem and C1. I had several revisions and can not have any more. It is so scarred in they can't remove it either without risk of being paralyzed. I take Morphine 100mg 3x/day and 30mg Oxycodone for breakthrough 4x/day. I also take 1mg of Arivan for anxiety 3x/day and Zoloft 200mg/day for depression. The whole thing is exhausting. The implant is not as invasive as you may think but it's not without discomfort, pain and healing time. It's all a personal choice as to what you can handle. I hope you find some answers. I've been eating clean and using fresh dark greens, basil, sage, ginger, turmeric, as well as Magnesium, vitamin D and calcium and B vitamins. I wish the very best to you and will keep you in my prayers. 💕🙏🏻🌻

Aug 12, 2015 9:45 AM

12Sunflowers, I have osteoarthritis and osteopenia, DDD, and bulging discs from my cervical area to the tailbone. My last myelogram showed minor stenosis in the neck & lumbar, but it wasn't impinging the nerves. Because I've already had 2 surgeries on my neck they will not do surgery unless it's a life and death issue, because it involves the c1-3 discs and they're afraid I could be paralyzed; more harm than good. The stenosis in my lumbar is in the facets, but again they don't want to do surgery.

I'm managing my pain through 2 rounds of ESIs (epidural injx) mild walking, stretching, & strengthening exercise to maintain mobility, voltaren gel, Tylenol Arthritis, and ice or heat when needed. I'm on hold for more injx because of undiagnosed tremors, balance and dizziness issues. I was recently diagnosed with Sjogrens, and oddly enough the Plaquenil has improved all of my body pain to a 3 most days, and rarely above an 8, until I either have a fibro flare or I do too much. I can't stand or walk more than 15-20 minutes, or drive more than 30, before I must sit down and rest. If I'm on my feet longer I pay for it with pain in my back, legs, and feet for 24-48 hours. It's taken adjusting my life, every action, to be able to function with ADL's. I listen to my body and rest when I feel I need it, rather than pushing myself too far. Ifi do go too far it takes days to get over!

I'm also taking muscle relaxers (spasms for 25+ yr), antidepressant and antianxiety, Tramadol, hypothyroid meds, 4 asthma & 2 allergy meds, iron, multivitamin, D3, MegaRed, magnesium (advised by many in this community to use & it has helped). Occasionally I have to use melatonin to help me sleep, or Ambien. I'm also on meds for Interstitial cystitis & IBS & pelvic floor dysfunction. It's a crazy med cycle that I must use an app for due to too many to keep up with. That and the dementia i was diagnosed with this year, on top of the fibro fog. Many of my doctors are beginning to say I'm too complicated with too many issues for them to feel comfortable in helping me. So I'm now under a Mayo clinic neurologist. I go back for more tests in September.

I agree with AlwayZ, that each of us must find our own method, by trials and error. Using suggestions from the community helps too. I don't think I'll ever get an implant because I've always thought they're too invasive, and then hearing of others experiences where they go bad. I do my best to stay upbeat and positive, but sometimes it's just overwhelming. I also try to see it all realistically, from watching my mom and grandmother before they died. They both had lots of pain, RA being one of them, but I'm convinced they possibly had fibro or other issues that weren't diagnosed because they hated doctors and avoided them at all cost. My mom died at 65 & her mom at 72. I'm 53 and for the past 6-8 years my health has been a constant downhill accelerated ride. If love the bus to stop anyday!

I hope and pray you can find out what you can do to alleviate as much pain as possible. Unfortunately most if not all of us have multiple issues that play off each other, so there's always some amount of pain. But we have each other in this community as support. I'll keep you in my prayers! 🙏🌼

Aug 12, 2015 12:21 PM

Thank you for the input on the Daily chronic pain that we all live with. I find at such a early age it took me awhile to accept it. I realized in the beginning how I was fighting it all the way and basically have done all that is possible except acupuncture, which kind of scares me. So trying meditation and therapy and coping skills has helped some. It's kind of a lonely place at times too for me being divorced and no friends. Being able to talk to other fellow suffer'so brings me hope for all of us. GOD Bless All.

Aug 12, 2015 1:24 PM

Sunflowers, relaxing music, and breathing techniques help loosen up right muscles, which can contribute to my pain, especially the neck triggered headaches. I've not done the acupuncture only because 1) insurance doesn't cover it & 2) I hate the needles used in EMGs. Listen to your bodies signals. Sit when you need to. Sleep when you needed it. Cry and let go of present up frustration. Come on here and share joy or frustration.

I've had to start using a walking cane for my imbalance. It's gotten so bad I also use a walker when my body needs it, and I never walk big stores anymore; I us the electric carts. I don't care if others look at me in judgement anymore, but I use to worry about it a lot. "Pride comes before the fall," they say. I'm not willing to risk a fall anymore, not when it could add more chronic pain. I nearly fell at the doctor yesterday, when my left Torres drafted and caught me off guard... Hence using my cane, at 53. I hope you have a blessed day! 🙏🌼

Aug 12, 2015 3:51 PM

Yes on my really bad days I've used my cane too. I have on occasion used the motorized carts in the store too when it was totally necessary. I try to walk as much as my body will allow me to get something done for the day like groceries or appointments. My major problem is it really hurts to sit. My buttock pain gets so bad that I have a special cushion from the pharmacy to use when driving,I also use it in church. Stretching gives some relief sometimes.

Aug 13, 2015 2:01 PM

I totally understand the pain when shifting. I sit on a coccyx pillow for comfort and relief. 🙏🌼

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