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Spondylilothesis/Fibromyalgia/RA

Apr 21, 2019 12:18 AM

Hi, everyone. I’m new at this so I’ll be brief. I was finally diagnosed with spondylilothesis after years of misdiagnosis. Between that and Mr Fib I have been a mess. Had a epidural tap last August. It worked and stopped all pain killers. Two months later one morning I couldn’t feel my legs and the pain in that tail bone was excruciating. But, I got through it. Called my doctor and they arranged for another epidural coming up this coming Monday. Yay! Hoping to have same good result. But, I had to enrolled in a Pain Management which I successfully completed. I’m in psychological and physical therapy. Now, when the pain reaches 8-9-10 I’m able to go through the pain by doing biofeedback, mindfulness, meditation and all that stuff. It helps as a distraction and so far I’m still here. The flare ups are the worst because I haven’t figured what really causes. Month ago a was taking steps of May 30-80 and today I totaled 2,596 ... Though I walk every day my chart shows one day is good then the next day is bad. So, I’m still pushing through. Since today was a fairly good day I’m posting. But like others on bad days I just hide.

Apr 21, 2019 3:19 AM

Hi Monina I have been New also just a few weeks now.You hat call me Shore . I hope that you have a Happy 😃Easter 🐇 tomorrow.
I have Siatica hip left pain bursitis andhurtssobe daysa lit when I walk also .i hope that you have good luck Monday. I have leg and calf pain .
I had an injection in my back bc, I have a rod in my back scoliosis.When I over dye my back and legs I feel them at night. I think the injection I swear off I’m not sure . I’ll chat with you if you want me to we can be pen pals if you want to?.
I haves wonderful Fiancé getting married September 6,2020. Well, that’s all for now sorry do libghug gently Shire🙏🙏🙏🌈🌈❤️❤️

Apr 21, 2019 7:44 AM

Welcome Monica to the community. I'm sorry you have chronic pain. I have fibro also plus OA everywhere including spine. We're here if you have any questions or if you want to vent.

Apr 21, 2019 10:17 AM

Welcome monina! I'm sorry to hear what you are going through. I have a long list of chronic pain issues, many spinal issues (OA DDD stenosis etc), so I understand. I went through 2 years of Epidural steroid injection (ESIs) all down my spine and had very good relief. But I can't get them anymore due to osteopenia. I have a Fitbit tracker and have noticed on days I walk over 4500-5000 steps I am in a lot more pain, spine, joint & fibromyalgia. But I push through because not moving makes my fibro and OA worse. A warm shower helps me limber up from that morning stiffness, as does gentle stretching. Pamper yourself on bad days! And do what you can on good days. Hopefully with time you will increase your ability to walk without as many flares. Just take it one day at a time, one step at a time. Hugs love and prayers today will be a good day for you! 🙂❤🙏🌼

Apr 25, 2019 12:58 AM

I appreciate all your kind words and sharing openly your troubles. When you suffer alone you never think that their others out there to share and encourage. I thank you for your kind kind words. The epidural is working slower this time but I’m doing better emotionally. All these years I never knew that pain could cause such depression. I just wanted to die. Suicide Never occurred to me, thank God. But, couldn’t see the purpose if going on with life. Thank you for your feedback. Hopefully, I can return the favor. God bless.

Apr 25, 2019 4:39 PM

I understand chronic pain making you think "it would be much easier to give up and due. This isn't life, this isn't living!". Been there. Hugs love and prayers, and I'm here if you want to chat.

May 01, 2019 6:29 PM

Monica, if your tailbone is giving you problems, please get a copy of your MRI and read them. Not just what a doctor writes, but the radiologist writes. If it lists Cysts then those spinal shots are commonly considered a danger. With the cysts that form on the spinal nerve roots, the shots cause the nerves to clump over time. That causes more trouble. Also if you freeze up from tailbone pain, which I do, you will need to have a physical therapist teach you how to crawl to the edge of your bed and drop to the floor. And to teach a partner how to move your body to free it up without causing too much pain.

May 05, 2019 6:48 PM

Thank you for your kind words and insights. I will check in with pain management regarding these epidural blocks. God bless

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