Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

Spondylolithesis

Sep 02, 2014 3:13 PM

when i was 15 i had a car accident, which resulted in me being diagnosed with spondylolithesis at the age of 17. I have been in crazy amounts of pain since, I had physio, osteo and several MRI scans. I've only ever been given cocodomol and naproxen to relieve my pain but so far none have worked. I have been attending special back classes for 2 months now which work on building my core strength- the next option is an injection which I'm unsure about, and then if i have no luck with that either, it will be the operation. I was wondering, is there anyone else out there who has or has had the same problem as me and could you give me some advice please? The pain is excruciating and some days if not most i just struggle to get out of bed or move around. it lead me into depression which was and still is a scary scary thing, I had to stop dancing at college as I was on a performing arts course which dragged my grades right down. I've had to stop what I loved to do, and I know others have it so much worse off than me but i just cant see a way out and dont want to be stuck in this much pain forever.. please help and let me know about your stories- thankyou in advance x x

Sep 02, 2014 8:03 PM

i am not familiar with tha consition, but have has several nerve block injections (if that is what they are offering) in the last two years, they are worth doing, sometimes they only give short relief, sometimes they last for months.

Sep 02, 2014 8:04 PM

*that *condition
wish there was an edit

Sep 03, 2014 7:37 PM

oh i see, yeah i cant remember exactly what injection they suggested. i do go back to hospital on the 12th so hoping to find some sort of relief then.. just can't see a way out of this pain i guess. thankyou, i hope you start to feel better soon :)

Sep 03, 2014 7:54 PM

Which disc was displaced?
I'm so sorry for your pain.
Hope you feel better.

Sep 04, 2014 8:51 AM

CherrieBabee, I couldn't help notice from your pain diagram that you seem to have a very severe problem and have so much pain on so much of your body. Sorry you are having to deal with so much pain. I find what I deal with draining and agonizing but you look like you have so much more to deal with.

Sep 05, 2014 7:21 AM

L5, thankyou for the lovely comments. i hope you all start to feel better soon. the pain alone is hard to deal with, never mind the emotions that come with it!:(

Sep 08, 2014 9:00 AM

hang in there... I have that and several other degenerative conditions. I'm on very strong meds and still live in pain at mostly a steady level of 8 or above. that is AFTER my meds have kicked in and "take the edge off". I have had trigger point injections, nerve blocks, I have had an euro stimulator implanted (5x because they broke), but that did help while it worked. I use a TENS Unit, can't work and also suffer migraines because every vertebrae in my neck has had a laminotomy to help not compress the nerves and now they are degenerated. Try the injections, try the stim and see what happens. I've been suffering with this for 18 years now and I'm almost 50. I understand also about the depression and anxiety, I suffer horribly with both and it is from the pain.. you didn't say if you're on an antidepressant or not but they help too... feel better, my prayers are with you.

Sep 09, 2014 11:01 AM

Thank you @CACampbell As most of us do, I live with severe pain on a daily basis. Pretty much, I don't what it is like to not have pain. I do take medications daily for what I endure. I have also been accused of abusing medications. CatchMyPain has been a blessing for me in many ways... because I am able to 'show' my doctors the pain in pictures and words as well as the medication I consume. Now, instead of their deaf ears I now am getting some sympathy. It's a long road. Perhaps what we are all feeling, and experiencing... can help pave it for others in such dire need.

Sep 10, 2014 8:41 PM

Just wanted you to know that you're not alone! I am 24 now, and my accident happened when I was 21. I am not going to lie to you and say it gets better, because it doesn't. I had two injections done, and they wanted to continue, but I said no. I had spine surgery a month and a half ago, with my L3, L4, L5 and S1 being fused due to a Grade 4 slip. I have to walk with a walker, and even before my surgery had to walk with crutches. I had my right hip replaced and will have my left hip done soon. What I've learned in three years is that you can't focus on what you used to do. I was a year round athlete...now I can't walk unassisted. You have to find what you can do. I have to change my career paths and everything. Hope this helps a little. If you want to talk, reach out, I'll he happy to try and help you.

Sep 13, 2014 10:00 AM

Because I am on narcotics and many other medications, I have to go through urine analysis every 3 months before the doctor will renew my medications. I have been on these meds for 6 years now and to have to go through this test all the time is insulting and humiliating. My doctor knows I am in pain but shes one of those doctors who is more worried about abuse of the drugs than my quality of life. The government here in Ontario is at war with opiate abuse and putting out anti opiate drug propaganda like crazy. Doctors are now required to monitor closely the opiate usage of their patients with having to ask insinuating questions like "are you selling your pills?", and you have to provide urine for analysis once a year but my doctor asks for it every 3 months. The pharmacy's staff all look at you like your a drug addict when you go in to pick up you meds. They can only dish out 28 days of opiates at a time and if you go in a day early to pick your next dose they freak out at you and stare at your like you might jump the counter and attack them. You cannot send someone to the pharmacy and pick up your narcotics as you have to sign for them every time, which is inconvenient and problematic for me when, at times I am suffering so badly. I am at the point where I don't care about what side effects there may be with narcotics or other meds as pain relief and making my days more comfortable is top priority. Since I have been on these drugs for 6 years now, my body is addicted to them, there is no doubt about that, but who cares? I don't, so long as they are working for me then give them to me and let me decide when and how much I should take. My pain does not follow a clock and varies so much in intensities with peaks hitting 9's and lasts for days sometimes. At those times the meds only lower the pain levels to high 7s and 8s but that little bit or relief is the difference between living another day or not.

Sep 13, 2014 10:38 AM

I do know your pain I live with similar pain every hour of every day some days less than others but irregardless it's a huge part of my life. Two years ago my primary found ago narcotic pain medication called opana er and I'm on the 40 mg ever 12 hours. This takes the edge off and allows me to function. I'm able to get around, drive I'm not pain free but I'm trying to live with it by taking my pain medication and tracking trigger actions and changing my lifestyle to avoid any other issues for future as much as possible good luck and be well

Sep 13, 2014 10:38 AM

thankyou so much for the comments, knowing I'm not alone in this does make me feel that little bit better. you are right, with conditions like this you cant focus on what you used to be able to do.. I'm sorry you are all in pain, i really am. and I hope one day we can all be pain free, if miracles do exist lol! x

Feb 01, 2015 6:52 AM

Hi there I have suffered with this for nearly 5 yes. I had several MRI' but finally got an xray which also showed a pars fracture. Since then Ihav had Cordal Epidural, Spinal Fusion, Nerve block injections & countless drugs. I currently take moderate release morphine, fentanyl patches, naproxen, co-codamol, pregablin & anti depressants. I use a tens machine occasionally but they don't seem to help. I had spent 2k on private care before seeing the same consultant at the local NHS hospital before one of his underlings sent me for the xray that discovered the problem.

Jan 22, 2016 5:05 PM

I have the same condition and am prescribed the exact same stuff and find they don't work either but I've always found that pain killers never really work that well on me! I was born with grade 3 because I was born without the bone with most people break to cause the condition! It's horrible and I totally feel you, and no one really understands how seriously painful it can go from in a matter of minutes and how it's not just lower back its all of it and makes my legs go achey (it's a point of achey-ness that it's on the verge of being numb)! I go to physio therapy and the lady is so nice and really understands the condition but it's not helped in the slightest! The doctors told me in the long run I'm likely to have to have an operation on it and I'm just so scared for what's to come! X

Jan 23, 2016 9:03 AM

Just a note... Someone is using my original account again which is KathyA1965. The posting here was actually written by me 2 years ago so someone is using my old account and reposting old posts. I have reported them to the administrator and I guess they have not yet taken care of the issue. Just wanted to give a heads up!! 💕🙏🏻🌻😊

Ready to start relieving your pain?

Join Community