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Spoon Theory- Please anybody respond

Nov 04, 2016 8:42 AM

I'm doing a project on Fibromyalgia/chronic fatigue/ any other fatigue/pain struggles.

I want to use the Spoon Theory. My question is 1) what are your thoughts on the spoon analogy? 2) what makes you "lose spoons"? 3) what makes you "gain spoons"?

Nov 04, 2016 8:50 AM

I think it's a good analogie but doesn't quite get it all. I prefer talking about my batterie. I have a limited time battery that is smaller then those of people whit out chronic pain.

Nov 04, 2016 9:11 AM

The spoon theory is a perfect way to describe the struggle you can have managing your life and setting priorities when there isn't enough energy to last. Or when certain things will cause you pain the next day. Sometimes you can use adrenaline to get things done when you are feeling a bit better, but then you need to decide how far is pushing too far, because you are always ALWAYS stealing spoons from another day. And it is difficult because sometimes tasks that seem easy can be just too much, when other things aren't and not everyone gets it. Having to deal with life this way, always counting spooms, can cause anxiety when younare running out but you can't stop. Because of the physical and mental stress. And the anxiety makes everything worse. I could go on and on, but really the spoon theory is a good way to sexcribe life for me. The number of spoons you start with each day, also depends on your psychological state as well.

Nov 04, 2016 10:02 AM

I have been trying to describe this to my Dr's for along time. I feel like it has all but crippled me.

Nov 04, 2016 10:04 AM

Thank you Asia.. I hate to say that someone else shares my experiences , but dealing with these types of life altering events for me is hard to Po it into words.

Nov 04, 2016 10:11 AM

Wayne41, it's never easy to put it into words. How do you explain something to someone when they don't experience it. I say to people, think of the worst injury you ever had, now think of how bad the pain was, multiply that 10 times over (at least) and have it EVERY day without respite... they get it then!! Sending well wishes and positive vibes your way. 💕😊

Nov 04, 2016 11:42 AM

I agree completely with how Asia described it ... Another factor in play is the brain fog ... Which is why "Thank you Asia for clearly explaining that so I don't have to lose a spoon trying .. owe you a spoon"

Nov 05, 2016 2:53 AM

I like the spoon theory. Although for my family I use the window analogy. IE the window is very small so act fast. And when it closes it's closed.

Nov 05, 2016 7:20 AM

I'm feeling very confused and a little stupid here as I don't know what the Spoon Theory is? The last few days I feel like I'm in a daze or foggy or walking at tth bbttom of tth ocean....hard to explain but nothing wants to sink in!!!
Could someone please explain it to me in a very basic and easy to understand way please?
Much appreciated xx

Nov 05, 2016 8:27 AM

Sezzy, if you search earlier threads there is a link posted to get you to the full explanation of the Spoon Theory. It's explained in detail and is easy to grasp. If you can't find it, I'll go look for it for you. 💕😊

Nov 05, 2016 8:28 AM

Thank you Alwayz I'll see if I can find it now xx

Nov 05, 2016 12:15 PM

Sexy, in short the spoon theory is a term chronic pain patients use to explain our available engery. For example you may wake up with five spoons but u take a shower they uses one. If you have to run an errand or make a call thsts one more. Yiu make lunch there goes two. So basically, most days we wake up with fewer spoons the. The day before.

Nov 05, 2016 1:30 PM

Thank you newfibrogirl, I was looking at previous posts earlier but I seemed to get more confused! Nothing new there I'm always confused and forgetful recently!!!!
That definitely sounds about right.....here are days I'm so wiped out that I'm bearley functioning where I've used soo many spoons from future days that my body can't physically do any more!

Nov 05, 2016 1:45 PM

Google it. The original thing is by Christine.. I don't remember her last name but it starts with an M. you can read it on her Web page and probably reading the original will help more than anything else.

Nov 06, 2016 11:38 AM

Gotobef I found the blog saying how she came about the spoon theory and she was describing my day by day struggles.
Thank you for pointing me in the right direction very much appreciated xx

Nov 06, 2016 11:51 AM

Your welcome sezzy

Nov 06, 2016 6:21 PM

I use the spoon theory to describe my physical state and my emotional one.
My physical spoons are fairly limited and the amount I have for the day is different. I may be so fatigued and in pain that I may only have 2 spoons. Those two spoons can go towards showering, grocery shopping, doctor appointments, hanging out with friends etc. I don't really gain physical spoons, even after I nap. Once I'm out of spoons theyre gone and I'm in bed or on the couch for the rest of the day.
My emotional spoons are very different. I can regain spoons simply by taking some time. Like if I have a very difficult discussion with someone and I'm out of spoons all I need is a little bit of time for my brain to process. It isn't often that my emotional spoons get in the way of my every day life.

Nov 07, 2016 1:05 AM

I think someone is stealing my spoons. I seem to have less and less energy and motivation as time goes by.

Nov 07, 2016 6:16 AM

I like spoon theory. I only use it with other Spoonies. Normally they get it. What causes me to lose sounds is a high pain day, going outside my normal day to day routine, not eating, emotional days drain me to. Keeping my spoons means planning what I can do and can't. Planning what can and can't wait.

Nov 07, 2016 6:20 AM

My spoons for the last few days have all been used trying to cope with my TN pain......it's been soo bad that nothing is working to ease it 😢

Nov 07, 2016 6:22 AM

Sezzy I know the drainage! TN is a full time job.

Nov 07, 2016 6:26 AM

It is and people keep trying to tell me that TN pain ISN'T constant that it comes and goes when I tell them that's not how it is for me the PAIN IS CONSTANT they just don't believe me!
Do you get the same response MrsInvisiBell?

Nov 07, 2016 8:36 AM

Sezzy I don't. I haven't has to defend my pain much. I have had a Dr try to tell me what the characteristics were once but I didn't pay him any attention. They haven't done their research. My pain is ever present. When it's not the meds are doing extremely well. Lol

Nov 07, 2016 8:43 AM

I was thrilled to learn about spoon theory.

Nov 07, 2016 8:44 AM

I've used it and this to educate my family and coworkers

Nov 07, 2016 9:28 AM

Shannon that explains most of my days.....where did you find it (the smaller writing isn't too clear) This would certainly help some of my family understand

Nov 07, 2016 10:12 AM

MrsInvisiBell you are lucky that you don't get it, with me it has been a couple of the older Dr's that have said that normally in response to me knowing more about TN than them!

Nov 07, 2016 3:37 PM

There's also a letter to normals that is a good way to help others understand.. As much as they can anyways.

Nov 07, 2016 7:44 PM

Pinterest, I think. I put the "Today" list in a clear plastic frame and used a dry erase marker on it daily and placed it in a common area so everyone could see what to expect from me. I also made this handmade chart and "spoons" with my younger boys when they were 6 and 8 to get them involved - they really got it. My youngest told me I could borrow some of his spoons when I ran out. 💕

Nov 07, 2016 9:04 PM

Thank you Shannon, I'll have a look on pintrest for that Today list. How cute of your youngest boy if only we could! XX

Nov 07, 2016 9:05 PM

Mimikay where can I find that letter? it sounds like it would help....as much as someone who is normal could!!!! xx

Nov 10, 2016 1:35 AM

Shannon thank you for the link that article does explain how I feel and get thro my days x

Nov 14, 2016 7:09 PM

I just love the spoon theory. Despite, I don't know anything in special that makes me gain spoons. But I always think twice before doing something, cause each attitude of mine will cost spoons throughout the day. That's what I do, thinking about the 2nd question. Saying in other words, my time is precious, and I need to value it by choosing important things to do. Otherwise I will spend all spoons on things I wouldn't need and would end up having no spoons for what really matters.

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