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Still Kidney Stone problems

Dec 06, 2016 1:21 AM

This 8mm kidney stone has got to go. Its causing me pain still and white and red blood cells in my urine. They did figure out that I'm not having recurring UTI'S but that the stone is causing inflammation in my kidney. I'm so tired of not being able to get surgeries I need and healthcare I need cause of no insurance. And I'm tired of seeing the ER every week or every other week. I'm so exhausted fighting for disability and health insurance.

Dec 07, 2016 2:28 AM

I had the same problem. I had kidney stones 3 times in two years. It was miserable. I had them blasted and still did not work. I ended up passing all of mine. My biggest was 6mm. I did not have insurance either. I had to pay out-of-pocket and file for community assistance to get the stones blasted. I'm sorry you are having to go through that. I know exactly how it feels.

Dec 08, 2016 5:42 AM

Oh the pain, the pain, and I mean pain strongly. I surely hope you get relief soon!! Is there any way for you to file your chronic pain as a "Somataform Disorder" classification for SSDisability and get on Medicare? If you have trauma or PTSD in your childhood you may be able to. It's a pain to apply, but you can file online now and I never had to go in to the office... and they gave me 15 months retroactive because I was unable to work for 2 years before I even knew I could file.

In April/May I went through 2 bilateral kidney surgeries to remove a build up of 14 stones, blocking both ureters, and making me so toxic they said I would have died in 24hrs. Sadly the surgery exploded my myofascial contracture nerve pain (controlled for nearly a decade) back throughout my body due to lack of continuity of pain mgt in recovery room 10hour with no protocol, however, the surgery saved me from a life on dialysis, a life of peebags strapped to my thighs, and medicare covered all but $750 of the $20,000. ($5k per kidner per surgery.)

Dec 09, 2016 9:59 PM

Thank you I will have to look into that cause this pain is not working for me at all.

Dec 09, 2016 11:22 PM

I'm SOOO sorry!!!! I seriously hate kidney stones. I passed a 9mm, which made me famous with the urologist and nurses as the lady with the 'very flexible uriters'. I seriously would have preferred anonymity. I had to have surgery to have a 13mm stone removed. It lodged at the mouth of my uriter, blocked it, and caused my kidney to become distended. By the time I got the surgery I was ready to die. Literally. WAY worse than natural child birth. And I didn't even get a baby after all those hours of pain! Just a stupid little piece of homemade gravel. Totally not worth it.

Dec 10, 2016 12:38 AM

Omg, FatiguedFighter that's horrifying and hilarious!

Dec 10, 2016 8:16 AM

Holy crap fatiguedfighter.. did you at least get to take that sucker home in a jar?!?!🙄😳😉

Dec 10, 2016 10:05 AM

Here's my all time favorite kidney stone story. It won't seem like a stone story at first, but trust me. It's worth the read.

A few years back I had to have surgery to correct a problem with how the fourth and fifth toes on both feet were growing. The bones were twisting and curling my toes so I ended up stepping on my own toes when I walked. It's a routine surgery and should have been no big deal. Except we didn't know that I am allergic to titanium and the doc had put titanium pins into the fourth toe on both feet. After weeks and weeks of my toes not healing and finally one of them breaking itself as my body was rejecting the pin (aren't bodies incredible?!) the doc tested me and discovered the allergy. So they scheduled me for another surgery to have the pins removed.

The night before surgery I was in the ER with a kidney stone. A bad one. My urine sample looked like a blood sample. The CT showed it to be a 6mm spiked little bundle of evil. We asked the ER Doc about the surgery. He said I was going to be doped up on pain meds anyway, so I might as well just go for it.

The morning of surgery we got a call from the surgeon's nurse. He said I could only have the surgery if I had already passed the stone. They moved me to the last spot of the day and said I could take my pain meds, but no eating. I was planning to lie and say I had passed the stone until the nurse said, "You'll have to bring the stone with you or he won't perform the surgery." Well dang. I took my pills and fell asleep.

This is where it gets good. While I slept, my husband got busy. He researched stones and discovered some varieties are basically limestone. So he got a small piece of some limestone tile we had left over from a recent project and started shaping it with his pocket knife. He used the photos they gave us at the ER and shaped the chunk of tile to look like my kidney stone! The scan had provided images from three angles. He measured and carved until he had a nearly perfect little replica. Then he rinsed it off and dropped it into a plastic ziplock bag.

I was devastated when my alarm woke me and I knew I wouldn't be passing that stone anytime soon. My feet were in agony and I really needed those titanium pins to come out. In walks my man with a huge smile and a little baggie!

When we arrived at the hospital the nurse said, "Did you bring your stone?" Inasmuch as my husband had gifted me his creation, I in complete honesty, answered, "Yep" and handed her the baggie. The entire medical staff (my doctor included) commiserated with me on how painful passing a stone like that must be. Having passed larger ones before, I could honestly tell them that it was horrible to pass big stones. I got my surgery and the horrendous burning in my feet was immediately relieved as they started to heal. The stone passed two days later.

And thus began my husband's career as a forger of kidney stones.

Dec 10, 2016 10:24 AM

OMFG FatiguedFighter!! I thought I was fucking nuts.. I think you just bypassed me... LMAO!!😂😜

Dec 10, 2016 10:29 AM

Haha, your husband's such an awesome man!

Dec 10, 2016 11:52 AM

I'm sooooo sorry for you but why can't you get the surgery you need if you don't mind me asking 🙄 My dad had kidney stones and seeing him in such pain was awful but luckily he got a surgery and is perfect now so I can just imagine the pain you're in 😔

Dec 10, 2016 3:45 PM

HeyItsMe, I don't have insurance and it's still in my kidney not stuck anywhere for an emergency surgery.

Dec 10, 2016 5:55 PM

That is so frustrating! Anyone who has ever had a stone start moving knows it's ALWAYS an emergency situation. I'm so sorry you're going through this.

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