it's been a while since I posted something. life hasn't exactly been busy, but more... overwhelming? especially the past month.
I think I mentioned occupational therapy in my last update. I just had a session on Friday and, well. My therapist is also suspecting it's EDS causing the laxity, because just the month before, she treated a patient who also had EDS. if that's truly what it is, then I don't have many options.
All I can do is try strengthening exercises, but most of all, joint protection. Joint protection is becoming mandatory. Pain management is must, I might even end up on narcotic patches, which I don't want, but regular pain medications are not working for me and I have full body pain now. I'll do what I have to do but, it's a bummer realizing I'll never be 'normal'. Sure, normal is overrated, but I'd take normal over being in pain all the time.
Yeah, anyway. My genetics counseling appointment is next Wednesday, so I guess we'll see if it's confirmed or not.