Sometimes I have no idea. Today, for instance, my feet started burning briefly despite minimal walking the last couple of days. When my ear flares up, all I'm doing is hearing lol. A few nights ago I was awoken in the night by a stabbing pain in my ribs. Stress-wise, I'm am less stressed than I have been for a number of years. I've been tracking my symptoms for about 2 months & I have yet to see a pattern.
I used to be strong as an ox... these days even breathing can be a chore... sad thing is i usually forget im so weak...till its too late! Lol my head forgets im im not 18 anymore! I really find hot n cold temps to be a fat trigger for my pain... and pushing myself too hard or too fast, and not pacing myself ...can make my whole week end up a nightmare... but my #1 trigger for increased pain... has to be stress 🤗 ...hope this helps lynx 🌷
Sitting, standing, walking, doing one thing too many. Moving wrong,taking clothes out of dryer, falling down, sex, lifting, twisting, standing in line, grocery shopping. Ugh. Nuff said. I dream of resting on a big fluffy pink cloud perfectly comfortable & waving at everyone who can join me.🌥😊
Walking has always been a trigger for feet, calves, inner thighs, pelvis & lumbar pain, especially if I walk too much (or stand too much). I wear really good sneakers now which helps some, but every night I need to massage voltaren Greek in the calves & lumbar, then massage my feet with lotion. The pelvic/groin/thigh pain is due to the congested veins in my abdomen. Reaching above my shoulders triggers severe shoulder & neck pain, and many times a headache (cervicogenic and/or migraine). Stress can also be a trigger so I do gentle stretching & deep breathing relaxation. The neuropathies in my arms & legs are ever present due to my neck & back discs. And for nearly 8 months just turning my head sideways or looking up/down causes severe crunching, grinding, & popping in my neck that runs up over the scalp and around both ears to my cheeks, and down across the tops of my shoulders. Right now it's more painful than the ever present fibro & OA pain. I'm praying the neck surgery next month gives me some relief. 🙂💕🙏🌸
PS:. I've learned to peace activities with rest. And I've identified activities that I no longer do because they are direct triggers; gardening, mopping, sweeping, vacuuming, scrubbing tubs, washing car, cutting grass, lifting grandchildren or dogs, grocery shopping alone (can't tote bags), even showering & drying hair/dressing is becoming more difficult.
That is so frustrsting!! Sometimes when I get out the shower, each hair on my arm that pops up as it dries Spears me with super sharp pain. It's random but it's intense for about 5 minutes leaving me surprisingly exhausted! I hate stupid stuff like that! I also hate doors! I hate all door knows and I hate pushing doors open. I hate pushing the handicap button to open doors too! They ALL hurt! In my office building I often have to go through 3 doors to get 1 place. I just sigh everytime.... sometimes I skip going to the offices inside even if I need to....
Standing and walking are my consistent triggers. Definitely have better and worse days. Yesterday my migraine was triggered by chewing a piece of bread that was a little too hard. My pillow didn't maintain shape last night so this morning I had neck pain triggered by that. I have been trying a buckwheat pillow that helps my neck pain a lot, when it stays in place. The last RSD flare I had was while moving my foot in a circle... Lying in bed and moving my foot a little bit. That flare lasted for several months, almost a year. Every evening, my sacroiliac pain is triggered by lifting my knee scooter into my car. Have to trade 1 pain for another. I know you guys understand. Great question and discussion!
🤗 Hi tiny 🤗 I cannot eat a propper meal anymore... mainly due to my oesophagus being crushed from behind by my cervical fusion+stenosis+oseoarthritis. I havent been to a restaurant with my hubby/family for over 10years... i have a soft diet or swallowing is a no no...or i have meal replacement shakes! Food and eating it are no longer a reward for me... theyre a bloody nightmare! Do u find urself avoiding eating because of how it makes u feel? I know my stomach has shrunk to the size of a pea! 🐫
Gosh I am sorry to hear that lulubel. No I do not avoid eating.. The opposite is my problem haha. I love to eat and just went out for a big pasta dinner.. My whole torso feels likes its in a corset.. But it felt like that before dinner. It just got worse once I was really full. Uggggghh
Sounds a bit like MS hug! I get that quite often... feels as if a huge bear is squeezing the life outta me... or an elephant sat on my chest! I have to talk to myself and convince myself it will pass and im acutally not gonna die! I have lost all feeling of hunger, thirst, fullness... or empty rumbling! I can forget to eat until i pass out... so i have eating alarms set now! The only good thing to come of this nerve damage... is i have lost just over 200lbs to date... but i look so good now... its hard for my drs not to be blinded by my transformation... but hey least those spanx hold all my extra skin in place hehe 🐴
Lulabel just reading your comments makes me feel grateful. Sometimes I can get caught up in my pain. I have a cervical fusion, lumbar fusions and stenosis and many other diagnoses. Between you and flappyslady I realized my neuropathy is not as progressed. Bad enough but not where you both are 🤗 My biggest trigger is weather then prolonged standing ( makes my muscles burn bad) and walking. I too can overdue and pay for it. I know I should be doing less but do it anyway🤷♀️ I use to also have choking with food but only occasionally. My seizures bother me the most because of lack of control. But I’m grateful I can still eat and my neck is not grinding at this point but have noticed more pain in my extremities. I’m trying to remember who wrote about sensitivities to temperature but I also have that. It can be July and I have to have my legs covered in bed. I can still do household chores but limited. I realize how grateful I am to have people like all of you for support as I know my conditions are progressive. Love and gentle hugs to everyone.❤️🤗
One question to all that have cervical fusions. Do any of you have a hoarse voice at all? Many years my doctor thought I was faking it I think. But when my inflammation increases my voice gets hoarse. Just wondered if anyone else experienced this. They think it’s the plate in my cervical fusion pushing into my esophagus. Also the reason for my choking at times.