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Suboxone- Do I have a choice, or voice in my care?

Jul 12, 2016 9:32 PM

What do people think of Suboxone? My pain dr is peddling it like shamwow towels. He sounds like an infomercial...it's the best thing since sliced bread, the new medical miracle, it works for everyone and has no bad side effects....

Really? I'm mean REALLY? Truly?

See I've heard this before. Amatriptyline was going to be the miracle cure, it almost sent me to the ER. It should of but my boyfriend had medical training and helped me but he was seriously freaked! The Gabapentin was going to make the pain disappear, except I was exhausted and so emotional I'd flip into rages and wouldn't know why but couldn't stop. Next lyrica was surely the answer....but I couldn't stop the tremors which aggregated the pain. But wait Cymbalta is new and amazing and the best thing... I suffered 3 long months of extreme unbearable nausea and depression wanting to do anything to end my misery.

More drugs tried... no luck. But shirt acting percocet does work. The thing is I have to take short acting meds in ALL classes. I can't handle time release of long half life meds. I'm also allergic a long list of drugs in various categories...

But my pain doc doesn't here me. He was at a convention where they discussed "legacy" patients "like me" and supposedly we are resistant to change because we are dependent on opiates (not addicted- dependent). Supposedly diabetics and people on other meds *jump* at the chance to try new meds. (My diabetic friends don't jump, they wait and see how others do overtime....) But even though I explain *MY* issues, I'm pushed aside with pressure "all my other patients switched", "I have 4 patients willing to talk (aka pressure) to you", "it's just the opiates talking"...

I want to scream and cry!! Cymbalta was EVIL!!! And the manufactuers are being sued!!! Drug companies routinely massge/straight up LIE about their results. And everyday a new "miracle drug" has a new commercials with lawyers telling you to call them if you've been hurt by the drug!

Is Suboxone *THAT* awesome? Is it truly safe? The FDA wants them to reformulate it...the CDC is pushing it like lollipops at the dentist office. Do I have a real choice, real voice in my care? I cry when I think of being pushed into suboxone. The last time I had such bad feelings before I took a medication, it was the Amatriptyline...and that almost sent me to the ER... go through withdalrawls, miss a week of work, and it not work? Or make it worse? Would he really put me back on percocet or make me wait months like he did with the cymbalta? I'm so frustrated!! I feel so powerless!!! Pain makes me feel powerless already. I don't need my Dr doing so as well. He's the only doc around that doesn't do injections so I'm stuck with him....

Jul 13, 2016 6:33 AM

I have no idea hunni... but gentle hugs - i know exactly how u feel. I am 44 & seriously wonder where the hell i go from here! (Im on fentanyl & now dependant on it! Which sux... i have no clue how they can push certain drugs when everyone is so different... 'miracle cure'...my ass🐴). Im interested to hear what people have to say tho... i hope u have a good day sweetie 🤗

Jul 13, 2016 10:04 AM

I don't know about the med. But I've always followed my guy instincts. And the saying "if it sounds too good to be true it usually is" has a lot of merit.

Jul 13, 2016 4:43 PM

It's buprenorphine and naloxone- buprenorphine you normally have as patches, you wear them for 3-5 days, naloxone is to help prevent misuse In drug addicts or opiod dependents. Normally drug addicts will try and inject the subozone and the naloxone acts as though they are having withdrawal signs and symptoms. Buprenorphine for me, was rubbish, didn't help at all, I then went on to Fentanyl

Jul 13, 2016 4:46 PM

Ps, I forgot to say, buprenorphine can help suppress withdrawal symptoms and reduce cravings from other opioids you may be taking.

Jul 13, 2016 11:34 PM

Thanks JAHMAC. I think my Dr is talking about a 1 or 2xs daily dose, not a patch. I probably couldn't do the patch because my skin is suuuuuper sensitive and reacts to most adhesives...the dr said the suboxone is easier to dose than straight buprenorphine. I'm not in love with being given "the addicts drug" when I'm not an addict. I have enough bad reactions from med professionals on My percocet. I feel like I'd be branded an addict even more quickly. ...

Jul 14, 2016 2:47 AM

Thanks for the addition JAHMAC. I thought it was used for opioid addiction. Thanks for sharing all your knowledge

Jul 14, 2016 2:53 AM

Hello everyone... JAH I too had bunorphrapine patches... they werent much good for me either and so my dose went up and up... and i too am now on fentanyl patches 🐫 l didnt realise till i read ur post x

Jul 14, 2016 10:42 PM

The people that I know that have been on it have had a harder time getting off this than stopping their opiods. I have refused it. Best of luck with whatever you decide.

Jul 14, 2016 11:50 PM

Suboxone blocks the pain receptors in the brain, thereby reducing or relieving pain. It can be used in long term pain management, as can Methadone.

Jul 15, 2016 2:40 AM

Suboxone, if I'm not mistaken, blockes the opioids from adhering to the opioid receptors. It makes it a lot harder for any opioids to give you the physical effects of taking them: it also if I'm wrong, I know that I'll be corrected but I'm pretty sure that I'm partially correct at least.
Gardener, I would ask the doctor before you are put on it how it works and what it is supposed to do for you. Best of luck... {{{Hugs}}} 💕🙏🏻🌻😊

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