Hi, I'm new here but needed to vent a bit. I've been in pain for 30+ yrs now. In the beginning, the docs all thought I was trying to get narcotics and i was told the pain is all in my head. 13 yrs ago I was finally diagnosed with fibro. I tried to tell every doc I saw that I just don't want to hurt. If they told me that standing on my head 6 hours a day would help, I'd do it. Still, nothing they prescribed helped. On top of the pain, I have horrible IBS which they say that is from the fibro. Ugggg.
Then about 3 years ago the bad headaches started. I started loosing my eyesight and my hearing on the right side. After 3 MRI'S, 6 spinal taps, and 3 catscans, they found that I had fluid on my brain. What the what??!!! Really??!! They shoot horses for less. Lol. I keep telling my mother that I'm getting rid of all my ailments while I'm young, so I can live when I get old. :)
So we did surgery to relieve the pressure on my brain and eyes. I have a lumbar shunt and a horrible scar on my back. I tell my students that I'm bionic. :) I'm still healing and have terrible spasms in my lower back now which causes restless legs constantly. I feel like from my waist down I'm constantly twitching. However, I can hear and see.
Still, nothing the docs prescribe helps. I'm meditating and doing some yoga in hope of finding peace in the pain. I guess my vent is that I don't think anyone should have to "get used to the pain"....or have to "learn to live with it". I mean, we put a man on the moon, we can clone a sheep, they found a cure for HIV...I don't think I'm asking too much. Just one day...one hour...one moment of at least level 5 would be phenomenal. I'm in the Orlando, FL area. If you have any suggestions on docs, I would be so grateful. My company just moved me here and I'm unfamiliar with docs in my area. (Originally from Louisianna, bu th my company has moved me all over the nation. In the last 10 yrs with them, I've moved to 8 different states.)
Thanks for letting me vent yall. I appreciate the ear and wish peace, happiness, an pain free to all.