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Surely not everything is fibro

Oct 14, 2014 1:27 AM

fed up with GP and other medical people saying every symptom is fibro. been having some frightening episodes where I can't remember where I am, was stood outside supermarket but couldn't work out where that was in relation to anything else. I'm having big limb jerks they are that strong that I knock stuff over or make me fall, these are then followed by a red hot shooting pain going from the right eye diagonally across my head from right to left. would go to GP but will be fobbed off

Oct 14, 2014 7:06 AM

doesn't sound like fibro to me! find another doctor?

Oct 14, 2014 9:07 AM

That is all the Gp says it is fibromyalgia is to do with all the pain there not right all the lot in the UK

Oct 14, 2014 12:39 PM

do you take magnesium supplements? has your thyroid been tested ?

Oct 14, 2014 6:15 PM

I have to say I have had a lot of those symptoms with fibro. My whole body was having muscle spasms. Jerking all over. loss of memory is horrible for me!!! have they done test to rule out any and all auto immune disorders?

Oct 14, 2014 11:28 PM

My mom had fibro and she had a lot of muscle spasms and jerking, sometimes to the point she would drop things. lshe also had a lot of memory bkurps, couldn't remember why she went into a room, or what she was going to get

Oct 15, 2014 1:50 AM

had my thyroid removed in 2010. my thyroid levels are fine and level as I have them checked regularly. I have fibro fog. however something else is happening. went into super market got annoyed cause I couldn't find anything, only to realise I had walked up and down the same isle at least four times, that's fibro fog.
when I came out of said super market I was completely lost, could not remember where the shop is located and where I was, the car was etc. got quiet emotional, I then get a hot shooting pain going from my right eye across my head to the left side of my head. it's one of those pains that make you grab the affected area and shout because of the pain. this is different from my fibro symptoms

Oct 15, 2014 4:36 AM

Very strange. I take it you eventually got home. I know that feeling,though. I always have to take someone with me when I go shopping. You should describe pain to doc, though. Never had that in my head. please go see doc soon. and take a friend. all the best to you.

Nov 02, 2014 1:19 AM

it's like the medieval ages if you have "fibro" because doctors don't know what causes it or how to even diagnose it! in the future it'll be fibro class a b c d e...... we're just not there yet

Nov 03, 2014 4:11 PM

actually all that you mentioned are from Fibro. but that doesn't mean that you don't have something else going on. a second opinion can never hurt. dr Goldenberg from Newtin Wellesley Hospital has written multiple books. and talks about all of that and more. I know it's frustrating. hang in there. your not alone. 😋

Nov 03, 2014 4:12 PM

whoops newton Wellesley hospital in massachusettes

Nov 04, 2014 11:32 AM

Fibro is quite specific, but it should still be diagnosed after other, more life threatening problems have been ruled out. It can be concomitant with other more serious problems. I think you have other things going on there. I would look to a neurologist.

Nov 04, 2014 2:44 PM

Where's Gregory House when you need him?

Nov 04, 2014 7:59 PM

Don't you just WISH House existed? LOL

Nov 04, 2014 9:38 PM

Hi I suffer with these jerks you describe but for 10 years long before I got fibro it's part my fits for epilepsy but I have the same with my doctors anything has to be fibro tasha

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