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Swallowing Problem & Fibromyalgia

Mar 19, 2016 6:30 PM

I am wondering if anyone else with Fibromyalgia also have issues with swallowing.

I have such a hard time with food getting stuck in my throat. It is so scary that I have to be really careful when I am eating. It doesn't matter how much I chew before swallowing or how soft the food is, it get stuck in my throat.

I have been suffering with this issued for many years now with no explanation.

I'm curious to find out if this is one of the symptoms that you experience with having Fibromyalgia.

Mar 19, 2016 8:56 PM

I don't know if it is because of fibromyalgia but I have it to. Mine is called esophageal spasms. They don't feel like something is having spasms but it feels like something is going on in your throat. When I chew, I wake sure I chew everything up. But then I go to swallow and it feels like it is staying caught down my throat. I am really afraid when it is happening. Sometimes it can last hours or days. This may not be what you Are talking about. I just thought this might be. I hope this may help. If this is familiar, let me know. I can tell you what they do for it. Best wishes for you. I am sorry you have to suffer with this.

Mar 20, 2016 6:38 AM

I don't have fabromyalgia but I have been suffering with this for along time. It can be very scary aspecially when it get stuck and you try to drink some thing to wash it down and the fluid stays on top of the food and don't move. And you can't take a big breath to cough it up.i have chocked a few times now. Or get someone to help you .but now I don't drink any thing l just keep swallowing untill it moves it can be so painful to .It really does frighten me. The doctor says I need a camera to see what is going on but is no I haven't got any growths I no it just spasms.

Mar 20, 2016 8:40 AM

Profiler, your issue sounds a bit different than what I'm experiencing. It looks like Gizmo issue is exactly what I'm having. They could not find any growth either in my throat that would be causing this issue. I am so nervous when I go to eat anything especially when we eat out. The one thing that I've notice is this happens when my Fibromyalgia is at its worse. That is why I get the feeling that it is somehow connected to it. I also think that the muscles in my throat is weak.

Mar 20, 2016 9:42 AM

Angelic, I had the same issues and had seen the Specialist for it. I had the Barium swallow test, Cookie swallow, etc. my doc gave me a diagnosis. Bottom line my muscles in my esophagus is off rhythm which cause the food to not be pushed down as I swallow. So I was told... Avoid cold drinks... Room temperature drinks was advised. No ice in my drinks. Small bites, chew, small drink to push it down. It has helped when I remember to do it. Don't you want to tell your body to just stop it?!!! Hope this is helpful to you.

Mar 20, 2016 9:47 AM

I get it I always figured it was my thyroid. Last night a pill stuck in my throat and dissolved because no amount of gulping water would move it. Mine seems like it goes in spells rather than an every day occurance.

Mar 20, 2016 1:12 PM

Yes I do agree that it is a muscle issue. I drink my water at room temperature but it does not seem to help. Yes, mine goes in spell also but since last November it has been happening more frequently. At least 4 to 5 days out of the week and multiple times within the same day.

Mar 20, 2016 1:15 PM

I have an appointment in May with my ears, nose and throat doctor. I am really hoping that he can shed some light on this for me with some answers and or solutions to fix the issue.

Mar 20, 2016 1:46 PM

Scleroderma causes that. Have you been tested for that?

Mar 20, 2016 1:54 PM

No I have not been tested for Scleroderma. Will have to do some research on it.
Thanks for the input.

Mar 20, 2016 2:02 PM

You're welcome. It's autoimmune and it's scary. Don't scare yourself too much. Doc thinks I have it along with lupus, sjogrens. I'm diagnosed with Raynaud's too. I don't at this point anyway have problems with swallowing or tightened skin. (Symptoms of Scleroderma). I do a lot of bad joint pain that's spread fast and worse and worse fast. Amongst other symptoms.

Mar 20, 2016 2:07 PM

That's interesting cause I was tested for sjogrens last September but the test came back negative. I have the really bad joint and muscle pain but the attribute those issues to Osteoarthritis and Fibromyalgia. However I think that there is one underline issue causing all of my symptoms.

Mar 20, 2016 3:16 PM

I would suggest getting tested every 6 months if you can. Other than my ANA test being positive 3x and some osteo showing up in my lower back and hips all other tests were negative. That doesn't mean I don't have disease. The tests are not definitive. The disease presents differently for everyone. We're not cookie cutter, but docs think the disease is sadly. Doc didn't believe the positive ANA test until Raynaud's showed up in front of him. My finger turned blue. I spent 2 years, saw 2 Rheumies that blew me off, saw an ENT that blew me off ,and a pain clinic that blew me off. When Raynaud's showed up in front my doc then he offed to send me to an internist. I asked to see 8 months prior and he refused. When I saw the internist. He found all sorts of swelling in my joints just by feel, all the other docs told me didn't exist. He saw all sorts of symptoms of autoimmune disease in my mouth. Inner lips, on my lips, and inner cheeks. ENT told me my tongue was normal when I went to see him with very swollen taste buds that hurt so bad out of nowhere. A dentist told me they were swollen and probably something autoimmune was going on. The internist said my tongue is not at all normal. So I've had a bunch more tests done that should have been done a long time ago and I go for a follow up in a month. They know I'm ill with autoimmune disease/s they're figuring out which ones now. They seem very certain of Scleroderma which blindsided me. And terrifies me most.They also suspect lupus & sjogrens which I have suspected all along. I also wonder about RD. I'm so ticked at the other docs that's for sure. How could they miss so much specializing in these very things?! So don't give up finding answers. You know your body better than any doc ever will. They work for you.

Mar 22, 2016 5:35 AM

I too suffer with these random spasms in my oesophagus as I eat and or drink! It is called "Gerd" & is common in Fibromyalgia sufferers (I'm one of them) It is so painful when it happens & causes me to lose my appetite quite quickly! I don't like to eat out as a result! I find it very distressing & quite debilitating!

Mar 22, 2016 11:23 AM

Mugsy68, what you are referring to and the original post are different. GERD allows the acid and other stomach contents to come back up the Esophogus and cause burning, sometimes aspiration (which I have experienced and aspiration pneumonia). The issue at hand is swallowing food and/or drink and having it get stuck on the way down and not be able to get it down. There is a muscle issue that doesn't allow the food to be pushed forward and down the Esophogus. Thanks for the I out and I hope that you are on meds for your GERD and that it gets better. {{{Hugs}}} 💕🙏🏻🌻😊

Mar 22, 2016 12:00 PM

That is correct Alwayzinpain. In fact I was tested for GERD and I do not have it. I will not give up on getting to the real cause of this issue. Gibber you are so right in stating that some of the test results indicating we do not have an autoimmune disease in not reliable. We know our bodies better than the doctors who are not willing to think outside of the box. I truly appreciate all of the comments from everyone. Some of the issues described are different than what I'm experiencing but some of you have the this same issue. Regardless of our issues, I pray that we will all find relief.

Mar 22, 2016 12:01 PM

Same to you Angelic. :)

Mar 22, 2016 12:05 PM

Alwaysinpain, forgive me for getting mixed up, I was referring to the spasms of the oesophagus which results in the passing of anything solid or liquid from passing through, causing severe pain & discomfort! I was obviously wrongly informed of the correct diagnosis! I'd been interested to find out the correct name for these horrible spasms because mine are becoming more frequent! X

Mar 22, 2016 12:09 PM

Mugsy68, there's no reason to apologize for mixing up diagnosis. It's the first thing that pops to most folks minds. I am sorry that you experience this and even more sorry if I came across as rude or insensitive. I hope you have a good day and get the info you need. {{{Hugs}}} 💕🙏🏻🌻😊

Mar 22, 2016 12:13 PM

Alwaysinpain no worries & so do I. Gentle hugs right back atcha (((💖)))

Mar 22, 2016 12:14 PM

Continue to press your doctors for answers. You may have to find new doctors who are willing to listen to you and as I sad before, think outside of the box. For sure, we are all here to encourage each other. I pray that you will find your answers real soon. This is a very scary issue that we all experiencing.

Mar 22, 2016 12:25 PM

AngelicSmile I'm waiting for an appointment with a Neuro Therapy specialist centre here in North Wales so I can finally deal with Fibro specialist Dr's & Nurses who may be able to enlighten me about this particular symptom. It certainly is a scary issue & I hope for all our sakes someone discovers it's cause & cure soon! Gentle hugs to you (((💖)))

Mar 22, 2016 12:39 PM

I pray that you will get your appointment soon... Gentle hugs to you too.

Mar 22, 2016 11:09 PM

What is Barrett's Esophagus? I've never heard of it. Also what are the symptoms of it?

Mar 26, 2016 8:24 PM

AngelicSmile, I'm just seeing this post. I have Sjogrens which causes dry throat, which aggravates swallowing. I also get thrush (yeast infection) from my asthma inhalers, which when bad causes hoarseness & swallowing issues. And I've got a problem with esophageal stricture that's had to be dilated 3x, and it also cause a feeling of food sticking and swallowing difficulty. I hope you will get your doctor to check into your swallowing issue, to make sure it's nothing serious. Hugs & prayers it will be easily treated! 🙂💕🙏🌼

Mar 26, 2016 9:56 PM

Angelic Smile, Barrett's Esophagitis is a change in the wall of the esophagus caused by chronic esophagitis untreated over a period of time that leads to a precancerous condition, or BE. The patient must be treated for this condition & monitored closely. I have medication to slow the erosion of the walls of my esophagus, as well as yearly endoscopy with the I spy camera. There are lots of things I do to try to control this affliction for as you may know there isn't a good outcome of esphogial cancer.

Mar 27, 2016 6:31 AM

I have same problem, get sick everday. Hardly eat yet gaining weight from medication. Not fair! ! I have had neck surgery and a gastric bypass so I thought it was due to one of these.

Mar 27, 2016 6:35 PM

I was just dx with BE 3 weeks ago. I'm seeing a specialist in 2 weeks to discuss treatment options. He may be able to surgically correct the hiatal hernia, esophageal stricture, and improve the BE area. Praying so!

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