Learn from patients with pain similar to yours

CatchMyPain Community and Pain Diary App to manage chronic illness

swollen feet

Oct 18, 2015 1:29 PM

Hi..everone,
i'm new to this app.. been diagnosed for 2 years now. In the last year my fibro has got progressively worse.I also have arthritis and numerous other health issues.
Since my fibro has worsened i have noticed my feet and legs are constantly swollen. Does anybody else have this problem? Many thanks Jx

Oct 18, 2015 5:43 PM

Yes, I have swelling all over,numbness, tingling, shocking, burning feets like walking on glass ouch, fingers cramping, marks all over body, dry skin, hair falling out, weight gain.

Oct 19, 2015 3:17 PM

Wow, I'm not the only one whose feet feel like this and has swelling. It's awful.

Oct 19, 2015 3:58 PM

I have swelling in my legs, feet, hands, face and tingling, numbing pain as well as the burning and shocking feeling. I also have been loosing massive amounts of hair, fatigue, memory fog. And the list goes on. Pain is all over and I can't sleep.

Oct 19, 2015 4:18 PM

Irishgirl, have they ran any tests like lupus?

Oct 19, 2015 9:11 PM

Have they done nerve tests? Seems like it could be something like peripheral neuropathy or CRPS/RSD

Oct 19, 2015 9:32 PM

My swelling is so random that I have to have two different sizes or shoes 😠

Oct 20, 2015 3:22 AM

Leolion, I have the exact same thing happening to me. I thought it had to be some other issue but I just had my annual physical and all was well. Hmmm.. I don't know, with over a dozen diseases confirmed, I don't know how I could be considered healthy!!

Oct 20, 2015 8:54 AM

Always, I usually go to a physical, and the doc basically uses the extra time to ignore me and say "You're fine." Not fun, especially the time I needed a walker and the doc decided I was faking, and just stared when I started sobbing from pain.

I'm the person who never wants to cry, ever. I literally curl up on a little ball and hide my face in a sweater like a cartoon turtle lol. I don't get it either. You'd think, between MTHFR gene mutations, migraines, CRPS, neuropathy, asthma, ADHD, POTS, fibro?, hypothyroidism, strange periods, various vitamin deficiencies, and muscle stiffness and spasming, that the doc would have realized I'm not healthy. 😂😆😣😢😧😨😩😲

Oct 20, 2015 8:59 AM

My hands swell worse tHan my feet but I get a big bowl of ice water and my hands feel so much better! Now of course as soon as my hands warm back up they hurt again but man does it feel good my doc gave me mobic and that really helped with the swelling.

Oct 20, 2015 11:32 AM

When I go to my pain and back doctors they look at me like they don't care sometimes like suck it up but it's not like that when I use of a better life than this.

Oct 20, 2015 4:14 PM

my feet are swollen tonight they feel like they are explode..really tight and going up my legs...

Oct 21, 2015 3:16 PM

Welcome JulianneN! I started with fibro between '07-'08, but wasn't dx until 2012. I had swelling in my legs and feet. Then in 2012 the closed off 11 engorged veins in my pelvis (pelvic congestion syndrome), and the swelling reduced some. Only I started having it again last Fall with the paresthesias. I'm now in compression stockings and have venous reflux in my left leg. It may or may not have anything to do with fibro, but mine definitely are connected to vascular Isadore. If you've not been checked by a doctor you may want to. It could be anything from meds side effects to who knows what, but if it's vascular like mine, the compression hose will help. Good luck! 🙏🌼

Oct 21, 2015 3:41 PM

My feet swell, my legs and even my hands swell to the point I can't wear my wedding rings. I just bought some pretty zirconium rings because I felt naked & wrong not wearing my wedding ring. The people who know what I did laugh, but admit they like my new rings. Everybody else just compliments my rings, if they even notice. But I feel different - better - looking down and seeing them. I don't feel so reminded of all the swelling and other symptoms. Or maybe I'm just crazy....

Oct 21, 2015 4:22 PM

ferretbandit i do have peripheral neuropathy.. could this be why? Thankyou all for your comments..means alot knowing im not alone ((( Gentle Hugs))) to you all xx

Oct 25, 2015 6:37 AM

Hi Julianne,, I am new to this apbut I also have had puffy feet and legs for years. Doc has not explained it either.. Thinks its fluid retention. I get restless legs alot too. Could be diabetes in my case. But since I stopped all ibuprofen Tylenol etc due to ulcer in colon and lots information in gastro ares, I notice the swelling is less. Pain much worse lol. I had been over using the OTCs. Doc put me on Gabapentin for pain. Helps with the RLS. Some with pain.Work in progress here. The swelling doest hurt except shoes hurt and well feet hurt whether swelled ornot hang in there kiddo!

Oct 25, 2015 7:48 PM

I was diagnosed with diabetes in 2009. They diagnosed my peripheral neuropathy 10 yrs before while looking for a pinched nerve. My legs and feet swell as do my hands. Especially in the morning. My hands are so swollen I set the coffee pot up at night cause I can't do it in the mornings.

Oct 25, 2015 7:49 PM

No they haven't. @ anonymous 1971

Oct 25, 2015 7:52 PM

Irishgirl, were we separated at birth? We seem to have so many of the same things.

Oct 25, 2015 8:15 PM

I hope they can figure out the root problem and not just treat symptoms. My grandmother and father had Neuropathy and I'm going to discuss this with my dr.

Oct 25, 2015 8:17 PM

Talk to them. There is meds that help

Ready to start relieving your pain?

Join Community