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Nov 04, 2017 9:40 AM

Im miserable. I have noone to talk to who gets it and now the tablets im on arw really bringing out my anxiety that i thought id got over.
I feel like i need to be meet people who get what this is all like.
Ive just had enough now..

Nov 04, 2017 9:59 AM

Had fibromyalgia 8-10 years now. A lot of changes to get some relief. STAY AWAY FROM PROCESS FOODS. eat more vegetables. I found a whole foods supplement that works pretty well for me.

Nov 04, 2017 10:43 AM

Yeah thats great advice! Ive been eating clean and going to the gym as much as i can.
I just feel so stuck and no matter what i do/try there is no relief, and now these meds are messing with me, i just feel stuck inside my own body. Dont even know if that makes sense.
What suppliment did you find useful?

Nov 04, 2017 1:53 PM

It's call zeal by a company name of zurvita easily found on the internet. I came of it and recently tried another product which seems to help but not sure if it helps as much as the zeal. The zeal helped more with muscle tightness and really helped with the flare ups a lot. I've never taken anything other than gabapentin and ibroprophen. Well I tried some of those others a couple of times but made me feel goofy and seemed to make symptoms worse or create other undesirable symtoms. Currently I quit gabapentin and decided that maybe it wasn't helping much either
Are you diagnosed with fibromyalgia? If so try this FB group out. A lot of men.
Men with fibromyalgia ( official)

Search That exact title.
Closed group men only

Nov 04, 2017 3:20 PM

And ill have to look it up. Ive heard of a few people who have tried suppliments to help and it has so ill have to try!
Yeah medication can cause some horrible side effects. Its just making me groggy and miserable.

No i havent been diagnosed, im 3 years with pain and still getting investigations so ill have to see. I couldnt use it as im a woman, and i dont use facebook anymore. Found i was spending far too much time on it haha

Nov 04, 2017 4:34 PM

Well here's a group to check out. Not facebook. They send email responses and there are real people. And you might even discover some local people , groups, Dr referrals etc.

Nov 04, 2017 4:35 PM

Thank you so much!

Nov 04, 2017 6:19 PM

It's only been the last couple of years since I've been stuck in this never painless body. Stand tall. What's your ear pain about? My wife has sometype of TMJ that triggers alot. I think it's stress related.

Nov 04, 2017 6:55 PM

You arent alone. I know how you feel and sometimes it can be a never ending cycle of feeling rubbish or being debilitated, but there are good times. My mum and sister have ME and I have Fibro with debilitating endometriosis- we cannot do lots of things, have to spend so many days in bed (which doesnt take the pain away frustatingly) and sometimes get down about it but when you look at our lives as whole pictures they are great lives. Ones worth adapting to enjoy... I recommend:
Like mentioned already... no processed food, a anti inflamatory diet, no booze, we take anti depressants but they arent good for everyone and if you can do with out then do; gentle exercise never to work out until you are tired or it pays you back in the next week or more.
Rest, an afternoon hour or total rest really helps. Meditate, this is my main help, it really helps with the pain, anxiety and the hopelessness. Hot baths with epsom salts, magnesium spray, calendula bath oil and massage oil.
Don't lose hope when you dont get help from doctors, there isnt much available and it isnt very treatable, focus on finding thr right thing for you and managing the condition, you will get more from your invested time.
You arent alone it is just that the people in your daily life cant understand something they cant see, arent told about and have never felt xx

Nov 04, 2017 6:56 PM

MyFibroTeam is an app and website. You have a profile and can write feelings or whatever and people will respond. You can also ask questions in one part.

Nov 05, 2017 12:49 PM

Thank you! Ive tried the myfibro team a few times but it never lets me use it. Says to wait on an email and it never comes? Am i doing something wrong?

And @loula thank you so much! It sounds like you all have a really tough time of it! Ive never tried meditation but ill have to!
And yeah your right! Im normally very good at looking at the pisitives but lately (since i got new meds) ive struggled! Gotta pick myself up!

Nov 05, 2017 3:27 PM

I don't remember how I first started using app. Sounds like maybe your email server won't allow MyFibroTeam email in. Like if it's gmail gmail won't allow MyFibroTeam in. That's the only thing I can think of.

Nov 05, 2017 3:34 PM

Ive tried a couple of different email addresses because i though that.. hmm ill tey again for sure! Thank you so much!

Nov 05, 2017 4:12 PM

Not pick yourself up, just be self compassionate. I recommend starting with a body scan meditation :) i hope it helps xx

Nov 05, 2017 5:17 PM

Just relax which is the tuffest part 😊

Nov 07, 2017 6:55 AM

Loula, what is body scan meditiatuon? It sounds good!

And yes relaxing is definately my biggest oroblem! X

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