I am new to this site and I want to thank you all for letting me know I am not the only one that is going through these hard times. To be honest I could not stop crying reading everyone's post on how I can relate to you all. I am 35, married (on the edge of divorce) with two kids. It's hard to explain to anyone how you feel with this constant pain, when they have gone through this crap.... I have fibromyalgia, migraines and so many other medical problems and I thought in my mind I was alone and no one understands. Thank you all for showing me I'm not alone...
Mari, Welcome. Please know that YOU are never alone. We are all here to be a support system for each other. Even if we just need to bounce ideas off each other, this is a safe place. If you have any questions, please don't hesitate to ask.
Mari24, I am so glad that you found us. Know that you are NEVER alone. We are all here to support one another whether to cheer you up, soothe your nerves or just listen when you need to vent. I also have fibro, migraines, TMJ, CRPS/RSD, sacral joint dysfunction with fractures, scoliosis, cervical spondalytic myelopathy, among a handful of other diseases. I know it's hard when you have high pain levels and can't do the things you want and need to do. The depression and anxiety that goes with it is not easy to deal with either. I've been at a level 8 pain pretty consistently for the last 22 years. The meds I'm on, the 28 surgeries, the whole thing is just plain annoying. So, welcome to our community family. I hope you find the support system you need here. You will have all you need with the wonderful people that are here. If you need me, I am but a keystroke away and if I can help you with questions or just to chat, I'm here just the same. I'll keep you interested prayers. 🌻🙏🏻
Mari24, welcome! I joined this community because I was looking for support and education and ideas others could share. But the biggest benefit has been having others listen and support when I've felt my worst, and building close bones with many new friends. I have learned new methods of self treatment, especially herbs and vitamins. And many have shared coping suggestions, as well as ideas of diagnoses based on my symptoms. Because I'm in a flare right now I can't think straight to list my diagnoses. That and I'm feeling stressed because I go to Mayo clinic for more tests next week, for undiagnosed tremors, dizziness, imbalance, and cognitive decline (dementia by one doc). Welcome aboard and good wishes for atop you needed 🙏🌼
Mari, welcome! You are not alone. In fact, you are in great company. It took years for me to get properly diagnosed. That meant six+ years of untreated pain. The medical community starts to make you feel insane, stupid or crazy. But, you need to persevere until you find answers and get relief. Often we are treated like emotional women-hormonal. We know our bodies better than anyone else. I have a Master's degree, I'm not an idiot. I have a full-time, high-level job, when I manage to squeeze these bits of information into the conversation, doctors started taking me more seriously. It seems to me, when you let them know why you need to get answers, why you need to get better, they start to listen. Otherwise they often think of us as just another complainer or drug seeker. I have found female doctors to be better listeners, and I was ultimately diagnosed, with Lupus by a rheumatologist. I hope you find some of these experiences helpful.
Mari wecome. I do blogging on my disease and one of my readers let her husband read the blog. He private message me and told me he felt like the worse husband out there because he just didn't understanding wwhat she was going through. I use the word chronic pain a lot in the blog. Sometimes finding where other peopl talk about what is going on helps. And to get those spouses to read can be a tricky thing. She asked her husband to read it out loud for her one night. It worked for her.
I'm 34 and have two children and married as well. I know how it is to have a ton of health problems. I have RA and fibro etc.... this is a great place to come and talk with people and get answers to some of your questions. You never alone. Sorry about things with your husband. Hope for the best for yoy