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The best weapon in your fight against pain?

Jun 17, 2015 12:01 PM


Recently, I talked to a friend who suffers from fibromyalgia and she asked me "Think of all the things (therapies, drugs, gadgets, ...) that you have tried to fight your pain and all the people who have tried to help you (doctors, family, friends, ...). Which one was the overall best weapon in your fight against pain?"

I thought I have to share this tricky question with you. In my case it is difficult to answer this questions as there were a lot of things and people who helped me relieve my pain (and I think combining several things made the big difference in the end). But if I had to choose one it would be regular exercise.

What would you have told my friend?

Jun 17, 2015 12:19 PM

Mi chihuahua! Seriously, it gives me so much joy.

Jun 17, 2015 12:55 PM

I would have to say off the top of my head, this community!! It has given me hope and also made me feel not so lonely and useless. It has been an amazing Godsend.

Jun 17, 2015 4:18 PM

For me, my physical therapist made me believe that I could get better.
She said it would be hard, and painful but I got walking again and woke there are so week flares, at least I'm not living it every day anymore.

Jun 17, 2015 7:32 PM

Nutrition, fight from the inside out. I have dropped my pain from 8-9 to 2-4 not including what the weather throws at me. But this is a huge improvement. I always paid attention to what I ate but not on the same level as I do now. Life changing.

Jun 18, 2015 9:53 AM

It's actually been a combination of five specialty doctors and the treatments they provide, along with this community of support. I can't really say one doctor over the others, because each is treating one or two issues causing the chronic pain, which is affecting the fibromyalgia on & off.

But if I had to pick just one, it would most likely be the psych doctor's treatments that have me off Ambien and actually sleeping 4-5 out of 7 nights a week. Not sleeping well is probably the biggest aggravator to my fibro, that and over doing when I feel good. πŸ™πŸŒΌ

Jun 19, 2015 9:08 AM

LMB, can you tell me a bit more about your nutrition plan? Maybe it is best to start a new topic... ;-)

Jun 20, 2015 12:39 PM

Opiates and trips to my chiropractor.

Jun 20, 2015 3:01 PM

Yes LMB share your nutrition plan with all of us please if you don't mind that is.

Jun 20, 2015 6:45 PM

I am doing the Wahls Protocol it is basically Paleo but I add fresh homemade vegetable juice total of 30 ounces a day where I would have just drank water. I do not eat alot so it is a big push to get in that much food a day. (The only good gene I got from my family is I am tall and skinny) The Wahls Protocol book is available at Amazon or half.com Written very clearly by a physician that HAD MS but changed he diet and changed her life. She put herself in remission and reversed damage that had already happened. She actually got out of a wheelchair and resumed walking. Something to consider. This is very labor intensive I just do it every evening while I watch TV. So far I completely see a change in my pain, energy level, sleep pattern, even my skin tone and attitude all for the better. I have not hardly taken any pills this month for breakthrough pain. Now I strongly advise the industrial size bottle of beano and gas-x trust me.

Jun 21, 2015 10:25 AM

I would have to say this site because it's alway here when you need it and the family members from the youngest to the oldest

Jun 23, 2015 2:30 PM

I have to try that diet. Thanks LMB!

Jun 24, 2015 11:20 AM

For me it's been my pets and Medical Marijuana in combination with my prescribed meds (Ativan, MS Contin, Vicodin 10/325 and Methadone). Also meditation and warm showers/baths.

Jul 06, 2015 3:21 PM

For me it's been regular walks in the park

Jul 13, 2015 3:17 PM

In my case it has been regular exercise combined with trigger point therapy and accepting that I probably won't get rid of the pain entirely.

Jul 13, 2015 4:01 PM

Gentle walks with my partner and sons. My partner is amazingly helpful and supportive :)

Jul 23, 2015 10:20 PM

I have RA and I'm shocked with how much food affects my disease. I've been able to cut my methotrexate dose in half and kept my Remicade infusions at a fairly low dose because of how I now eat. It's nothing complicated, but it's very strict and hard to keep up with all the time.

The foods I stay away from are ones that I seem to have a slight allergy/intolerance to or are just known to cause inflammation.
Ready for my avoid list??
Sugar and dairy are the important ones, eggs, fast food, spicy, greasy, nuts, wheat, preservatives and I limit red meat.
Now that I've been doing this most of the time (it's so hard to do all the time) for about 3 years it's shocking what happens when I go off book.
But because I can tell so easily when I eat bad food, it reassures me I'm doing something right.

Jul 23, 2015 10:38 PM

I have to say my cats (2). Watching comedy, Vicodin, ativan, Prozac and benadryl for sleep. Working part time helps keeps my sanity. I wish I could work full time again but part time seems to be the max my body will allow. When my flare up is better I try to go to the gym or at least do 10,000 steps daily. Sometimes I do sometimes I can't. I try not to get angry with myself.

Jul 23, 2015 10:44 PM

Now that I have been juicing and only eating a basically raw vegan diet when I at a burger and a few fries this last weekend I felt absolutely gross. I felt greasy, fat and bloated. Not what I was going for. Totally not worth the 'cheat' or 'treat' either way not worth it. I can truly say the juicing and raw diet has added a crazy amount of energy that I have not had for 20 years. Also my joints are not inflammed or squishy anymore. My pain level has consistently been going down. Now that being said my diagram that show up has a fair amount of red and orange in it...I had a bad fall two weeks ago and hurt my hip and femur head. I guess it was my clue to slow it down a bit. Lol. Hope you all are well.

Aug 15, 2015 7:48 AM

The pain clinic I attend at the hospital. They are a great team and I have learnt so much from all of them, gentle exercise, mindfulness, pacing,..... the list is endless.

Aug 15, 2015 9:10 AM

Wow so many good suggestions already.
I'd say good support wherever you can find it. It's always good to know you can be yourself, talk about How you feel and not be judged.
Learn about your condition, both from the medical point of view and from those who have lived with it. Helps to put things into perspective.
Lastly, avoid being cold. It makes the pain worse simply because we are more likely to be tense in the cold. So keep warm and relax as much as possible. 😊
P.

Oct 06, 2015 6:53 PM

In my case it would have to be hot baths, My new puppy, And a very good family friend that has been a complete angel to me, She was a nurse for 45 years and has introduced me to vitamins and minerals and some others things, She said all the meds that I'm taking for my fibromyalgia and chronic asthma takes a toll on our bodies, Before I found her on Facebook, I was in bed all the time she told me what all to go buy and I went and bought everything she told me and started taken it as directed by her, I'm feeling so much better, As I stated in my post about me having chronic asthma it is really hard for me to do anything cause I get out of breath easily!

Oct 06, 2015 8:14 PM

I like to think when I am having one of those days when it feels like life is totally turning on you, and the pain just doesn't want to go way, that really, it could be worse, I don't have a terminal disease, I am able for the most part to work, albeit, with pain, but at least I still can. So at least I have that to be thankful for and the opportunity to search for options so I can become pain free in the future. I still haven't come up with the perfect answer but I'm getting there slowly, step by step...

Dec 05, 2015 7:28 AM

I see a new Dr. I don't agree with his treatment. He only has me on vicodin 1 a day and neurontin. It's not working for me. I have severe pain. I need to find a new pain management Dr. In Phoenix ,AZ Γ‘rea does anyone know of one that prescribes better to help with this excruciating pain please

Dec 05, 2015 7:43 AM

Reduce stress. PACING. Trammel before I do something big and after PACING accepting I have fibro. Keep moving. And the one I struggle the most with , PACING

Dec 05, 2015 9:30 AM

Sylvia 68 I don't live in AZ , but I hear you and understand what you are going thru. Sometimes it takes changing Dr's a couple of times to get the right ones. Are you seeing a Neurologist by chance if not see if your Dr will refer you to one. I have a Primary and a Neuro. Will keep you in my prayers and sending you hugs.

Dec 05, 2015 9:46 AM

Keeping active even when I don't want to and my family and friends keep me upbeat and wanting to kick fibros but..

Dec 05, 2015 12:03 PM

Thanks for your support weenie12. I do have a neurologist too. But between both the them I don't seem to get the right help. I do keep moving as much possible. Thank god! But I have a flare up now and it's imposible without getting any sleep because of the paiN thank you!

Dec 06, 2015 3:33 PM

My actipatch, I didn't take painkillers at all last week whilst using the trial version of it. So now I've ordered a 30 day one to use alongside my duloxetine and TENS unit. It's ridiculous how well it works for my shoulder pain.

Dec 11, 2015 10:29 AM

For me the biggest factor in managing my pain is diet. Low sodium, low sugar and preservative and soy free. Less stress and good sleep along with gentle exercise daily. Staying warm. Most days my pain is between 1-4 if I make sure I do everything right, lower in summer, higher in winter. Although weather can play havoc. I found long hot baths to help tremendously.

Dec 11, 2015 1:24 PM

For my fibromyalgia : Pacing and sleep!!!! Knowing limits and trying to follow them.

Dec 11, 2015 1:43 PM

Avoiding acidic foods or taking PreLief with whatever it is I'm eating. Rest. Lie down when I need to. Pace myself, don't overdo it. Take my ER pain meds regularly and on time. Try to take breakthrough pain meds before it gets too bad but try not to take them if I can handle the pain without them because I don't have as many as I need. Snuggle with kitties.

Dec 12, 2015 12:31 AM

I have been having some bad pain days where my break thru meds aren't working. Was out of my Gabapentin for about a week and a half and my Savella for two months it is so expensive since I am in the donut hole now. It cost $130.00 for 30 days worth. Can't seem to get any help with it. I am just going to have to let some things go this month so I can get some relief. When I get my was I can send in to the pharmaceutical company and hopefully they will be able to help me out. Sometimes it makes you wonder what use having medicare d is.

Jan 30, 2016 6:47 PM

I just wish the pain would go away

Feb 19, 2016 3:46 PM

weezie12. Sorry to hear of your pain, it's an unfortunate deal we have to manage daily. There is help for the cost of Savella, I don't pay more than $15.00/month. If you have access to the Internet, look up Savella savings card. Best of luck, if you need further assistance, let me know. Feel better, Alane.

Feb 19, 2016 4:11 PM

Weezie, I k ow you mentioned being in the coverage gap right now but you CAN get help. Either go onto www.medicare.gov or call 1-800-Medicare and they have programs for people who can't afford the meds. I no longer fall into the gap with the extra help programs they have and pay $2.65 for generic and 6.57 for name brand meds. Give it a check and see what they can do for you. I wish you all the best and am so sorry that you have had such painful days and then having to deal with these high prices on top of it. Sending you love, gentle {{{{{Hugs}}}} and prayers that you have a more peaceful day.πŸ’•πŸ™πŸ»πŸŒ»

Feb 19, 2016 5:01 PM

Realizing that it doesn't define me, or any part of me. It happens and I can't stop it, but it's not me.

Feb 19, 2016 6:41 PM

My heating pad, warm showers, my dog, being believed by my partner and mom.

Mar 01, 2016 11:46 PM

Acupuncture (6 elements) weekly. I had a very dear friend who was an acupuncturist and she treated me for free because insurance wouldn't cover it. With her treatments I got off of my main medication and was just using my breakthrough medication but had decreased all of the meds halfway. Now I have moved away from her and I'm in desperate need of treatment. Definitely experiencing the kind of pain that says I need to take medication again which is the only thing insurance wants to pay for that is totally pathetic. I'm actually writing an argumentative English essay for college about that very thing. So if you have any great websites or organizations that have done studies on alternative treatments for pain management please let me know, thank you

May 24, 2016 2:05 PM

Is anybody on here taking Tramadol. Ive read some good reports about it and was thinking of asking my Doctor to put me on it.

May 24, 2016 4:13 PM

It's a synthetic opiod, like other opioids, after a while your body will get used to it, but everybody has different experiences with Tramadol, for me it does nothing, as with quite a few others in here but other people find it brilliant, but they say they find the side effects for them are not great,but again everyone experiences differently

Jul 12, 2016 6:12 PM

Regular exercise and physical therapy, then nutrition, lastly rest.

Jul 12, 2016 11:21 PM

Swimming. Rest. I am not sure what kind of pain Tramadol is supposed to help with.

Jul 13, 2016 2:53 AM

Tramadol helps me but I wish I didn't take it. I've been taking it since November and my body is definitely used to it.

Dry needle therapy gives me great short term relief.

Jul 13, 2016 5:17 AM

🐴PMA! Positive Mental Attitude... its so hard to do... but i have been doing it for over 10yrs now... (im no expert & i have my moments too!) 🐫

Jul 13, 2016 8:30 AM

I swear by my tens unit. I get terrible nerve pain in my buttocks and on the soles of my feet. The tens unit enables me to keep working.

Jul 13, 2016 8:55 AM

Tinydancer what is dry needle therapy?

Exercise doesn't help my pain, in fact most of the time I have to take pain medication to be able to exercise, but it does help my over body function, improved emotionally and mental clarity. My diet has help- low sugar intake, no sodas, lots of fresh fruit and veggies, etc. So far I would have to say though that the acupuncture has made the most significant difference. I have been able to decrease my meds since starting it. Also, I do love how positive and support this site it.

Jul 13, 2016 10:18 AM

Kankadai, When I was first put on tramadol I took it around the clock for months. My dad & sister were also on it. We're all began comparing how we thought it worked and found; we stayed either sleepy or wired for 2+ hours after each dose, it didn't relieve pain as well as other meds (due to allergies I'm limited), and worst of all we stayed more fuzzy headed than we thought was normal. Now having fibro fog I don't need another med causing issues. We all went on it as needed, which mine is only for a 7-8 or higher pain level. But everyone is different. Hugs & prayers it works well for you! πŸ™‚πŸ’•πŸ™πŸŒΈ

Jul 13, 2016 2:30 PM

It's a combination of things for me: Diet (reduction of dairy, red meat, booze), mindfulness meditation, medical cannabis, supportive family, staying active (especially when I don't want to even move), my kid's laughter, and artistic endeavors (I've taken up wood and stone carving and I find the focus it takes to work on a delicate piece of stone or intricate picture is VERY effective in my pain management)
I'm trying to avoid the traditional pharmaceutical route but I allow myself Advil, Naproxen on really bad days and Percocets on the very rare (thank goodness!) unbearable days.
Best thing though: A positive attitude and a habit of gratitude.
Hope this helps 😊

Jul 13, 2016 3:07 PM

What is your Dx?
I like your thinking.
I'm on a number of pain (& other) meds that don't seen to be helping(?). My family is telling me I'm on too many Rx but otc's don't help me. Achhhh!
And yes! Habit of gratitude! Plus focusing on others and how I can be of service, getting my thoughts outside of myself.

Jul 13, 2016 3:39 PM

All really great strategies.
I have psoriatic arthritis with current flare ups in my back, knee, shoulders and jaw. It has been slow going but I am making progress.
This forum is important for what you were talking about, thinking outside of yourself and being of service to others.
Keep up the great work and good luck!

Jul 13, 2016 6:01 PM

The gym helped alot. Increased my mobility and flexibility and reduced my pain alot. Then I got laid up with a virus so couldn't go... Now I have to start again from scratch, pain levels have shot up, and lost my mobility and flexibility. Gonna be a long struggle again to get back to what I was.... If I can get off the sofa πŸ‹πŸ†

Jul 15, 2016 6:35 PM

Chiropractor helped but I can't afford it any longer now only taking pain medication for pain

Jul 15, 2016 11:03 PM

Being honest with yourself, Being able to take onboard what Dr's suggest, having an open mind

Jul 16, 2016 3:18 AM

Accept & Adapt... and above all learn to love & forgive urself πŸ€—... we are all only human after all ⚘

Jul 16, 2016 2:49 PM

Tramadol didn't touch the pain for me but low dose of perocette helps take the edge off and allows me to function.

Jul 16, 2016 8:46 PM

Online groups like this and if you can find them attending support groups in person helps tremendously! By being active in either group method it helps me connect to other people who are suffering-and while they don't have the same diseases we all share many problems.

The best doctor is currently my Psychiatrist. He recommended TMS (5 days a week for 8 weeks). After completing the treatment I realized I was no longer depressed and actually wanted to do physical activities and do other things. (I've been extremely depressed since 1992 and I finished treatment January 2016). I've had a couple more treatments but overall am doing much better. And because I feel better mentally I noticed that some of my aches and pain slowly went away and I'm able to deal with bad pain days better than before.

Now if I could just sleep..,,,

Jul 21, 2016 7:34 PM

A good attitude,friends and smiles

Jul 21, 2016 8:27 PM

ArH, what is TMS if you don't mind me asking?

Jul 23, 2016 6:42 PM

@FlappsLady81

TMS is a newish non-drug treatment for depression , anxiety , PTSD, Migraines, etc

It is FDA approved and done in Psychciatrist offices.

The Dr places a machine w a magnetic coil against head and after some fine tune work, People come in for 6-8 weeks, 5 days/week.

Unlike ECT there is no hospital stay, no missing memory, and no sore muscles from seizure.

Once you get used to TMS it feels like a light tapping and nothing more.

There are 2 major drawbacks for starting this treatment. 1) At least where I live (Close to Denver, CO) I had 2 options of where to go. Other people basically move to a furnished, or not, type of apartment for 6-8 weeks or so.

And

2) COST!!!!!!!! It is VERY expensive and not all private insurances will cover it. If you have Medicare (w lots of reasons why you are doing this vs regular drug treatments prior authorization) I have heard of 5 people who got approved through Medicare - though 2 had to appeal.

The cost is about $3,800/10 treatments.

I had depression that was not responding to medicine anymore. Did this treatment , around week 7 (of 8) it kicked in.

I now get to do back to back treatments for 2 days every 2 to 3 months (it depends on how well I feel)..

I am the happiest I've been in 20 years! I still get occasional mood swings but that is all they are Moodswings. Not the disabling depression. Plus it has helped my anxiety to the point I am no longer taking Xanax on a regular basis which is HUGE for me!!!!

TMS stands for Transcrainal (sp?) Magnetic Stimulation. If you google TMS and your state you might be able to find one near to you. Otherwise I know of one place that might do it but can't remember it's name.

Jul 25, 2016 7:46 PM

Thanks for sharing this info ArH. It's very enlightening to say the least. And I'm so glad to hear it's had positive results for you!! I know how debilitating depression, anxiety, & mood swings all together can be. I had them all in the late 80s and early 90s. Thankfully with the onset of health issues in 2010 they did not include the mod swings. I hope you've been able to gain some sleep over the past few days, and you continue to improve with rest. πŸ™‚πŸ’•πŸ™πŸŒΈ

Jul 26, 2016 1:44 AM

I put up a link flappers... up a few comments.... just a youtube introduction to TMS 🌹

Jul 27, 2016 8:04 PM

One of my son's gave me an adjustable bed, no more sleeping in a zero gravity chair to get a little sleep.

Jul 28, 2016 5:06 PM

I have a zero gravity chair that cost me over $2000 and it does have pressure point issues.. I was really disappointed

Jul 29, 2016 12:19 AM

I think changing my thoughts from "why did this happen to me" and surrendering farther and farther with more and more meds, to a proactive attitude that I had to live with it and got busy researching cause/effect, alternative medicines practices, diet change, LEARNING HOW TO SAY NO. That was huge for a type A do it, get it done person, eliminating unneccesary stressors, including stepping away froma 20 year volunteer activity that was a huge party of my life, etc. I had to go off a huge number of meds to do a test. After the test, I did not continue most of the meds but did continue and upgrade more natural forms of treatment. My next rheumology visit, my five year anniversery as a fibro warrior, I told her I had not started back on the meds, that it seemed j it was symptoms of medication reactions made things even worse. It is constant work. I look forward to when I can retire in three years. I sometimes suffer through work days with high activity. I reserve pain meds primarily for after work. I can't afford to not be at the top of my games when others lives literally deprnd on what ido. My rheumologist didn't fuss, ask additional questions. She simply smiled and wrote out. I think she was waiting for the shift from victim to warrior. She got it, most definitely.Fibro still sucks, days I can't work, I hurt like hell, and I wouldn't wish it on my worst enemy. In my warrior phase now, I think it is ttime for patients to tell the DEA, FDA, Congress that control of our medsshould be between us and our doctor. Penalizing all for the sins of a few bad doctors and patients is wrong. I take my meds religiously, on schedule, rarely call between my six month appointment because of what I am doing holistically and proactively. I am not well, still have lots of stuff to work on but I will fight back.

Jul 29, 2016 12:20 PM

I love, love, Love your post, Fibrosucks! I am waiting to get where you're at and pray it happens soon. I'm so sick of this! I so wish I could just erase all of these health issues and go back to living again! My neuromuscular specialist says that the small fiber nerve pain is what is zapping me the hardest. The fatigue is really getting me down, bad. Seems that by the time I get my shower, I'm completely out of spoons.
How do I get past that and find strength again to enjoy life?

Jul 29, 2016 1:01 PM

I literally kept a log of 24 hours a day and everything, including diet, exercise, stressors, sleep invested in a Fitbit that tracked even my sleep patterns. I have narcolepsy. I rarely hit REM before 5 or 6 in the morning and can fall asleep if sit for any length of time. My employer allowed me to adjust my work schedule and come in later in the day, which tremendously helped. I don't promise to be anywhere. My family and friends know and understnd if I cancel and say I can't make it. I go when I can. I spent/spend, depending on the main fibro event of the day, many, many hours sitting in a hot bath detoxing with epsom salts, baking soda and essential oils before going to bed. Sometimes even in the midle of the night when pain gets so bad. I force myself to move and try to not light for very long in my office at a time. I fade quickly if I stop moving. I invested in quality comfortable shoes when my feet felt like all the bones were broken. I have a hand held massager with a heat attachment that goes everywhere with me. Diet plays a big part. I can tell when I have gone away from a more paleo type diet. Sugars and artificial sweetners are a nno except rare. I invest in fresh fruits and veggies. Pineapple, cherries and wAtermelon are pain inhibitors. I bulk cook on good days and store in the freezer for bad days. It isn't rosey but it is liveable on most days. I sttill take pain meds but force myself to only utilize them when I get home. If my body says sleep when not at work, that is what I do, but I stay doing all those other things. Set your clock for a couple hours ahead of when you need to get up then sleep in for two hours. The mental side pulls us down. Cymbalta had its own side effects and I gained weight like crazy. I am not skinny and could lose more but am at a weight I can maintain without much effort. I don't take a morning shower every morning. I skip if I haven't done too much to stink myself up. I wear my hair in a short cut that doesn't require styling. High heels are a rarity now. A special throw to use on those days when the touch of slight air movement hurts. Polyester fur with the fur against my skin rather than the rougher backing material. If I can't sleep in the bed due to major pain, I soak in the tub and, I move to my recliner and cover with my blankee.........I give myself permission to not feel guilty for not being proactive. Admitting to myself that my old life is gone. It won't ve back, period. My life is what I have to create now and the pleasures I can find now. Our 10 day vacation was not planned out. We did spontaneous. Booked a hotel next to daughter and family. Enjoyed family, food, beautiful beach, the sun, the comfy bed for naps, the impromptu fishing expedition where we set up chairs and shade. They went out more and stayed out later. Hubby stayed in some, went out with them some. We don't require that we spend every minute with each other. He supports, which was its own process. Now he sees or hearsheard about research, etc. And informs me. Latest.......reading in bed(which I do a lot) using one eye can cause you to go blind over time. Now he asks if im using both eyes. I use the guest room during bad flares so he can sleep.......I hope this helps you find your path. It takes quite a while and comes and goes. Perservence, patience, understanding and loving support are primary........gentle hugs.....

Jul 29, 2016 5:35 PM

Great posts, Fibrosucks! Thank you.

Jul 29, 2016 9:01 PM

Wow, I didn't know the Fitbit could track rem sleep! Thanks for sharing Fibrosucks! πŸ‘πŸ™‚πŸ’•πŸ™πŸŒΈ

Jul 30, 2016 12:19 AM

Meditation, My adjustable bed and new mattress, a positive attitude my cats, my flogger (Yes I am bad) my cane.

Jul 30, 2016 12:24 AM

Thank you for this post, Fibrosucks. Lot's of great things for me to work on. Some of them I do now, but many of them that I don'tbut need to. It sounds like you have found that it's essential to invest in yourself. That's the greatest message I'm getting from you. That's awesome!

Aug 04, 2016 9:34 PM

FlappysLady81-I don't know that it tracks REM sleep itself but it is fairly accurate on whether you are asleep or awake tossing and turning and maybe dozing. The one is use will also tie to your bluetooth and you can read incoming phone ids and even music. It is not the fanciest version. I actually took my watch info and compared it to what they said my narcolepsy pattern was and when I slipped into REM. My best hours for actual deep sleep are between 5-9 am.That matches on the watch data as you can tell it is deep sleep with miniml movement for the same period. I showed it to my rheumatologist and she was rather fascinated....

Aug 04, 2016 11:19 PM

That's still pretty cool. My Fitbit zip just doesn't seem to be keeping up anymore. It's my 3rd one. I'm considering a better version.

Aug 10, 2016 9:36 AM

This may sound extremely corny but it works for me believe it or not a rolling pin I'll massage the painful area rolling it back and forward, up and down it works for me and I have stubborn pain! All you do is roll it flat like pie crust dough and the pain will be flat out relieved that's in my case just give it a try and let me know what you think!

Aug 10, 2016 11:55 AM

I actually have a crystal massage wand. It's selenite with a fluorite tip and it feels so good when you roll it over the knots and painful areas. Unfortunately my knots are very deep and nobody has strong enough force to really get into them and that's why I got the wand but they still don't push hard enough

Aug 10, 2016 12:00 PM

Lmao! πŸ˜‚Oh i am howling at ur massage wand! 🐴I have a massage wand too... only mine massages😲 from the inside!!!
πŸ˜‰If u know what i mean! Pmsl again! πŸ˜‚

Aug 10, 2016 12:07 PM

Lulabel I didn't make it to the bathroom this time.. Thanks!!! Lovely to hear of your little boyfriend BOB (battery operated boyfriend). Always good to have handy I guess.. Gotta go change my knickers now..πŸ˜‚πŸ˜‚πŸ˜‚

Aug 10, 2016 12:23 PM

Lmao! Yes 'bob'... omg hes been redundant for years! πŸ€—

Aug 10, 2016 12:28 PM

This is my lovely crystal massage wand. It sits displayed with the rest of my crystals..

Aug 10, 2016 12:32 PM

I like the rolling pin because I can put a very heavy amount of pressure on it and... Ahhh it is like just like going to the massage parlor!!! You'll never know unless you try it and I have first hand experience ooh it feels wonderful although it sounds extremely corny but it is worth giving it a try!

Aug 12, 2016 11:28 AM

Have you guys tried some of the you tube videos???? Some are pretty good--Michael Seely can relax me to put me to sleep at least for an hr!!!!

Sep 01, 2016 4:50 AM

I realize this posting is a year old, but who knows, maybe someone will read it.... Aside from powerful medication (yes, it's true), but aside from that, and this usually happens spontaneously, I end up closing my eyes against the pain and find myself visualizing the color PURPLE! And not just any purple, but the most vivid, intense and majestic color of purple I've ever seen in my life!! This has been going on for a great many years already and now I find that I can do it consciously. By drawing my eyes into the center of nothingness and focusing on an area about 2 inches in front of where my 3rd eye would be, I find that a small circle of purple light begins to appear. Within a minute this becomes my whole world. When my pain is at it's worst and not even my medication is doing it (and believe me, my medication is significant), but this is when the power of this color infusion really begins to show it's true purpose! Just be still and get lost in that marvelous color ~ it will carry you away. BTW, I find that either laying down on my back or sitting cross-legged really promotes the best of this frequency. Good Luck!

Sep 01, 2016 1:19 PM

Fascinating KatieS!! I do know what you mean. I do this when I lie down on the bed, control my breathing & request my eye to open. My inner landscape first narrows to a pitch black tunnel. I soar through to yellow turning to orange slowing turns to red that becomes more & more intense & fills me with warmth & peace.

Sep 02, 2016 3:05 AM

Opiates, schoolwork to keep me distracted and mindfulness. They want to take codeine away from me as apparently 17 year old can get addicted to it. I'm on tramadol too. Not entirely sure what it's doing though!!!

Sep 08, 2016 2:53 PM

I would have to think about that one. It's not an easy answer to think of off the top of my head.

Sep 11, 2016 4:10 AM

Morphine, lidocaine patches, piroxicam gel, thermal leggings and the spoonie community, hydrotherapy helped before when I had it but it finished and I've gone back downhill since

Sep 11, 2016 7:50 AM

I had forgotten about this thread! I had thought about doing the juicing thing LMB does, curious if she still does it and if it still works.

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