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The doc said ... 😖

Jan 19, 2015 7:36 PM

I didn't sleep well last night, after feeling really tired & achy all day yesterday. Got up this morning short of breath. I had 2 asthma attacks today. My fibromyalgia has flared up, as has my IBS. Really wanted to stay in bed. Wish I had...

I went for my neuropsych eval today. The doc asked lots of questions, had me do some tests, and made lots of comments. He said I have way too much going on for someone my age. He said there's definitely something going wrong with the synapses in your brain; I think the pain, the fibromyalgia, and the depression from all you're facing are all competing for the synapses, and there may be something else going on too. We need to do more in depth tests to see if we can figure it out. Although you have some serious memory issues going on, I'm not convinced you have dementia.
☺ That's good right? Wait... 😮
Then he said, "You're in the 5% population where if something is going to go wrong, its going to happen to you."
I laughed 😅 then sort of got mad 😤 then felt depressed for sure. 😥 Do I trust this doc 😒?

Jan 19, 2015 8:02 PM

Maybe just go for a second opinion just in case.
Just because something's go wrong doesn't mean it's permanent nor going to happen to you allllll the time. Stay strongxx

Jan 19, 2015 8:04 PM

How long have you been going to this doc?? Based on the info he gave you, perhaps you need to sit down and write out some questions you have about his/her diagnosis and then go and see another doctor for a second opinion. You can then compare what you learn and see if the new doc has the same medical opinion as the first. That's just what I would do. If you're already second guessing whether you should trust this doc, perhaps you need to check with someone else.

Jan 20, 2015 7:48 AM

I'm definitely going to reserve a final opinion of this doctor until all the tests are done and he gives his diagnosis (es). And I likely will get a second opinion. My husband was with me and really this was the first doctor that listened to me/us completely, and he seems to actually care to get to the root cause of what's changing in my brain. So we will see where it goes with him.

The good news is I get to go back to a psychiatrist I've seen before & trust immensely. He does not believe in putting all patients on the same drug cocktail.

Jan 20, 2015 8:01 AM

I am so very glad for you that you can go back to your psychiatrist. It's always helpful when you can get to be with a doc you know, trust and feel comfortable with. I understand what you're saying about waiting until all the tests come back and that this is the first doc that has really listened and wants to get to the bottom of the problem. These kind of doctors are so hard to find in this day with all the problems with medical insurance. My thoughts and prayers are with you.

Jan 20, 2015 8:51 AM

Thanks Always, trust is a huge key to finding the right treatment. The NP (neuropsych) doc said something about the Pamelor not being right for me, and he didn't dismiss the genetic saliva test showing I don't absorb/metabolic vitamins like most of my docs have. The NP also said something about a SSRI (? Not sure on abbrev) would work better for me and address the pain & related depression. He mentioned Zoloft and I told him I couldn't take it ( can't remember what happened but adverse effect). He mentioned there's 24 meds in that same category, so maybe my old doc can help me better. The NP doc also noticed me struggling to give him details. My husband told him I'm good at general conversation but telling recall has gotten much worse since last 18 mos. Will wait and see where this goes. 😃

Jan 20, 2015 10:22 AM

Well, while you're waiting to see where it all goes, you'll be in my thoughts and prayers. Hang in there, I'll be hoping they find something to ease your symptoms.

Jan 20, 2015 10:58 AM

So this doc basically said that your brain isnt handling all that is going on for you and that's the issue? So is he talking about treating each one of the issues so that you feel better?

Jan 20, 2015 12:40 PM

Jesswoo, that's the way I understood it. Without me mentioning my opinion, he's the only one that seems to think everything going on with me is like a domino effect. One issue affects another which affects another...

Jan 20, 2015 4:38 PM

Hello yall my pain said the same thing about me that everything that is goung on with me is causing a domino effect also so many problem it makes everything worst

Jan 20, 2015 8:25 PM

I heard a story on NPR today about PTSD and how the different signals of trauma are shortcircuiting the brain. It only makes sense that chronic pain signals do the same. In a nutshell - I think that doc is on to something!

Jan 20, 2015 8:48 PM

Me to iathompson I have bipolar and depression to go along with everything else I have that make you bad also

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