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The people without it

Jan 08, 2017 1:41 AM

Do u ever wonder why you were chosen for this path I know I do. I get upset when I see my peers running around in wellness having fun and I have to sit out cause of my legs or when I walk down the street and there are people who are having fun but I'm simply in too much pain to be happy like that. Do you guys ever feel this way? I am lucky that I have such a great wellness teacher who is trying to help me. She is actually like a sister or ant to me. Without her I probably would have had several meltdowns without being able to calm down without my mom or blanket. But then I remember that if I didn't have it I wouldn't be in a meltdown in the first place. I have always wondered if there is something I did wrong to have this happen but I am never able to think of something.

Jan 08, 2017 3:30 AM

Very depressing. Only 56. Look almost dead. Get flu like symptoms when just a little walking. Pain increases and its almost like a schuffle when I walk. No friends now.

Jan 08, 2017 8:34 AM

Hi this is my first post, I found out last week that I've got fibro, however I also have epilepsy (9 years free luckily), dyspraxia, depression and various other ailments that may/may not be linked to fibro. I'm trying to get a handle on it all but at nearly 48 I feel more like a senior. How do you guys manage? BTW I'm married with an 11yr old ASD daughter and fur baby

Jan 08, 2017 10:14 AM

Oh Honey, you didn't do ANYTHING wrong at all. What's happening to you is not a punishment. We will never know why we were plagued with the issues we have but keep the outlook you have in life and let your wellness teacher continue to help you get through. It's very important to have support and you have that with her and with the community here. Things will get better and worse and better again. Keep focus on the good things. Your fur baby, how much the horse you take lessons on loves you over anyone else, etc.. it'll be ok. Sending you warm, gentle, healing {{{Hugs}}} and well wishes that you can stop thinking you did something wrong to end up with the pain you have.🤗💕

Jan 08, 2017 10:27 AM

Horsesnuggler -
I think all of us at some time or other have thought "Why me?" That's natural. I don't know why any of us are dealt the hands we have been given. One thing I am sure of though is that this is not in any way a punishment forced into you because of something you did (either in this or in previous lives). ((( gentle hugs ))

Jan 08, 2017 1:24 PM

I have bad days and wonder why, but I'll tell you that this experience has brought blessings with it. I have four children. None of them even flinch at pushing me in a wheelchair in public - not even the teenagers. They are very inclusive and have no problem accepting kids who are different than they. I have a boy with Oppositional Defiance Dissorder. He has learned to give service because of my illness. He's a very big muscle bound boy and will gently bear my weight as he helps me up the stairs on my bad days. My youngest is eight, and will rush to emulate his father as he steadies me when my balance is off. My kids have watched their father tenderly serve his wife, and are learning what it means to love. My daughter will know how a man should treat her.

We are a religious family. Each night we kneel in family prayer. I kneel. My kids will automatically get me a pillow, my husband carefully lifts me from the floor at the conclusion of prayers. One day my son told me not to kneel because it hurts me. I told him that Christ died for me, the least I can do is kneel for him. This pain gives me the chance to show my kids what faith is.

I don't think I could bear this burden if it was all about me, but it's not. By allowing others to serve us, to really know us, we are providing opportunities for growth. For them, and for ourselves. I don't know why I was chosen for this path, but because I was chosen for it, I am trying to give it a meaning and a purpose. I don't always do a great job of it. Some days I am angry, or sad, or stricken with grief. But that's ok, too. Just don't build your house and choose to live in a negative place. Take a deep breath and press onward. You are not alone, and you have done nothing wrong. This experience is not a punishment.

Jan 16, 2017 11:52 PM

Sigh...I think about this a lot. I've had chronic pain in my hips for about 5 years and knees for 8. None of the countless drs or surgeons know what is wrong but we all agree that my 14 years of gymnastics played a big role. Gymnastics always made me less stressed and angry and I love it so much. And it ended up making me hurt every day so much to the point that there are some days I just think it might be better if I didn't wake up. Why would someone punish me that way? Punish all of us this way? I think it's important to think of the good things. When I feel myself going into that dark place I think about the family and friends who have supported me and I think about my dogs who make me so happy when nothing and no one else can. I try to think about the positives. As someone said above, this experience isn't a punishment. In fact, having to deal with chronic pain at as young as 14 has really shaped who I am and how I deal with things. It's hard, but hang in there.

Jan 17, 2017 2:41 AM

Dito HS. X

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