Keep the medication at a manageable level so as to keep pain down but mental function in tact. Companionship from an understanding partner who will not get upset when I cancel on them if I don't have it left in me to be social or go out sometimes Work is becoming impossible but I try to keep some activity and earnings coming in.
I guess what I wanted to explore is that whilst this is a life sentence, what are the most important things to prioritise and stay focussed in when feeling down or in a bad way with the pain?
I know that the events that lead me to here have forced me to establish a new baseline for what I can do and contribute to in this life, yet I'm constantly reassessing that the value my life now holds is significantly diminished and acceptance plays a big role in how I process that but ut almost seems a little pointless now.....
I know I have told my husband I would be happy to have some days that were a five or lower. In addition to be able to do something now and then...the life I currently have feels like it is a step below existing. I rarely go out by myself because the pain gets so bad I can rarely drive let alone shop for groceries.