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The smallest things irritate me

Jun 28, 2016 11:07 PM

I don't understand why the smallest things cause the pain to flare up. I was feeling somewhat good from 2 dry needling sessions. This morning I was playing music and danced a little in my apartment.. I mean so so minimal less than a minute. And barely moved. Is that was is causing this flare? I don't understand. I'm so frustrated, sad, angry. Will I be able to do things without it hurting? How long do I need to rest. I can't go on like this forever. No exercise, no dance, it is slowly killing me.

Jun 29, 2016 1:44 AM

Tinydancer, I don't think that the little bit of dancing you did caused you to be in a flare. If I'm not badly mistaken, you were saying in another post that you have found a therapist that is helping you to feel better with trigger point and other things and that you're coming off your medication. Now, I don't think the meds are the reason either. Did something happen that made you angry, upset, anxious, etc.?? Sometimes stress all by itself will cause you to have pain and cause a flare.
You will learn to listen to your body. It takes practice. You will learn when you need to take a break, when you need rest, etc. On good days, you have to be mindful and remember to not push yourself too much as you would then have more pain. You really will find a way to manage and learn your body signals as to what it needs at any given time. I've been a chronic pain sufferer for over 22 years, have had 30 surgeries with more on the horizon and a laundry list of conformed diagnosis. It took me a long time to get used to my "new normal" and to be able to do things and not be laid up for several days afterwards in agony. I still dance when I hear good music, I still groom my horse when I go to my BFF's farm because horses are my passion and they transport me to such a peaceful place that I don't feel anything but calm and happy. Sure, I feel pain later when I sit down and relax and try to sleep and most of the time it's worse than normal but not horrendous because I don't overdo the grooming. I don't do it as intensely and for as long as I used too. (Years ago, for me a "quick" groom job was 2 or more hours). Now, I'll groom from 30 minutes to an hour, depending on how I was feeling when I started. So, you see, no matter the pain, life is still possible. You just have to really listen to your body and figure it out. It will take time but you can do it. You CAN find joy and fun in your life even with chronic pain. A positive attitude is crucial, a good support system is necessary and being mindful of what your body is telling you is key. I wish you all the best life has to offer. Settle in with us and you'll always have people to help you through: We offer you a hand to hold when times are tough and prayers, positive vibes and laughter when you need a boost. Also we're all here to celebrate all victories no matter how small they may seem. Every victory is always worth celebrating and finding the joy in it. You've got this and you've got us. It'll be ok. {{{Hygs}}}💕🙏🏻🌻😊

Jun 29, 2016 2:07 AM

Hi @tinydancer,
I know what you mean about not moving and feeling that's killer. It can be damned if you do and damned if you don't scenario. And I'm talking to myself here too, I've read that as much movement as possible is best. Having said that, I just don't seem able to do much and lately I'm seeing more cellulite. Used to think was disgusting and I'd never let it happen to me. Still am disgusted but boy have times changed.

Anyway, I'm glad you're here.
You just keep doing your own best. I have found remarkable people (like alwayz) here with useful news and and I swear just knowing you're all here and I can chat helps, even with stress and pain.

Jun 29, 2016 2:13 AM

It's after 3am!!! I think we all need to do some deep breathing, guided meditation or listen to some quiet music and get some much needed sleep. (Sleep.. Hmmm, I don't think I remember what that is.... LOL). I'll probably nod off around 5:30 and wake at about 7. Oh well, I can nap tomorrow if needed.. Oh wait, it IS tomorrow!!! 😳😜😉

Jun 29, 2016 2:23 AM

I hope you can sleep. I'm having the beloved painsomnia for my apres midnight snack. It's still so hot here, that's keeping me up as well. I will probably move back to cooler parts of CA when I can. Love love love the grands but UT weather is too extreme with these ailments.

Jun 29, 2016 10:21 AM

Thanks friends- I ended up taking a whole tramadol- 50 mg. half in the afternoon and half later- honestly it didn't seem to help.. Just made me feel sadder. I fell asleep after a good long cry. I don't think my boyfriend knows what to do. I get very much in my head. Especially now since I'm not exercising. I'm so used to having endorphins ( teaching dance all day). Now Im sad and angry-intermittently. My mom suggested I talk to a therapist. Doesn't sound like a bad idea. Although- I hate being the one who needs help. I've always been strong and able to deal with my problems/ mostly through exercise and dance. I guess my coping mechanisms have been taken away from me and I need to find new ones.

Jun 29, 2016 7:40 PM

Hang in there Tinydancer. It's depressing just not being able to move like we remember. Keep on dancing, my Friend. Even just a little. It hurts to move but hurts worse not to. It's such a catch 22 but we have to find a balance. That balance will continue to change, too. Just be kind and gentle to yourself. Tramadol never really worked for me. I take some pretty heavy pain meds now but that one never really helped me. Just remember to keep that dialog open with your doctor, even when it seems they're not listening.

Jun 30, 2016 11:36 AM

I hope you're feeling less pain today Tinydancer. Hugs & prayers! 🙂💕🙏🌼

Jul 02, 2016 4:57 PM

Yes, agreed! I had a huge flare last May when doing range of motion of my foot. Then I get so anxious that any movement or someone bumping into me will cause another flare. I don't mean a 1-day flare, I mean 6 months at best. Highly stressful! I still am not sure how it can be or how much is related to emotional stress, for me. Hang in there! 🙁

Jul 02, 2016 9:24 PM

Thanks everyone- pain is still going up and down. Had a few really good days- then been having very bad ones recently. I'm at the beach and i think the long drive, new bed, sitting all day has locked things up again. Trying not to complain since I am at the beach. Focusing on the good days. Sending healing thoughts to you all ✌️❤️

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