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The social security disability blues

Oct 16, 2015 1:52 AM

Vent: I had another breakdown today and I am not sure how much more I can take. I am so mad at social security disability that they make people wait this long. My lawyer said with all my additional diagnoses I will get it for sure, he said more but I don't remember anything anmore. Sounds great right...no I still have to wait for the hearing or I have to start over which he said could be up to 14, well now 12 more months for the hearing. Financial ruin does not begin to describe what I am putting my family through. I was the major bread winner in my house and now I couldn't even buy a loaf of bread. We sold off everything except 1 vehicle. The house, trailer, other cars and just anything we could sell for money is long gone. I told my husband it seems like we dig ourselves out of one hole only to discover we are in a deeper one. The plus side is we are no longer homeless a charity group helped us get into a 1 bedroom but I am not sure for how long as we don't have the money for November rent. When I look through all my social security paperwork I can't help but realize I am worth a lot more dead. I told my husband I wasn't sure I could make it another year. Between the pain, the anxiety of just daily living then the pure hell of social security and my retirement disability (which has stricter standards than social security) killing me. I absolutely for the first time in 46 years feel helpless as a baby and have no clue what to even do. So all the stress makes me hurt more, which makes me sicker. I am becoming weak and can't be out of bed more an hour or so before the sickness and pain overtakes me. Someone suggested something like go fund me page but that doesn't seem right for our family. I feel lost and spinning out of control. End vent thanks

Oct 16, 2015 3:08 AM

Did you try for regular SSI for now? How about Section 8? Does your town or city have a community center that will help with a portion of the rent? Our city has offers one time help with the rent. Any religious affiliations you could tap into? Just some thoughts that came to mind right now.

Oct 16, 2015 5:07 AM

Same things I was going to say, great places to start. Don't give up please. I have been in your shoes before, my husband and I lost Everything! !! We were homeless with 3 kids. I was really bad off health wise and so much more. We didn't even have a car that worked but our faith in God and God himself is was helped us for real. I just kept praying and talking to people and before we knew it we were getting some help, little by little things started looking up. It was hard to swallow our pride because we were the type that always helped others, we never wanted or asked for handouts or help from anyone or the government but we had to bite our tongue and swallow our pride for the sake of our kids. And everything turned around. I still suffer with really bad health issues and so does my husband but we were told bY our kids that they were so glad that we went through that hard time because we had more time together as a family, and also my kids said it made them stronger. They are all grown now and married with their own kids but they said they don't regret any of it nor did it hurt them. My prayers go out to you and your family, hang in there.

Oct 16, 2015 9:50 AM

Just want to say hang in there. I have been fighting ssd for 5 years, finally had my 2nd hearing last month and was approved. Its a long fight but worth it in the end.

Oct 16, 2015 11:11 AM

We lost our pride long ago or gave it up. My son has been a trooper but you can see it on his face.

We have used the resources in our area and they won't help us again for a year. Here you have to go through 211 and they decide what resources to match you with including churches.

section 8 where we live is so overloaded that it probably won't open for another year or so. They do a lottery, I signed up early last year and didn't get on the list.

I am leaving everything with social security with my attorney. Last year it became to much for me to deal with. I hired them after my original application denial. They filed for the review request to get a hearing. The review also was denied. Social Security took way longer than what I read it would take (10 months). So I am afraid it will be more than 14 months to the hearing. I keep praying for a fluke and they accidentally pull mine up and process it.

My husband works but it is never enough. He was off two weeks which is what put us back more. I feel like we are in a vicious circle.

Anyway I was having a super bad night and I needed to get all that off my chest and this seemed like the only place to do it where people understand not just say they understand with no clue.

Thank you for your suggestions and words of encouragement.

I want to add another resource: I belong to a buy nothing group for my area on facebook where i was able to pick up 8 pair of look new levi for my son not to mention tons of other stuff people are giving away some items we have recieved small appliances, movies, dog food, and more. That is my favorite best resource.

Oct 16, 2015 1:58 PM

So sorry you are going through this. I am also in the waiting game with ssd. It has been 26 months and two denials. My husband works and is managing to keep a roof over our head, but just barely. It scares me so much that I am useless. My husband is 9 years older than me and I fear something will happen to him. Right now he is healthy thank goodness. While my physical and emotional problems just get worse. My doctors try to say I am not disabled and want me to give them money to say I am. It's ridiculous how they take advantage. I should not have to pay for a diagnosis that proves what I already know. Starting over with a new doctor scares me so. I am afraid they will want to put me through all the same torture I have already been through. Spinal injections that do little to nothing to improve my pain and are a real nightmare to have done. Procedures like RFL that terrify me that I will be paralyzed. Right now I cannot even get an MRI to see the progression of my disk collapse, spondylosis, and bulging disks. I too feel like I am worth more dead, but then I think of my husband, children, and grandchildren and feel like no amount of money is worth them going through that. I say swallow your pride and start a gofundme. Even if just asking for a months rent. I know it is hard, I have one made but have yet to share it because I am embarrassed to be this far down, but bad things happen to good people and good people help each other. Good luck.

Oct 16, 2015 2:12 PM

Saphire380 our issues health wise sound very similar. I think i have the spinal issues you do in addition to DDD, arthritis and mild spinal stenosis, fibromyalgia and what feels like a billion other things.

My doctor says I can't work, my mental health provider says I can't work, one specialist said no bend, lift, twist on top of my can't stay in one position for long. Social Security doesn't care what the doctors say they make thier own determination. Must be fun to play the devil in so many people's lives (sarcasm).

I have found it you ask for your records with doctors notes and show it to a new doctor they seem to be good about it. Sometimes you have to pay. I was lucky enough to move and told my old medical group I needed everything for the past 10 years for my ongoing Healthcare which they gave me free I guess because now I can provide it to my doctor's instead of them being bothered by every doctor.

Where are you located?

Oct 16, 2015 6:48 PM

So sorry that we are all dealing with such crap when we are already down. I am still hanging by a thread dealing with stupid people (social security doctors). Been waiting 3 years now. Maybe I will see a judge in my lifetime. But, hey I don't look sick, sarcasm intended. I hope Karma is keeping points because I am and it is so frustrating. I completely feel your pain. Keep fighting and best of luck.

Oct 16, 2015 6:54 PM

Shammagren, I understand the frustration. I met with my lawyer recently and he said was are now 16 mos away from a hearing date. I'm just trusting it will come through, preferably sooner than later. Hugs & a prayer that things will turn around for you, that doors to sources of assistance will open. 🙏🌼

Oct 16, 2015 7:00 PM

Thanks flappyslady81 I hope yours get shook to the top sooner than that. 16 months sounds like a super long time. My attorney said 8 to 14 is average where we are. Still wondering how you get on the lucky 8 month list

Oct 16, 2015 7:18 PM

By not really needing it! Lol. Like Saphire380 said her docs would say she couldn't work "if she paid"... There are faculty people who would do just that. It makes us have to go through the winter multiple times. I've already been waiting 12, and the lawyer said it averages 2-2 1/2 years or longer. 🙏🌼

Oct 16, 2015 7:22 PM

Lol I can't believe dr are wanting to be paid to say that. My doctor and my mental place both say I can't work and I have state insurance which is awful

Oct 16, 2015 7:26 PM

I hate America's views on those with disabilities, I know quite a few people that got on disability that don't even need it. They're just lazy and don't want to work. It's so frustrating when you come on here and see all these people who clearly need it and can't even get a chance to get put on it.

Oct 16, 2015 7:27 PM

At this point any insurance is better than none. I have been without insurance since I had to stop working. A little help is always nice.

Oct 16, 2015 7:33 PM

I am in Jacksonville FL and my attorney says it could take up to five years. SSD did not talk to friends or family or past coworkers or employers, which they used to do, and never sent me to one of their doctors. If you stacked all my medical records on top of one another they would be over two feet tall.

Oct 16, 2015 8:06 PM

I was hoping you lived closer as we have so many of the same things. When I was in oregon the health system was awful and if one doctor said something no other doctor would look at it. Now I live in the seattle, wa area and they have done more for me in a year than I got in oregon in 10 years. I was sent to one of social securities doctors what a joke. I don't know what he said but they said I have limitations but could still find some sort of work.

Oct 16, 2015 8:36 PM

Saphire380, SSA only requested records from 3 doctors, and not doctors seeing me for my issues. Rediculous! 🙏🌼

Oct 16, 2015 8:49 PM

At my pain management office I see two different doctors. One believes in fibro but does not believe I am disabled. While the other does not believe in fibro but does believe I am disabled. I'm like I know this guy that does not believe in fibro is old, but fibromyalgia has been scientifically proven to exist. Can't I have one doctor that just believes in me and knowing my own body and what my limitations are. I mean they only spend ten to 15 minutes with me once a month. They ask the exact same questions every visit and they already have my prescriptions in their hands. They are no longer trying to help me find the root of the problems.

Oct 17, 2015 2:52 AM

Saphire you sound like I did 5 to 7 years ago. I was so fed up I fired a few doctors and stirred some hate and discontent. Anyway I felt like fibro was a blanket diagnosis. And I was fed up tired of being in pain and tired of being tired. They could not grasp the concept to make it through a 40 hour a week job I would come home from work and take a nap. Then I would wake up in time to go to bed. In the morning I would feel sick and tired barely able to get ready for work other times I would have to call in. I used all my sick leave and vacation and everyone thought I was faking. The doctors told me to walk, exercise and so on, if i had that sort of energy my house would have been clean. Ahhh the good Ole days. I guess my point here is sometimes you need to dump your doctor, you have to be proactive in your health management. If they aren't doing it move on. I wouldn't take pain management to serious they acted like nothing was wrong with me and told me there was nothing they could do for me. I would love to send them copies of my mri

Oct 17, 2015 3:16 AM

I felt the same way too! Just dumped my pain doc for a new one. I had to wait 2 years because there was no one close that gave narcotics. .. all were an hour drive! Anyway, my doc didn't believe in fibro AT ALL and just kept telling me how fat I am, and not in a nice way. He made me cry twice. He was just a total douche! Finally a new n practice opened up the opposite direction, same distance. It took 2 months to get in with her and another 6 weeks for injections, THEN I was able to dump the douche! I honestly don't know how this doc feels about fibro, but she's nice to me.😊

Oct 17, 2015 5:37 AM

Shammegren, I am so sorry to hear you are in such dyer straights. I can't imagine the stress you are feeling. I know it doesn't change anything but you need to remember that this is NOT your fault. You didn't ask to become sick and unable to work. This is what happened to you. Have you written to your local assemblyman or woman? The other thing you can try is contacting your local news station. They usually have a person or group of persons that will help you get the benefits (or whatever is rightfully yours or denied to you). There is also no reason for you not to set up a Go Fund Me page... You're in need of help and that's another way of getting it. My heart breaks for you that you are so stressed and bedridden. You are NOT worth more dead than alive. You have family, friends and US here that care very much what happens to you. No matter what, know that I am here and holding your hand. My shoulder is here for you to cry on and if you set up a page, let me know, I will give you whatever I possibly can. I am sending {{{{Hugs}}}}, love and prayers to you and your family. I'm here is you need me. 💕🙏🏻🌻

Oct 17, 2015 6:36 AM

I had a great rheumatologist. He charged a tremendous fee for filling out disability paperwork. I paid it. Honestly I can say that tremendous fee, and great narrative report written by my dr for social security was probably the reason I won my case.

Oct 17, 2015 8:18 AM

Keep the faith. ..it took me 26 months of PBJs to finally get penniet

Oct 17, 2015 8:23 AM

Thank you alwayz. I finished by go fund me page and after numerous attempts to hit the share I finally closed my eyes, held my breath and did it. After asking my mid 20's daughter and my ex-husband boyfriend who I usually just call my husband

Oct 17, 2015 8:44 AM

Excellent... Now tell me the page so I can donate!!!

Oct 17, 2015 1:01 PM

It is such a shame the way that we are all treated by SSD. Here in Texas the wait is 18 months - 2 years. It took me 4 years to get mine, and my husband 18 months to get his after we asked his Dr to help him get his. It seems that if you can get your Dr on board it may happen quicker. I saw 3 judges, their Dr and they told me even though we agree you are disabled you can still work 4 hrs handing tickets out. I couldn't stand or sit for any longer than 5 - 10 min at a time. But I could still work.

Oct 17, 2015 8:15 PM

Weezie what's the ages of you and your hubby at approval time? I've heard it from many that under 60 it's twice as hard. 🙏🌼

Oct 18, 2015 11:08 AM

So here is my go fund me page. I don't really have any friends or family so the gift of share would be appreciated. Plus you can see who i am and what i looked like a few years ago.



Oct 18, 2015 11:19 AM

Shannon.... You got it!!! Don't worry, things have a way of working out.💕🙏🏻🌻

Oct 18, 2015 12:19 PM

Thank you Alwayz. ( ;

I also want to add if anyone else has a go fund me page that needs to be shared I would be more than willing to share.

Oct 18, 2015 5:35 PM

Hi Everyone, I had knee surgery 10/21/14, back surgery 3/12/15, and I have fibromyalgia. August 2014 I applied the first time by myself got denied second time I got a lawyer she filled I got denied in March 2015 and now I'm waiting on an appeal she told me Georgia have a back log I have to wait 16 to 18 months. Wow I will be 50 when I get a hearing

Oct 18, 2015 8:11 PM

Dang Leo that is terribly long. I also got my 1st denial in March 2015, the month I was born is cursed I swear all bad happens then, my lawyer got 2nd denial a few months ago I can't remember that is what he is for. I swear a criminal gets to go before a judge before we get a hearing. I know they are not the same just a comparison. I am sure some of it has to do with all the fakers wasting there time is partially to blame. Last year on the news was a lady here in Washington I believe who was getting disability. She was running her own store doing everything just fine. The ONLY reason social security found out is her and her man got greedy and he also applied. Burns my a$$!!! I paid into the system and can't work. Being on disability will just put me I think a few bucks over poverty. No one wants to live in poverty the rest of thier life. I would so rather have my life back as i am sure everyone here does.

I can tell you at your darkest moment don't forget the people on here they will always share and support you.

Oct 19, 2015 3:08 PM

Shannon, I will absolutely share your gofund me page. Here is mine if anyone would please share it as well. As I said in a previous post, we can lean on each other here.

originally applied for SSD in August of 2013. I have been denied twice. I am currently awaiting a hearing.

Oct 19, 2015 3:10 PM

Saphire can you retype your link please when you click on it, it is not found

Oct 19, 2015 3:19 PM

Every time I try to share it I have a problem, which makes it hard to get anyone to it. I have shared on twitter and it ends up only going to the main gofundme page. Thank you shammagren for letting me know. If anyone else has a page I would be happy to share it. I never seem to have trouble sharing others links, only mine.

Oct 19, 2015 3:45 PM

Saphire380, I read your go fund me page, I also have alot of the things you are going through and some that you aren't but haven't been through the cancer ordeals. I'm so sorry to hear all that is going on. You and I sound like twins. I have a son in the US Navy. My husband works very hard but his health is declining due to multiple Sclerosis. Between both of us, most days it feels like the blind leading the blind. We have no money to do things and I can't afford my Co pays and medicines either. I try very hard to make sure my husband has his medicine for his multiple Sclerosis. But they want to put him on one that is going to cost anywhere from 50,000 to 70,000 a year. They are trying to get him into a trial to help us financially. I wish I could help you financially because I would in a heartbeat because I know what it's like. But I can offer my friendship and my thoughts and prayers and well wishes. And a listening ear. I know that stuff doesn't pay the bills but that's something I can offer for as long as you want it. :-) I do pray things get better for you and for all of us. I'm here for you if you want a friend who understands. many blessings

Oct 19, 2015 4:20 PM

Saphire I shared and i asked if everyone could pass it along.

Here is what I wrote with it: so this is a "friend" from a cronic pain group I belong to online. Unable to financially help i am sharing each person who posts their go fund me pages and if you could pass this along I would appreciate it.

Oct 19, 2015 5:13 PM

Thank you all so much. I would not ask any of you to donate as most of us here are in the same boat, but thank you so much for sharing.

Oct 19, 2015 5:27 PM

I think we should all share each other's the more people who see it, well it might just get to the ones who have the means to donate. It also helps put a face with a name and to understand each other's story in one piece rather than bits and parts. I could so relate to yours. I wish I would have taken the money then and paid my truck off instead of the doctors. Not that having state insurance is any joy.

Oct 19, 2015 5:31 PM

Thanks Shammagren for the information the good always have to suffer when we're honest

Oct 19, 2015 9:03 PM

Flappsy I was 50 and my husband was 59. My Lawyer told me that they usually give it to you when you turn 50. I don't know if it's that way for others.

Oct 19, 2015 9:07 PM

I'm turning 50 in August

Oct 19, 2015 9:09 PM

Do anyone get ssid for fibromyalgia

Oct 19, 2015 9:16 PM

I pray that all of y'all get y'all's SSD. Soon. I know my husband asked his Dr if he would help him get his, it took about 6 months, he got his back pay check in Nov., and started drawing his check in Dec. He never even had to go before a judge.

Oct 19, 2015 10:37 PM

I know getting ssd differs from state to state I have read in some states it is apply then the hearing here it is apply, 2nd review then hearing. Also if you are on the magic approval list for what is wrong with you you get immediate approval. My attorney seems to think if I had the diagnosis I have now instead of primarily fibromyalgia I would already be approved. I shall see once I finally get my hearing.

Oct 20, 2015 9:20 PM

Thanks Weezie. I was 52 when I applied, and Ilk be 54 next month. My GA lawyer said 16-19 more mos before a court hearing.

I so wish I could financially help each of you! Unfortunately the 3 trips to Mayo was done through a loan so we're extra tight now. But I will be praying for you all. God can do miracles through others who have the financial means. Let's all pray that your go fund me requests get to the right people! (((Hugs))) to all. 🙏🌼

Oct 21, 2015 12:21 AM

I definitely understand your frustration...I've been trying to get SSDI since 2006.Been through the whole thing 3 times. I just received another denial from the Appeals Council on Saturday. Next step is Federal court but my current lawyer told me about 8 months ago that they aren't doing those anymore and they would have to refer me to another lawyer for that....this terrified me because I had to start from scratch last time when I was already at the Federal court level because all the lawyers wouldn't take a case that was already at that level...they wanted to have handled it from the beginning. Of course that was the first question that I asked them when I asked for their help. I haven't told my parents yet because I know it's going to crush my Mom. I loved my job and if I could work I would. Ugh...so frustrating...I could go on and on...just my luck that my ALJ has the lowest approvals in the whole state.

Oct 21, 2015 2:14 AM

What do I have to expect for my psychiatric Evaluation that I have to go to for the SSI disability doctors

Oct 21, 2015 3:18 AM

Pink cotton candy, they ask you a bunch of world about your living situation and ask questions that reveal how your mind works (example what is 8+9). Now that's is what i can remember and that's not saying much. I remember really liking my psychologist from the ss. But of course. I got denied that time.

@shammagren have you faxed/called /sent up smoke signals to the Social Security officer that your medical condition has changed and you have another diagnosis? I ask because I did when i found out that I had interstitial cystitis and adenomysis and I ended up seeing the judge sooner for my appeal.

It breaks my heart that y'all are having such issues getting it. I know the struggle, it took 3 years to get mine.

@Saphire, our medical issues are so similar we could be twins. Except for the cancer. But i have chemical sensitivity and 9 or of the 10 meds do similar to me.

I think it is a travesty that warriors such as ourselves and our veterans are treated so poorly. I don't know how America for to be the land of the brave and the free by treating the disabled and veterans the way they do.

It breaks my heart to watch my parents have to give up their retirement in order to get me a place to live. (we all love each other but I was on my own for 13 years before moving back home when i was bedridden and unable to even step foot into a store without getting very ill (have that problem now but it's not as bad, but I have to look into hiring a friend to go grocery shopping for me because i can't do it without severe consequences of backlash such as nausea, fatigue, migraines, skin irritation, dizziness etc etc. Thanks to severe chemical sensitivity woooohooo. )).

Anyway i am getting away from what my main point is. I don't understand how out why the united states figured that a disabled person"s cap limit with SSI is $737/mo. I have to eat a special diet, use special soaps and cleaning products. Then my medication? Heh, one medication is 60 bucks every other day. Right now since I've met my deductible, I'm trying to stockpile that medicine. (Shh don't tell my insurance company) but I'm really supposed to take it every 8 hours.

The system is so broken and has been broken for so long is going to take so much longer to fix it. If anyone ever really decides to fix it.

To all of you trying to get your disability, my prayers go out to you.
To all of us fighting the good fight, and to all of those who stand beside us and help us to live this life, my prayers are with you. And my heart is with you all. This is not an easy life and of course one of my favorite sayings is "This isn't the Life i ordered!" and then some quiet voice in my head whispers, but it's the one God is with you while you live it. Or something like that.

Hugs and hope to us all. 💕💕💕

Oct 21, 2015 4:27 AM

Pink they asked me the dumbest questions that seemed so irrelevant I wondered what they got about my mental condition. Growing up, parents, marriages, and so forth. Then I had to count by I think sevens. My mental condition is severe anxiety with ptsd.

Kitty my lawyer is handling it he had me write an email about my additional diagnosis and get it to him before he filed the appeal so he could put it in. The cap per month is based on what you put in. My cap is 2300 per month based on my that. They send a information sheet every year showing what your wages were. If you sign up on thier site you can see the information the have.

Oct 21, 2015 9:39 AM

What really worries me is they base our cap on a certain time frame of how much was paid in during so many months before we applied. If I keep getting denied and have to reapply, won't that amount go down because I have not worked since a while before I originally applied?

Oct 21, 2015 9:50 PM

Saphire I am not sure about the cap when you don't work. If you have a good attorney he will push for back pay extending beyond your latest application. I have heard they can go back a year before you applied maybe more I don't know. Also I would think before you sign anything you need that answer along with how far are you willing to follow this through? I would even ask for that to be added before I sign. Never let them add that after your signature.i wish I was more knowledgeable. I know one site that helps me a little is


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