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Thirst update

Jan 02, 2017 5:00 AM

I posted a while ago about my thirst problem so I thought I would keep a note of what I drink daily, I did this for a week and I can't believe how much fluid I'm taking in.
The average daily amount of liquid for a female is 3.7 litres and in the last week I have consumed a minimum of 6 litres of fluid daily some days it's bin more, a combination of cola, tea and water and still find my thirst isn't quenched. I think I might have to speak to my gp about this.
Anyone else drinking that much and still thirsty.

Jan 02, 2017 6:07 AM

I really strongly recommend that you talk to your GP about this. Last year when I was at my worst.....not functioning at all because I couldn't cope with the pain or the vertigo I was drinking copious amounts of water, I had to call an ambulance because I couldn't do anything else. When the ambulance came they said I was dehydrated until they saw me consume about a liter of water (against their orders but I was thirsty) and I was still thirsty and my mouth still showed I was dehydrated. When we got to A&E and my bloods were done etc.... they actually kept me in. One reason was my pain levels and vertigo but the main reason was because I'd drunk soo much water I had diluted my blood. I'd diluted the salt levels in my body and if you go for too long with low salt levels it can cause you major permanent neurological problems.....if I'd gone any longer my mental health would have been a hell of a lot more fucked up than it is already!!!
But on another note drinking too much can actually kill you as well....there have been people who have drowned themselves drinking soo much.
PLEASE SEE YOUR GP ASAP PLEASE drinking the amount your drinking could cause you serious problems in the long run

Jan 02, 2017 6:25 AM

Wow Sezzy, you really have been in the wars, haven't you? I hope you're feeling ok and relatively pain free. I didn't know that drinking so much could affect you in so many ways. (You learn something new everyday 😊). I will do my best to try and reduce my intake while I wait fingers crossed 🤞
I have mentioned this to my GP in the past and she just told me it was the medication causing it and it should settle down soon. I managed to get an appt with my GP on the 9th of this month, so I will talk to her about it again and hopefully will get something positive from her for a change.
I honestly didn't realise just how much I was drinking, some days more than others, that's why I averaged it out.
(Ps Sezzy I had my medical cancelled at 5.45 the night before and will get a new appt in the post)

Jan 02, 2017 7:51 AM

It's what you are drinking too. Try to drink more water. You're suppose to drink a glass of water for every soda pop you drink because it dehydrated you.

Jan 02, 2017 9:47 AM

Cinders49, I've always drank more than most people, and pee more too (since being a teen, I'm now 55). I've been tested for all typical causes for excess thirst, which were normal. In 2015 I developed an unusual oral rash which was biopsied by an ENT doc. It came back I have Sjogrens, with severe oral, skin, & eye dryness. I drink over 120 ounces of water daily (doesn't include colas or coffee or teas). If I fail to drink at least 115 oz my IBS-C is extremely affected to the point of bowel blockage, which has sent me to the ER (I don't care for a repeat). My GI doc told me to make Gatorade or Powerade one of my drinks daily (8-12 oz), to help with the diluted blood and salt loss Sezzy spoke of. You should definitely speak to your GP as soon as possible. I stay thirsty, and when my lips and fingers begin to split I know I'm very dehydrated. I try my best not to get to that point. My sjogrens is the cause of mine. Hugs love & prayers you get answers soon! 🙂💕🙏🌸

Jan 02, 2017 10:11 AM

Have you been tested for Diabetes? Sorry - am coming in late to the conversation about thirst.

And Flappy - I drink a lot of water as well. Not sure how much though. It seems it goes right through me. I have a history of being hospitalized due to dehydration. When I tell my doctors how much I drink they shrugged it off as my overexagerating. After all - I am dehydrated. My new Dr. listens though and is trying to figure it out.

Your comment about cracked skin caught my attention. I have that often. Right now my fingers and feet are so cracked it hurts to walk and my fingers bleed. Am using a lot of lotion. I was thinking it was just due to winter and the dryer air here at my son's.. But maybe I need to.step up my water consumption. At home I keep bottled water and always have one with me. My son only has pop. I don't drink pop except for the occasional sprite. (once or twice a month). My kids laugh because a 12 pack of sprite can last me 6 months or more.

BTW my mom has Sjogrens. One of my doctors years ago diagnosed me with that - without doing any testing. Then 6 years ago when I moved to Arkansas my then doctor undiagnosed me - again without doing any testing. Is Sjogrens hereditary? Mom and I both have Fibromyalgia, chronic fatigue, osteo-arthritis, bulging discs ... Mom also has Rheumatoid Arthritis and Lupus. I test borderline Lupus so my doctor said I don't have Lupus but could develop it later. (shrugs).

Genetics - the gift that keeps on giving.

Jan 02, 2017 11:44 AM

I never thought about the cracked skin on my hands that way before because there are times my hands get like that no matter the season, I just thought it might be like a mild exema as I had it mildly growing up plus a lot on my mums side had/have exema in varying degrees.
Like you Mimikay I use a lot of hand lotion but it never seems to help!
I have found that if I drink anything I always have to have water afterwards, even coffee but not so much with the herbal/green teas (not keen on normal English tea or the fruit teas) but then when I make say a green tea or a cinnamon tea, for example, I always use my largest mugs (1 pint = 570ml or thereabouts) and I wait for it to cool down and drink it in one go 😱 needless to say I go to the loo a lot!!!!

When my daughter was dx type 1 diabetic they said it's AI as it's her body attacking the pancreas which they said it has hereditary makers but they're not really sure (my paternal grandmother had type 1 as well). They also said that 5% of the people dx type 1 also develop other AI like celiac's and more develop other AI's over the years.....that bit wasn't from the diabetic team but from others I know who are or have family with type 1 diabetes. Sorry I've gone off again but this is important to me obviously as my girl has type 1 diabetes but also because as time goes on I'm more convinced that I have chronic fatigue or something along those lines as well as the trigeminal neuralgia. I met my aunts next door neighbour properly, who was in a similar situation as me with an abusive husband which she finally got the courage to kick him out (luckily for her her ex husband even tho he has tried to get back a few times, in general he's left her alone while he goes off with his druggie friends to get high and whatever else he does! OMG again I'm sorry) while he was still living in the family home she developed trigeminal neuralgia and was basically bed bound for 2 years then while kicking him out and trying to sort herself out the trigeminal neuralgia pain stopped but she was then dx with fibro. The first thing she said to me was what happened to the bubbly happy person I was a good few years back? Then as we sat down and started talking everything I was saying she was like OMG it's like looking into a mirror! I am now where she was 5 years ago and she's 100% positive that I have fibro as well. I think chronic fatigue not sure about fibro I don't think I have all the markers but the fatigue is killing me and the muscle twitches have become very annoying.....I was drifting in and out of sleep this morning and Jo was on my bed colouring in but she had to stop because my whole body was jerking and shaking the whole bed. It kept waking me up so I gave up on sleeping any more! I'm getting more joint and muscle pain as well n.

I'm soo sorry......I have soo much going around in my head I just don't know where to start or what to do 😢

Jan 02, 2017 11:58 PM

Hey, consider your meds, Cyclobenzeprine makes me super thirsty, dry mouth, unquenchable thirst. Apparently alot of similar meds do that

Jan 03, 2017 7:21 AM

Also look at the products you use and the food you consume. If something doesn't agree with you it can increase your thirst in an attempt to rid your body of what it considers toxic.
When i cut sugar and eggs out my thirst calmed down a little. When i started using natural, non toxic personal products it improved even more.
For my mom cutting gluten calmed her thirst a lot.

Jan 03, 2017 7:41 AM

AnimalLover2, I know I should reduce the amount of caffeinated drinks, I take notions for them and on those days I can easily drink 6 330ml cans in a couple of hours, tea should be mainlined for me, I drink copious amounts of tea, again I know I shouldn't but on top of that I also drink plenty of water. I have to say I don't pee much, I only go about 7 times a day 😊. I havent had a cola for 2 days it's been a lot more water 😀.
FlappysLady81, I've always been thirsty and always drank a lot so didn't think much of it but now it's horrendous, I've permanently got a drink on the go, sometimes a drink in two rooms at the same time (usually because I've forgotten about the first one 😂😂). I don't mean to be rude but could you tell me what Sjorgens is? It's not something I know anything about, I have all three symptoms but nowhere near as severe as yours sounds.
Mimikay I was tested years ago but nothing in recent times. Although I've had a set of routine bloods and a few others like ANA and RF but not glucose. The last time I mentioned my consumption, he said just don't overdo the water. My ENT consultant told me about 6 years ago not to drink coke or tea but I've slipped right back to worse than ever I think.
Sezzy My heart goes out to you, you really have such a lot of stuff going on. You comment on topics and are so helpful. I read your comments and I think you actually have both CFS and Fibro, the two mimic each other but you can have both, My Dr has diagnosed me as having both together. This will be why your pain and tiredness is so bad. I feel that you need to see a Dr soon for yourself. Please keep your chin up ❤️.
TeriP, I know that my meds contribute to a certain amount of thirst I'm just worried that I seem to never ever be without a drink unless I'm a sleep, obv 😀. I will discuss it again with my Dr next week.
Gotobef I don't use sugar or eat eggs and bread very rarely but I know that these are contained in products. Could you give me some examples of what the products you use? I'm a bit of a novice at things like that?

Thank you 😊 to all of you for taking the time to reply to me 😀😀

Jan 03, 2017 8:37 AM

Food intolerances are different for everyone. You could be eating something every day that doesn't agree with you and you'd never know it. Try not to use pre-packaged and look into an elimination diet. It's helpful to know if you do have a reaction to something. Then at least you can make an informed choice.
I don't use dryer sheets or fabric softener (white vinegar is a great fabric softener replacement) I use scent free hypoallergenic laundry detergent. I buy my shampoo and conditioner and soap and lotion and deodorant from a local company called Rocky Mountain Soap Company (I order online) and I get all unscented. I don't wear makeup or use any body sprays or perfumes.

Jan 03, 2017 10:13 AM

Cinders thank you soo much, I have an appointment with my GP next Wednesday and I'm trying to hold out till then rather than seeing a different doctor who doesn't have the time for all the back story!!!! Altho I did see a very nice locum doctor last week when my vertigo was bad again (it still hasn't gone away even with prochlorperazine!) and he has put notes on my records that I need to be referred to a certain ENT specialist who loves cases like mine and will be able to look back thro all my history of when I've had vertigo and then try to work out why I keep getting it....he wasn't satisfied with the normal doctor excuse I keep getting that "it's because of stress" or "it's the tablets you're on" and he thinks it's either a symptom of my tinitus or my tinitus is a symptom of the vertigo!?! Like I need another thing to add!!! 😂 oh wait this is a very old issue I've had since as far back as I can remember 😨

Last time I asked my GP about CFS and fibro she said I have no markers for either of them and has put it all down to PTSD, stress, anxiety and depression which is why she's referred me to the primary care mental health nurse who I'm seeing next Thursday, but my GP won't even consider sending me to rhaumatology (can't think clearly let alone spell!!! 😂😲😂) the only thing that showed in my last blood tests were boderline vitamin D deficient and I had inflammation markers but my GP said they were only slightly raised but didn't mean anything!?!

Some days are better than others and atm I'm still trying to get back to routine after Christmas! Spending soooooo much time around other people (including family) and trying to keep a "face" on so I didn't bring everyone down with me was a lot harder than previous times because I'm feeling worse.....don't get me wrong Christmas day was great but I should have gome home boxing day but my sister was over from Switzerland and the kids wanted to spend time with her as we all stayed at mums till the 27th which I spent the two days in bed with most saying to get up and stop being lazy until they actually half realised that physically I was all out, completely out with nothing left (not my dad....old school of pushing thro it no matter what!) and the vertigo got worse at the same time 😟

I'll see what my GP says next week but I'm not holding my breath 😕

Jan 03, 2017 10:29 AM

Sezzy if I was you I would ask for a different Dr, then make sure you book a double appointment so don't feel rushed that way you have time to talk about what's going on. You certainly seem to have a lot of the symptoms of both. Good luck and let us all know

Jan 03, 2017 10:50 AM

@ Mimikay, sjogrens is an autoimmune (AI) disease, and like most it's possible to be hereditary. We wouldn't have diagnosed mine if the oral rash hasn't appeared and not responded to any treatments until the DX & plaquenil was started. Since that dx I've gone on to develop scaly skin and way type growths that the dermatologist days is AI also...Yay! My skin can split in the summer also, but cold dry weather makes it worse. There are other tests that can be done for sjogrens b oral biopsy is the best, per my rheumy doc.

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