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This is horrible

Jul 15, 2014 10:35 PM

Tired in pain, now so much nausea. No one gets it and they judge me. hate it

Jul 15, 2014 11:09 PM

they don't understand the nerve pain. they will some day, don't let anyone tell you what you feel. do anything you can to get rid of the pain, surgery does work, don't listen to the rest of the people the doctors know best, try going to a mayo clinic. your insurance must pay for it. it's worth it just do it and visit it. look for a mayo clinic nearest to near you. and make a vacation out of it. most of them are near nice city's with lots to do.

Jul 18, 2014 7:40 AM

thanks so much, tried mayo they couldn't get me in. I'm going to see if my dr will refer me. I've heard it's easier to get in

Jul 18, 2014 7:39 PM

Hi Cspinelli,
What exactly is your pain from? As for the nausea, ask your doctor to prescribe you COMPAZINE. I find that really helps.

Mak

Jul 18, 2014 9:13 PM

Fibromyalgia, figured out nausea was from Voltaren. Its an anti-inflammatory

Jul 19, 2014 8:15 AM

I take Diclofonac for anti inflammitory because I have problems with my stomach and most other anti inflammatiries

Jul 19, 2014 5:35 PM

Voltaren is Diclofanec it unfortunately really upset my stomach I'm going to stick to 12 Advil a day.

Jul 20, 2014 12:04 AM

They make a patch that has diclofanec in it try that instead of the oral tabs.

Jul 20, 2014 12:08 AM

really? a patch would be great I think I've now got a stomach ulcer from all the meds.
I had been taking Mobic as I was told it was gentler on the stomach.

Jul 20, 2014 1:49 PM

I have the gel. It just doesn't seem to work. My muscles are so bound tight! Nothing helps......I refuse to become someone who runs their life on narcotics. I have to find a way to loosen them up. I spent over $400 on acupuncture, cupping, and massage in one week. Not to mention Icy Hot Patches, heating pads, every roll on product available, ice packs, and all the days of work I've missed.

Having a horrible, horrible day. Brain fog so bad. I feel like everyone around me feels I'm using it all as excuses. Like when I forget things or stumble my words. It makes me want to be alone. my children are the only 2 people and my dad in my life who don't judge me. My relationship as any had its own problems, but this is crushing me.

I used to be a person who could handle and do anything. I did a seriously hard kickboxing class. I'm 4'11" and was 108 lbs. but I kicked ass! I was full of muscles and so strong. I worked 50 or more hours a week, a ful time soccer mom for a club soccer daughter :). she's amazing. Very social. As a lot of us Mom's I was the main person to clean the house.

I now can barely go for a walk and my entire body is hurts. I'm flabby and weigh 120lbs. I only weighed a 126 when I gave birth to my son. I can barely work 40 hours, I do it but I'm in so much pain! I am a nail tech my main problem area is my upper back. I use it all day. I also have osteoarthritis in my hands. They go numb all the time right now my thumb is numb. They think I also have carpul tunnel. I sleep in the car at soccer a lot of the time. My house was so bad at one point you couldn't walk through my living room.

I really hate life I feel useless.

I also suffer from ADHD and the brain fog on top of side affects from Gabapentin for nerve pain. how does anyone expect me not to stumble my words and forget things. I have pretty sever depression due to many big traumatic events in my life. Now depressions is worse due to fibro and feeling insufficient. Feeling so defeated

Jul 21, 2014 3:12 AM

Please hang in there! I can't say it gets any better but you do need to be gentle on yourself too! There are people here who understand, draw some strength from that, family struggle to understand when they can't see a scar or a broken bone etc...
I understand and suffer pain incredibly badly too, I was at my fittest thinnest and happiest in life before the crushing accident that has left me crippled daily by pain.

Secondary depression to any significant injury or chronic pain is normal, don't let that escape you!
Most if not all of us will have had significant episodes of depression associated with pain. It is only natural and as my Dr recently said to me if it was asthma you'd be medicating to address the disease, depression as a side affect to chronic pain is the same! Counselling is also essential.

Jul 21, 2014 11:07 PM

BK7, thanks so much. No one understands unless they are going through it. I'm in counseling and have been for a long time thank goodness. Starting Lyrica today in hopes it will help with pain and with little side effects.

Jul 22, 2014 2:49 AM

Lyrica was my God send for a few years. It stopped/controlled the nerve pain for quite a few years yet it is also one of those medications that have a sensitisation.

I found the specialist that first prescribed it was pushing me on to higher and higher amounts, this got to the point where I was so constantly tired, overwhelmed by exhaustion and mental fatigue that was ultimately worse than the nerve pain. Please follow your specialists advice! It does help, I found it did.

However, for me the complications and side effects on top of another medical condition, again each case is different, please follow your own medical advice sadly, in some respects, I now can't take it any more.

Jul 22, 2014 7:32 AM

I stopped taking Gabapentin which helped me so much because of the side effects. hoping this goes better

Jul 23, 2014 3:53 AM

does the nerve pain ever stop. have had severe nerve pain for several years now. it's driving me crazy. been on pregabalin for 5 years now. been on a high dose for nearly 3 years after suffering a massive back muscle spasm that put me in hospital for 5 and a half weeks. took nearly four months to get mobile again. it's affecting my hands(often can't grip) head, feet, lower legs and bottom mostly. do get it everywhere but the above places are more severe. it's really getting me down and finding it very hard to see on the positive side of life, does anyone else suffer with similar?

Jul 23, 2014 4:55 AM

Without wanting to sound defeatist, no, well not for everyone, it didn't work for me!
I took pregabalin in massive amounts for over five years and still had problems, even with additional procedures to numb or sever the nerves. I still have trouble picking things up, like the handset of a phone, often find myself thumping my arm on a hard surface to try and get feeling back because it's dead numb. So holding things, typing even, are ridiculously bad, I am now off it as I needed to reset my physical health due to another condition and side affects.
Dare I ask what dose you are on?
I was prescribed 900mg three times a day to manage my condition at the baseline commencement, it only went up from there.
I'm now finding, that being off it, whilst the neural pain has returned, I can accept and process that better without the drug F****d fog I was in!

Jul 23, 2014 4:55 AM

Without wanting to sound defeatist, no, well not for everyone, it didn't work for me!
I took pregabalin in massive amounts for over five years and still had problems, even with additional procedures to numb or sever the nerves. I still have trouble picking things up, like the handset of a phone, often find myself thumping my arm on a hard surface to try and get feeling back because it's dead numb. So holding things, typing even, are ridiculously bad, I am now off it as I needed to reset my physical health due to another condition and side affects.
Dare I ask what dose you are on?
I was prescribed 900mg three times a day to manage my condition at the baseline commencement, it only went up from there.
I'm now finding, that being off it, whilst the neural pain has returned, I can accept and process that better without the drug F****d fog I was in!

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