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This is not real.

Sep 21, 2016 1:20 PM

It's all in my head. No one believes me. No doctors, all test show nothing so this must not be real right? I've stopped taking all meds because you can't even tell me what's wrong and my kidneys were not working properly because of meds. If this is real there is no visible evidence. This is not real... But the pain whispers "I am" πŸ’” I'm in destructive denial how do you guys deal?

Sep 21, 2016 1:35 PM

I'm where no tests show anything and that no one believes me. I push until i can't anymore and then keep pushing. Self destructive for sure but i know no other way. As for how to deal... i don't know. Live one second at a time i guess. Currently I'm struggling with this one too. Especially because work doesn't believe the chemical sensitivities that they caused by not upgrading the hvac system 2 years ago when the airport changed how it processes the deicing fluid are real. Neither does western medicine so I'm screwed.
It's not in your head. You have to keep reminding yourself that your are not crazy and that it's real

Sep 21, 2016 3:02 PM

I know it's real but my family doesn't seem to.

Sep 21, 2016 3:12 PM

If 2 people stub their toe they will feel different pain...ie pain is different for everyone, and screw those who dont believe you...there are far too many people who have pain for it to not be real...and i know im not making it up....i wish it away every day, so if it was made up/in my head, i wouldnt even have it....

How to deal with other people? Not sure....i have lost so-called friends, but found other more genuine ones who know im not making it up...so i suppose dont let their lack of empathy, compassion and understanding ruin your soul....believe in yourself, and believe there are people out there who will believe you.... :)

Sep 21, 2016 3:14 PM

Thank you

Sep 21, 2016 5:18 PM

Dreams, just because they haven't found positive test results doesn't mean it's not real. I've had various chronic pain conditions for years at a time before a doctor finally found the causes. Unfortunately the delay has left me with residual chronic problems causing pain. Don't dismiss it because they don't believe you. Do research on your own; keep detailed health journals of daily symptoms; try alternative natural health options (Naturopath or homeopathic); make diet and supplement changes if you think it's helpful. High sugar intake is connected to inflammation, so I've been reducing my intake and making other changes, and it is helping (not in a gigantic way, more mild). Pay attention to the signals your body gives and rest when you need to. If one doc doesn't listen and isn't helping then see another for a second opinion or third. Hugs love and prayers as you try to get answers and find ways to help you cope! πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 21, 2016 5:43 PM

Thank you for your positive thoughts. I am also cutting back on sugar. I have been drinking Natural Calm at night and using magnesium lotion on my legs. Very helpful. I have had chronic pain for many years and am just starting to take things into my own hands by reading and joining this support group.

Sep 21, 2016 6:06 PM

I would see an acupuncturist and a homeopathic doc if we had any in our area and my insurance covered it. You're not alone... We're here for each other πŸ™‚πŸ’•πŸ™πŸŒΈ

Sep 21, 2016 6:17 PM

Thank you everyone😏 It has been hard to a new state and I still don't have any doctors and almost feel like there's no purpose in starting this whole shrade all over again send doubting it's real. What if it'd it's stress or mental weakness crap I'm in school again and starting a new job within a month and I'm wondering what I should do this is so stressful. But thank you again I'll look into best diet books and try mild exercises when I can and hopefully that helps.

Sep 22, 2016 6:10 PM

Dreams, have you thought of taking off from school, to not feel so overwhelmed? I was in college when I had to quit due to health issues. I received withdrawal-fail for all my classes but I didn't care. Had my first neck fusion surgery later that year. Too much stress can exacerbate symptoms, but I have no doubt you have something causing your pain. The doctors just haven't identified it yet. Don't be so hard on yourself. Only you truly know your body. The doctors of today are not inclined to make much effort when a case is challenging, in my humble opinion and from personal experience. Hugs love and prayers you will get answers sooner rather than later! πŸ™‚πŸ’•πŸ™πŸŒΈ

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