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This is Sjogrenspain77

Nov 07, 2017 11:53 PM

I had to get a new phone and some how forgot my email address for here and ended up with my account I used year's ago that I thought I locked myself out of. Well I guess I am back to using this account again.

Sorry I have been away for awhile, so much still going on and stressing about so much so my chest is tight sometimes making feel hard to breathe.

My parents were supposed to be moving up here this month along with my brother and his girlfriend and daughter, but my dad's health has gotten way worse and now they are looking at chemo treatment and dialysis. My brother was also in a car wreak and it messed up his back. I will also be going to my Rhymey tomorrow morning and I am going to request to be taking off the plaquinal because it is messing up my eyes to the point that everything is blurred Even with my glasses on, I am really freaked out right now because my eyes hurt constantly and they tired all the time. Can't get into see my eye doctor who deals with the Sjogrens and does the plaquinal scans on my eyes till January. I love to read but I have a hard time doing so and after 19 mins or so I have to quit , it's frustrating. Sorry I had to get it out and off my chest somehow, I am just really scared and stressed I just don't know what to do anymore.

Nov 08, 2017 4:46 AM

Welcome back! I'm sorry your family has had so many troubles. I hope your eyes get better. Don't forget to breathe.

Nov 08, 2017 5:06 PM

Thank You AnimalLover2, I talked with my Rhymey today and I have been taken off the plaquinal for a couple of weeks to see if my eye sight gets any better, if it does then I'll be taken off the plaquinal, if it doesn't he is going to call my eye doctor personally to get me in before January.

Nov 09, 2017 4:06 AM

Glade your back on, sorry family going threw things, an I hope an pay that everything gonna be all right in the name of Jesus 🙏🙏

Nov 09, 2017 9:53 AM

That so great that you are getting the help you need and it is being taken seriously. Keep us updated.

Nov 12, 2017 5:32 AM

I am sorry to hear of your struggles with reading, especially because it can be a great distraction from pain. Have you tried audio books? Or podcasts? I love to listen to these while driving. Maybe an option for you? Many books on Amazon now have audio option for a little more.

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