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This is so much all together...

Nov 24, 2014 12:16 AM

I have SLE, fibromyalgia, Sjoghren's, OA, possibly Ra now... I am a walking mass of pain. My skin, muscles, joints, nerves, every inch of my body hurts. Right now I am itching on the fronts of both of my thighs. My Mom passed away recently and the stress seems to be causing nonstop flares..it seems the more stressed the more the pain and the more I just can't think sometimes.. I always lose things. I have such a reaction to cold. I just feel like everyone thinks I am making it up. My husband understands as much as he can but my best friend just believes I am exaggerating or a hypochondriac or something. I hurt all over and I hurt in my heart too.. Yoga? Tai chi? Any suggestions? I'm just so tired.

Nov 24, 2014 7:43 AM

I have CRPS type II just started gentle yoga and meditating. Its helping me mentally and physically!

Nov 24, 2014 12:47 PM

Stress is killing me right now. I am in a state of constant flare up.... I would like to do yoga or meditation. Do you use a DVD or go to a class? Because that sounds like a lot. I mean going out to a class. I am lucky enough to work from home. That is a blessing for me. Before I was traveling an hour each way to work at a hospital. I am a medical transcriptionist. Now I work for the hospital but in my home. I am still working full time. Certainly wouldn't be if I still had to travel.

Nov 24, 2014 1:19 PM

If you're interested on seeing if energy medicine would help, I would be more than willing to do free distance healing work for you. I practice Quantum Touch. If you are interested or would like to get a session, you can email me at tranquilityfullspectrum@gmail.com.

Nov 24, 2014 6:12 PM

Xim doing yoga and meditation at home. I bought some DVDs at value village and set up my own space. Go for it!!

Nov 24, 2014 6:14 PM

I bought some cheap tools, blocks and small weights at VV as well. I found setting up a small space therapeutic as well! And I use guided meditationson my tablet with earphones. Its a great escape.

Nov 24, 2014 7:47 PM

I think it's really hard for those with no chronic pain and/or serious health issues to fully understand. Everything around yoga, meditation, Thai chi sounds great. I need to start doing this, and set up a space to do it. I have been slacking with my motivation to get started. BUT I have been regularly stretching and doing a bit of breathing and some yoga moves with it. Even if it's only for five minutes it's something!

Nov 24, 2014 8:12 PM

Just in case some have not heard, there are iPhone and droid apps for meditation.

Nov 25, 2014 5:48 AM

Yoga is also easily adjusted to your pain level as well. Rainbeau mars says even if you just sit up and focus on your breathing, its way better than doing nothing at all.

Nov 25, 2014 5:49 AM

Must check out those apps. Thanks

Nov 25, 2014 1:11 PM

Thank you all.. I will check them too. I tend to get so overwhelmed with things I should do that sometimes I end up doing nothing. Is it just me? The more pain I have the more depressed I am... And the more depressed I am the more pain I have. I have generalized pain in muscles, joints, tendons, skin, etc. I will try meditation and yoga. This is a great forum. I can't believe anyone else feels like I do. I have always felt so alone in this situation. Thanks,

Nov 25, 2014 1:23 PM

I do the same thing when it comes to being overwhelmed. I feel like I am in a fog unable to think clearly so by the end of the day I have nothing accomplished then I feel stressed and anxious which leads to flares. And oh yes! Stress is huge on flare ups. So sorry about your mom. I am sure this has triggered so much tension in your body. when stress hits me hard I try to remember to just take one day at a time. That's all I can handle anyway. We are all in this together. Knowing that sure helps!!

Nov 25, 2014 1:55 PM

I know you are all suffering so badly. It seems the worse the pain, the more the stress and then the anxiety heightens, headache, migraine, pain escalates, etc... I can't seem to get the gist of meditation. Perhaps you could recommend a sight for me to go on and it would help me to learn how to do it efficiently. I have been diagnosed with Degenerative Joint Disease, Degenerative Disc Disease, Cervical Spondolytic Myelopathy, Long Thoracic Nerve Palsy, Thoracic Spondylosis, Thoracic Disc Degeneration, Reflex Sympathetic Dystrophy, Moderate Lordosis, Scoliosis, Sciatica, Migraines, Graves Disease and Depression/Anxiety. I'm sure there are a couple of other things that I've missed (but is t that more than enough? LOL!!) I am on heavy duty medications and they are not doing the best any more. I've had 28 surgical procedures in the last 16 years to try to thwart the progress of these diseases and fix what they could that's falling apart. I've also had a Neurostimulator Implant and it was revised FOUR times. There really are no more surgical procedures that can done at this time however, I'm not wanting to go through a shoulder replacement if there is no way to guarantee that it will work or will not deteriorate over a short time.i pray for all that I come across in this wonderful community that I am so very happy I found. It's a breath of fresh air to be able to talk to folks that k ow what you are going through and can REALLY understand. I hope you all find some resolution. As for me, I hope that somewhere, sometime, medical science will come up with something to help us all.

Nov 25, 2014 4:21 PM

Bless you for your words of encouragement even while you are going through everything you are. Thank you.

Nov 25, 2014 5:19 PM

Here is one meditation I like. Be sure to use headphones.

Nov 25, 2014 6:33 PM

I have used Deepak Chopra and Oprah mediation with good results. Works especially well in my depressed moods.

Nov 25, 2014 6:41 PM

I think positive meditation. Taking two minutes each day to thank the blessings you do have can really help. Surround yourself with people who care and will be supportive and encouraging. Having stress, negativity and to feel you need to defend the truthfulness of what you are going through just adds to the real pain you are feeling. Just know you are never alone!

Nov 25, 2014 6:59 PM

Very true, a friend that I have that is also a 3 time Cancer survivor keeps Comedy close by as part of her healing. She even wears pink shirt that says "heck yea the're fake the real ones tried to kill me twice". I had no idea how much keeping a jovial attitude had such healing effects. I'm all for methods that make it clear that I can see beyond my pain.

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