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Thrown for a loop, brain overloaded. Opinions/Advice/Experience please

Sep 13, 2018 1:53 PM

I came home from the neurosurgeon yesterday so depressed I couldn't function. He told me that because of the bladder and bowel dysfunction he believes it's caused by my spine (DDD & pseuoarthrosis, spondylosis, etc). He informed me that my spine surgeries in 2016 & 2017 (C3-4 & C7-T1) are not fusing and healing. He suspects it's because of the osteopenia, super-deficiency of vitamin D, hypothroidism, Sjogrens, & fibromyalgia, vein insufficiency, and other health problems, along with the added stress of handling my dad's & stepmom's care for 2 years followed by my Dad's recent death. His words were, "with so many overlapping autoimmune issues and other health problems, your body is just fighting an uphill battle to heal."

We are waiting for insurance approval for another MRI, as he's looking for actual nerve damage that controls the bowel and bladder functions. But I need advice, opinions, or personal experiences for the following scenario:
Doctor wants to open up my back from C2 or C3 to T1 or T2, remove the tendons connection the muscles to those disc areas, then cut off the bone protrusions for all of these disc levels, grinding the protrisions and inserting the bone fragments into implanted cages at each unhealing level. If he sees other problems he will also address repairing those issues. He said I'll be unable to drive for a minimum of 6-8 weeks if not more, and that my recuperation will take a much longer time period, likely a year or more before I could even start PTOT therapy. He also said the pain will be the worst I've ever suffered post op. Let me just clarify that I've developed a strong tolerance to pain out of sheer necessity, due to a 3/4 page long list of pain medication allergies. I'm scared to death. No, I'm horrified at just the thought of it all!

I would like to know that others here have had similar surgeries and it didn't turn out as bad as the "painted picture" I now have in my mind from what was described to me. I've had disc fusions, all in the neck area and just last year at the top of the thoracic area: 1992, 1995, 2016 & 2017, fused C3 to T1. My 2016 was the worst pain of all because of having to move my thorax and vocal cords aside to get to the discs. They gave me hydrocodone syrup then & I started itching from it into the 6th week post-op so I went to my Tramadol (for fibromyalgia flares). I can't even take the normal gabapentin levels because of my super sensitivities to all meds. I take only 300 mg gabapentin at bedtime every day, and when I'm in a flare I add 100-200mg/day. If I take 900mg/day I become a zombie, seriously!
In advance of answers, thanks for your help!
Hugs love & prayers to all!πŸ™‚β€πŸ™πŸŒΌ

Sep 13, 2018 4:43 PM

FlappysLady81 I can't offer any advice but I can offer love and prayers πŸ€—πŸ™

Sorry you're having to go through this.

Take care

Love Hayley x

Sep 13, 2018 5:03 PM

Flappyslady81 it was so good to hear from you today. I'm so sorry for what you are going through. You'll certainly be in my prayers for your surgery.

Sep 13, 2018 5:36 PM

FlappysLady81, ❀️❀️Life has many ways of testing our strength, just remember whatever struggles you or face with there are people like myself and other members that strongly belief in the power of PRAYER and will pray for you with Firm conviction and trust that you will make it through it allπŸ™πŸ™πŸ˜‡.... Don’t be afraid, because when I pray 3 times a day for courage for myself you too will be in my Prayers also.
I believe in MIRACLES and Blessings

God Bless

Sep 23, 2018 11:59 AM

Thanks Haley, AnimaLover2, & Cb1227! The support & prayers, & all positive thoughts mean a lot. I am very dependent on prayer in my life. Though things haven't always gone how I thought they should, later down the road it's always been a blessing in disguise. Having friends like in this community is a real blessing! I see the neurosurgeon Tuesday and will find out the MRI results then. Hugs love & prayers to you all! πŸ™‚β€πŸ™πŸŒΌ

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